Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Trip To London


BabsV

Recommended Posts

BabsV Enthusiast

So, since the Polish doctors are rather stumped by my case of abdominal pain at the moment (actually they've been stumped for almost a year!) there is talk of sending me to London to see some specialists there (including getting a HIDA scan since it seems that "no one does those anymore in Krakow...we use MRIs" and I have a severe claustrophobia issue not to mention surgical staples that they weren't sure would be good for going in the machine.)

I'm wondering if it would be better to stay in a hotel (having to eat out) or a short-term apartment. How's the general awareness of gluten-free eating in London? Am I better off preparing my own meals? I know it would be cheaper, right?

Any opinions? Anyone living in London now? Visited recently?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



India Contributor

Hello,

I lived in London until recently. A short-term apartment might be good - alternatively, a breakfast only hotel might be ok too, if there is a fridge in your room for storing food.

For making food yourself, I would recommend Sainsbury's and M&S Food as supermarkets with good gluten labelling. There are lots of these around London.

For restaurants, I would recommend the following, which also have several locations in London:

- Leon (my favourite!)

- Wetherspoons

- La Tasca

- Cafe Rouge

I've also heard good things about an Italian place called Cotto (Open Original Shared Link) but I've not tried this myself.

If you're on Facebook, there are various UK coeliac groups who are very helpful, including Gluten Free Guerillas.

Hope your trip is useful and that your pain improves soon.

All the best,

India

India Contributor

p.s. Preparing your own food would definitely be cheaper - London is horribly expensive, sadly. Also, if you join the Leon and La Tasca mailing lists just before your visit, they may send you discount vouchers :)

BabsV Enthusiast

Wow, India, thanks so much. This is very helpful!

Gemini Experienced

Wow, India, thanks so much. This is very helpful!

I'll add my 2 cents worth.....London is pretty good with gluten-free and I would highly recommend a flat rental because you'll also have more room for the same price as a hotel. There is a phenomenal Whole Foods Market in Kensington, a couple of blocks from the Kensington High St. tube station that has tons of gluten-free foods and about the best selection of veggies and meats in central London. I'm not saying it's cheap but you'll have no trouble finding whatever you need there.

For restaurants, I like Cafe Rouge because they have done a super job with me and I have eaten there at least 6 times on various trips to London. Good French peasant food done simply and well. It's a chain and there are a few sprinkled around the city. For a chain, they are excellent.

As for Cotto.....they are on South Bank side of the Thames and I feel kind of guilty saying this because they were super nice people but.....the food is overpriced and, quite frankly, not as good as what I have made at home. It's run by first generation Italians and yes, they have all the Italian foods everyone loves but I was not crazy about their red sauce and the pizza is very, very pricey. Not worth it in my opinion. We spent almost $100.00 on a meal there and we each got a dish (2 of us) and I ordered a take away pizza to take back to our flat. We also had 1 drink each. Between the price of the food and service charges and tips, it was too expensive.

London is very expensive anyway and it annoys me to pay all the service fees and taxes they are charged in the UK. I am sure rents are astronomical in London, which is reflected in their pricing also. We heard rave reviews about the place and the owners were sweethearts but for what we paid, the food was just not up to snuff. I hate dissing a gluten-free eatery but I am being truthful.

It would be better for you to rent because breakfast can be eaten in to save money. You can also cook dinner in and eat out as a treat. That's what I do. But as far as people looking at you like you have 3 heads when you mention Celiac, it didn't happen and I have traveled there 3 times since diagnosis. Never had a problem at the vast majority of places I walked into.

Good luck with any testing and I hope your issues are resolved soon! Try to enjoy yourself a bit in London because it is a fantastic city, rich in history. I love it there...I just wish it weren't so expensive!

Gemini Experienced

Hello,

I lived in London until recently. A short-term apartment might be good - alternatively, a breakfast only hotel might be ok too, if there is a fridge in your room for storing food.

For making food yourself, I would recommend Sainsbury's and M&S Food as supermarkets with good gluten labelling. There are lots of these around London.

For restaurants, I would recommend the following, which also have several locations in London:

- Leon (my favourite!)

- Wetherspoons

- La Tasca

- Cafe Rouge

I've also heard good things about an Italian place called Cotto (Open Original Shared Link) but I've not tried this myself.

If you're on Facebook, there are various UK coeliac groups who are very helpful, including Gluten Free Guerillas.

Hope your trip is useful and that your pain improves soon.

All the best,

India

I have never heard of Leon, India, but thank you for this tip! I'll add it to my list.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Tarp's topic in Related Issues & Disorders
      6

      Celiac related issues

    2. - trents replied to Tarp's topic in Related Issues & Disorders
      6

      Celiac related issues

    3. - Tarp replied to Tarp's topic in Related Issues & Disorders
      6

      Celiac related issues

    4. - Tarp replied to Tarp's topic in Related Issues & Disorders
      6

      Celiac related issues

    5. - trents replied to Tarp's topic in Related Issues & Disorders
      6

      Celiac related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,329
    • Most Online (within 30 mins)
      7,748

    Carogo61
    Newest Member
    Carogo61
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
    • trents
      Diabetes type 1 or type 2? Type 2 diabetes has a statistical correlation with celiac disease.  The B vitamins work in synergy with one another so I still would recommend a B-complex. This may also help your anemia which is evident from your low ferritin, hematocrit and hemoglobin.  Your "chest pain arm pain and burning with increased weakness in my legs" would seem to correspond to the areas of your spine where you have had surgeries. My observation is that spinal surgeries seldom prove to be successful in the long term as they don't address underlying degenerative problems.  I will attach embed an article which may be helpful to you in eliminating gluten from your life. There is usually a real learning curve involved in achieving gluten free eating habits on a consistent basis as gluten is hidden in so many food products where you would never expect to find it and can be masked by terminology such "food starch". Eating out is the number one way to sabotage your efforts to eat gluten free as even when you order things that are naturally gluten free they often become cross contaminated with wheat back in the kitchen by being prepared and handled along with wheat containing foods. Another factoid that you need to be aware of is that for mature adults, it typically takes 2-3 years after achieving a consistently gluten free diet for the mucosa of the small bowel to experience complete healing. However, considerable improvement in symptoms usually occurs in a matter or weeks or months.  
    • Tarp
      I thought I had osteoprosis but did not find it on my record.  I know I have stenosisof the spine.  I also have Sarcoidosis and diabetes.
    • Tarp
      I am 64.   I have struggled with a combination of diarrhea and constipation most of my life. Yes I have osteoporosis.  I have been taken magnesium citrate with calcium and d 3 and zinc.  I take b12 and my latest blood work showed it to be high 2000. My other blood work showed low rbc, hemacrit, hemoglobin and Ferrin.  My gastroentologist didn’t say anything just told me to go gluten free and check blood in 3 months. I have had 2 lumbar disc surgeries and 2 cervical spine surgeries    
    • trents
      Welcome to the forum @Tarp! Some more information would be helpful. What is your age? What led you to investigate celiac diagnosis 11 years ago? What were your symptoms then? Do you have osteoporosis/osteopenia? What areas of the spine have been involved with your four surgeries?  As you probably know, celiac disease damages the lining of the small bowel which typically results in malabsorption of vitamins and minerals. This, in turn, can result in bone demineralization and as well as neurological disorders. Because of your spinal surgeries, it might be difficult to sort out what is causing what. Are there nutrient deficiency related neurological problems going on? Are there nerve impingement problems going on from the surgeries? Both? Having said that, it's a pretty safe bet that you would do well to invest in some high potency vitamin and mineral supplementation to address the malabsorption problem. We routinely recommend a high potency B-complex, magnesium glycinate or magnesium citrate (not magnesium oxide), D3 (5000 IU daily) and zinc. Most of these in this list are vital to neurological health. Make sure all are gluten free. Costco's Nature Made and Kirkland Signature products are a good choice and reasonably priced.
×
×
  • Create New...