Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Diagnosis

Mateto

By Mateto
in Doctors

Recommended Posts

Mateto Enthusiast
Mateto
Posted

So today I went to the doctor to get the results to my bloodwork.

She had the results, only she never had the results to the coeliac test -- which is the main reason I was tested of course.

Then she told me I was bulimic or anorexic, I had to be, because I look like it. It was no use trying to defend myself because she kept saying "umhumm", you know, that sceptical "yeah, whatever" kind. Now I have to get more bloodwork, and spend more time being SICK.

Also, my iron levels are HIGH! Too high infact. Is this common?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

How frustrating! Oh no, I didn't test you for celiac because I don't think you have celiac, I think you are just bulimic or anorexic. Now really, wouldn't you know if you were bulimic? She must obviously just think you are looking for attention. Well, you are, but of the informed kind!!

mamajchis Newbie
mamajchis
Posted

My primary care doc thinks I am a lazyhypochondraic just because he is inept at finding the cause for my very long list of syptoms which are sypmtoms of celiac. I finally did have the bloodwrok done but understand it can give a false reading. Mine came back negative. I went gluten free mon March 19 2012 and have noticed great improvemt in my body na dmostly my mind. The brain fog was so bad I couldn't think straight, couldn't carry on a conversation, loss of memory. Glute free and proud of it.

mamajchis Newbie
mamajchis
Posted

My iron levels, potassium levels, magnesium levels and B12 levels test consistently low. Potassium has been so low at times that it was close to a medical emergency which I could have died from. I take iron, potassium, magnesium and monthly B12 sgots along with a multivitamin and still blood work comes back with deficiencies. Hope my next bloodwork will be much improved.

  • 2 weeks later...
ncallier Newbie
ncallier
Posted

My iron levels, potassium levels, magnesium levels and B12 levels test consistently low. Potassium has been so low at times that it was close to a medical emergency which I could have died from. I take iron, potassium, magnesium and monthly B12 sgots along with a multivitamin and still blood work comes back with deficiencies. Hope my next bloodwork will be much improved.

I hope your blood work is much improved on your next appointment! What just kills me is that even with a definitive celiac diagnosis by both blood work and endoscopy that my dr. didn't suggest any other tests or anything. He even diagnosed dermatitis herpetiformis but refused to prescribe Dapsone or give any other advice. He told me I could see a dermatologist or a dietician if I felt that I needed to??? I now plan to get an appt. with an internist (maybe??) for the vitamin / mineral tests.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,112
    • Most Online (within 30 mins)
      7,748
    Katie Malcom
    Newest Member
    Katie Malcom
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Help Understanding Test Results

      By trents · Posted

      ome value? Is that a typo? I don't see that on any of the test results you post and I've never heard of that one.
    • Scott Adams
      Help Understanding Test Results

      By Scott Adams · Posted

      Thanks for the update! It’s great that your GI is being thorough with the follow-up testing—hopefully the endoscopy will give you clearer answers. The EPI diagnosis is interesting; I’ve read that celiac can sometimes lead to pancreatic issues like EPI due to long-term malabsorption or autoimmune overlap. Have they mentioned if your EPI might improve with a gluten-free diet if celiac is confirmed? Wishing you smooth sailing with the endoscopy tomorrow—let us know how it goes.
    • Brown42186
      Help Understanding Test Results

      By Brown42186 · Posted

      Hi again! I just wanted to update here that the GI redid my bloodwork and the ome value is still high so I'm having an endoscopy tomorrow. I also got diagnosed with EPI which seems to possibly be linked to celiac according to Google.
    • Liquid lunch
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Liquid lunch · Posted

      Reishi and cordyceps are immune modulators, they stop you reacting so much/producing antibodies to lectins. Uptake is better when taken as a tincture, you can buy it pre made as a tincture, usually vodka based, or make your own which is much cheaper. You can find instructions online, basically powdered mushrooms soaked in strong alcohol for a month, shaking regularly. Then the strained mushrooms are heated gently in water for 8 hours, strained again and the water then combined with the first alcohol extract. Some of the properties are water soluble, others require alcohol for extraction. It’s also prescribed for fatigue which is a side effect I’m happy to put up with.
    • Bebygirl01
      Not Just Wheat, Barley and Rye Glutens that make us sick

      By Bebygirl01 · Posted

      corn: It is the second most commonly genetically modified food on the planet (soy is #1) Genetic modification of foods continues to kill animals in scientific studies. It is an incomplete protein. It is difficult for humans to digest (ever see corn in your stool?) It is high in calories and low in nutrient value It is a new food to the human genome. It is being used as a staple food for our cattle, fish, chicken, and cars. Cows and fish are not designed to eat grain. (Have you ever seen a fish jump out of a lake into a corn field for supper?) When animals eat corn as a staple they have shorter life spans. Corn fed beef is linked to heart disease, diabetes, cancer, and obesity. Grass fed beef is not. Fructose derived from corn is toxic to the liver and contributes to severe health issues. Corn syrup has mercury in it. The list can go on and on and on… Many consumers bow to the alter of “Gluten Free” packaged foods as if the label is a safety net. “Gluten Free” on the package does not mean that the food is healthy. Do not deny yourself the God given right to be healthy.
×
×
  • Create New...