Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering What The Results Will Be

noenergy

Recommended Posts

noenergy Newbie
noenergy
Posted

Here is my story, trying to figure out if this sounds familiar to anyone. I went to the doc several months ago for a general sick feeling. I had fatigue, insomnia, stomach pain, RLS, diarrhea, tingling in my hands and feet and my heart palpitations were worse. They ran some blood work and it came back that I had low calcium in the blood...so they ran more blood work and found that I have very low magnesium. My doc was thrilled because apparently low magnesium causes all the symptoms I had been having, put me on supplements. We did some eliminations to figure out why I wasn't absorbing magnesium and decided it was because I had been taking prilosec for 2 years. Apparently PPI's can cause low magnesium in some people. My doctor had me quit taking prilosec, had me continue with the supplements and decided to send me to gastronoligist to figure out how bad my acid reflux is and how to control it with something other than a PPI. So I met with my new gastro doc this week and he wants to do EGD and take a biopsy of my small intestine to check for celiac. Does this sound familiar to anyone? Do these symptoms sound like celiac? I am feeling better with the tingling but I am still having the stomach pain and tenderness and diarrhea, also still not sleeping well. During the last two months I have broken my foot walking down stairs and gone to the dentist and found out I had 14 cavities (had only been a year since I had gone)!! I feel like I am falling apart but just have never in a million years thought I could have celiac. Thoughts??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. IMHO it sounds like you are in the right place. Don't go gluten free until you are done with celiac related testing. Once celiac testing is done then go strictly gluten free for at least a couple months no matter what the results. I bet your feeling a lot better after a bit gluten free but it can be up and down for a bit at first.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Your symptoms sure do fit. I hope you get the answers you need to get on the path to wellness.

noenergy Newbie
noenergy
Posted
  • Author

Thanks so much for your replies. I feel like I am learning so much from this site. Leaving a gluten free life seems so overwhelming to me, where do you start? I read somewhere that celiac can be triggered for some, I had my gallbladder out a little over a year ago and it seems my symptoms have gotten way worse since then. Do you think it's possible that could have triggered it?

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks so much for your replies. I feel like I am learning so much from this site. Leaving a gluten free life seems so overwhelming to me, where do you start? I read somewhere that celiac can be triggered for some, I had my gallbladder out a little over a year ago and it seems my symptoms have gotten way worse since then. Do you think it's possible that could have triggered it?

It's possible the surgery triggered it. It is also possible that you were celiac before the gallbladder came out and it contributed to your gallbladder issues.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,383
    • Most Online (within 30 mins)
      7,748
    haleyspurlock1
    Newest Member
    haleyspurlock1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      Oats gluten free?

      By Lori Lavell · Posted

      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
×
×
  • Create New...