Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination


paige350z

Recommended Posts

paige350z Rookie

My family members don't seem to believe me when I say I got sick from CC of something and always try to justify that it was something else. For a Super Sensitive, this is aggrivating. I know my system and my symptoms and I know the difference between a bad food and CC. Can some of you (super sensitives please) explain the great extend at which we can get sick? Or a past experience when you got sick from the most minor of CC?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



paige350z Rookie

My family members don't seem to believe me when I say I got sick from CC of something and always try to justify that it was something else. For a Super Sensitive, this is aggrivating. I know my system and my symptoms and I know the difference between a bad food and CC. Can some of you (super sensitives please) explain the great extend at which we can get sick? Or a past experience when you got sick from the most minor of CC?

Using this as proof to my family to show that yes, even the most minor, no brainer mistake can make us sick!!

kareng Grand Master

Show them this website from experts on celiac. You can google celiac centers and find more if you need to.

A lifetime commitment

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person

Bubba's Mom Enthusiast

My family members don't seem to believe me when I say I got sick from CC of something and always try to justify that it was something else. For a Super Sensitive, this is aggrivating. I know my system and my symptoms and I know the difference between a bad food and CC. Can some of you (super sensitives please) explain the great extend at which we can get sick? Or a past experience when you got sick from the most minor of CC?

On March 20 I cleaned the kitchen. I wiped down the inside of the cabinet that used to have flour stored in it. I didn't eat any flour, and wore rubber gloves..but must have breathed some in? I got hyper a while later, that progressed to insomnia that night, followed by a feeling of being off balance/dizzy. I'm still feeling the off balance effects and it's been over 2 weeks! :o

My family just don't "get it" either. Nobody is careful about their gluten foods. I finally broke down and got my own microwave. I got tired of seeing the crud from canned pasta plastered all over the insides of our shared one. :(

I wish you could see gluten under a black light or something? It would be so helpful to have a way of seeing cc?

Kansas Rookie

I used a knife my husband had spread his jam with, I used it to cut a banana, was sick 20 minutes later. I also have been using Diamond brand walnuts in my muffins without any problems. One morning for breakfast, had my usual muffin and twenty minutes later I was sick. Read the label, "nuts are processed on same lines as wheat, other nuts etc. I get sick with anything that shares equipment, I am learning to read labels everytime I purchase something.

T.H. Community Regular

A friend's gluten cc moment is probably a more useful one for your relatives. :-)

I have a friend who went out to a fast food place with her family. She didn't eat anything there and just got a 'water cup' so she could get water from the soda fountain. It was one of those spouts that is usually lemonade but you could press the 'water only' button to get water from it. She had some and was horribly, horribly sick from the water.

She later found out that the lemonade that comes from the same spout has gluten in the powdered mix it is made from, and whatever was left in the spout mixed with her water and zapped her. :-(

Di2011 Enthusiast

* the corn-only corn flour that isn't just corn (probably factory related, can't trust restaurants etc)

* nuts (even "natural" that are processed or transported on common lines)

* ((I am very sensitive)) gluten free processed foods that are tested (how often??) at a particular level but my DH can't tolerate any much...

this is the hardest one. Rice and rice noodles from Thailand factories seem to be the most reliable for me as they are likely produced in a rice only platform.

There is a great company here in Australia "Freedom Foods" who have several products that are now my only "gluten-free" production line foods. I really need to get online and thank them. They even track their (I believe newly introduced) oat products to ensure the oats are produced, transported etc etc without glutens. And they then test every batch that comes to the factory. They are truly a company that regularly amazes me. I wonder and won't be surprised if the owner/boss is a serious DH/celiac sufferer (i hate the word sufferer.. any suggestions for something more positive??)) !!

This past week I introduced Freedom Foods Crunchola which is a toasted muesli type product. It has been my lunch every day so far this week. And with breakfast being such a problem my entire life I find it thoughtfully amusing to being eating a massive bowl of toasted oats for lunch 3 days in row. No reaction. I might actually get to be a breakfast person yet...

Okay that is way too much about me. You have two options

1. Get the friends and family informed. This is not a traditional epipen type allergy but it could kill you - the slow and surely type of cancer vs a heart attack type of death

or

2. Get stuffed ((not sure if this is just an Australian saying??)).. I'm not hungry, I can't trust anyones food so don't be offended because I tend to react with anything outside my own kitchen .. I hope you get the idea. If you don't...

In Australia 'get stuffed' tends to mean don't bother.. if you can't get it then I'll pretend you are a bit slow on the uptake and give you little subtle ideas of what it might actually mean. If you don't get it you probably aren't worth the effort.

A symbol of our great British and convict history.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,656
    • Most Online (within 30 mins)
      7,748

    AdrianaMarin
    Newest Member
    AdrianaMarin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      UPDATE I've been asked for an update by someone who sent a PM, but It's best to post health info publicly because this means fellow Mods can make sure I'm staying on the straight and narrow path with any advice I'm giving out! Alex...   Yes, my symptoms did slowly improve.  They started around October, from memory.  Approaching Christmas I remember the feeling as if there were feathers irritating my chest in my lower throat and in my lungs, and things like scented candles made things even worse.  I had a endoscopy and they found nothing wrong, I also had a chest X-Ray because of the cough which lasted more than six weeks and nothing showed. In the end I think the end it settled because I was doing the following: following a reflux/gastritis diet  (you can find lots of these diets on line, which focus on a low fat, low acidndiet, avoiding spices etc, avoiding alcohol and coffee etc) not eating three hours before I went to bed, which means going to bed with an empty stomach sleeping with a wedge pillow, which I still do, five years on... taking Gaviscon Advanced before bedtime, and after meals (not much, just a large teaspoon) using a blue Salbutamol inhaler, I think it was two puffs in the morning and two puffs at night. I felt a lot better after about three or four months.  I then only used the inhaler and Gaviscon when I had to, if I started to feel my chest was getting irritated again. I find keeping on top of reflux symptoms the way forward.  My gastroenterologist told me that the cough was to do with reflux/gasses in the gut coming up that can irritate the throat and airways and the fact I noticed improvement when using Gaviscon showed that that was what was causing it, because it provides a barrier that stops this happening. From the Gaviscon UK website: "It creates a protective barrier or raft over the Stomach contents (which is mostly acid, but also pepsin and bile)." https://www.gaviscon.co.uk/#:~:text=It creates a protective barrier,water and other neutral substances. This protective barrier stopped the contents of my stomach from coming up to irritate my throat, as I understand it, and allowed any irritation in my throat to settle. I do still take Gaviscon if I eat a late meal but not every day.  I hope this helps.  Do come back to me on this thread if I can help further. Cristiana    
    • Scott Adams
      Let us know what you find out, the reference ranges should appear on the original test results.
    • MommaBear82
      Hepatotoxicity DOES happen with kratom. It happened to my husband. He turned yellow with jaundice and his urine became brown. This was only after taking it three times. I know because I was the one who gave it to him, unfortunately. People should realize that it can and does happen. 
    • Toaster
      No other tests. This was from about 10 years ago, I noticed it when checking through my all bloods to look for patterns.  I will go back to my doctor...
    • trents
      Were there any other tests besides the EMA run for celiac disease? If not, you should request them. At minimum, "total IGA" and "tTG-IGA" should be ordered. A more complete celiac panel would also include the DGP-IGA, DGP-IGG and TTG-IGG. And very importantly, you should not have been reducing gluten consumption in the weeks/months leading up to the testing blood draw.
×
×
  • Create New...