Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have News

Mateto

Recommended Posts

Mateto Enthusiast
Mateto
Posted

Hello everyone,so of you know how I've been having problems getting a proper diagnosis. Today I finally got my blood results back, and they were negative for coeliac disease.

She will not send me for a biopsy, but she said I was gluten intolerant and sensitive. However, I know I have more symptoms than this, and I have diagnosed myself, I suppose you could say, with coeliac. She told me to stop eating gluten, which I've been gradually doing the past few days, and today is my first fully gluten free day! So here I am, excited that within a few months, I might actually feel better for once :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Well, I'm happy if you're happy :).

I dont remember, did you have vitamin deficiency panels run? That maybe the only thing to look at, if it wasn't already.

Im glad you're excited and I wish you much luck,

Mateto Enthusiast
Mateto
Posted
  • Author

Yes I did. I was told I'm anaemic....ANOTHER symptom of coeliac disease the doctor ignored. :P

pricklypear1971 Community Regular
pricklypear1971
Posted

Well, take some iron (I'm assuming you're talking about iron) and make them retest it in 6 months.

IrishHeart Veteran
IrishHeart
Posted

There are several forms of anemia--

B-12 deficiency, Folate deficiency, Iron deficiency.

What exactly did she say??

How much did she say to supplement with?

Mateto Enthusiast
Mateto
Posted
  • Author

My iron was HIGH on the last test....hemaglobin (or whatever) was low. Which doesn't make sense, I was re-tested for that only today, because she said the results were probably wrong. But yet I'm still anaemic.

Anyways I'm not too concerned, because I've been going gradually gluten free the past few todays and today completely. One symptom has stopped! I know it won't be for a few months until feeling completely better, but my only challenge is getting my family members to take this seriously.

I can NOT stress how important cross-contamination is. THEY JUST WON'T UNDERSTAND!

pricklypear1971 Community Regular
pricklypear1971
Posted

You need to get a copy of all your labs. Plus the retest.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mateto Enthusiast
Mateto
Posted
  • Author

You need to get a copy of all your labs. Plus the retest.

I think I'd have better luck trying to drown a fish :lol:

My Doctor wouldn't let me see them!

Because of our free healthcare under the MCP/NHS, Private practitioners are few and far between. My Doctor (I feel) is only in it for the money, but she told me that apparently she's "told me everything she can" <_<

She also said my hemaglobin will fix itself eventually. I really don't understand her, she gives me a million different answers. The main thing is: I'm on the road to feeling better :)

pricklypear1971 Community Regular
pricklypear1971
Posted

I think I'd have better luck trying to drown a fish :lol:

My Doctor wouldn't let me see them!

Because of our free healthcare under the MCP/NHS, Private practitioners are few and far between. My Doctor (I feel) is only in it for the money, but she told me that apparently she's "told me everything she can" <_<

She also said my hemaglobin will fix itself eventually. I really don't understand her, she gives me a million different answers. The main thing is: I'm on the road to feeling better :)

There must be a law that forces them to disclose.

Seriously.

Mateto Enthusiast
Mateto
Posted
  • Author

I think so!

She called me today because I had more bloodwork done. Out of an act of kindness, at least she told me my hemaglobin is gone back to normal and so is my iron.

I haven't been gluten-free for very long, but I was when I had these tests, so that might have something to do with it.

This doctor is only filling in for my doctor who is in Australia at the moment, so I won't pursure anything legal yet. My normal doctor is excellent, she knows what she is doing, so I know if I ask her for my records she'll probably give me a copy :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,340
    • Most Online (within 30 mins)
      7,748
    graemesparker
    Newest Member
    graemesparker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • James47
      I’m terrified it’s too late for me😭

      By James47 · Posted

      Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x
    • James47
      Long term recovery

      By James47 · Posted

      Hi everyone I'm James, I hope you are all feeling well??. Accidentally had gluten at weekend and I've had severe diarrhea since sat night. My question is ,the longer someone like myself has been following a strict gluten-free diet will the exposure to gluten be lot more extreme as body now has been free of it well over a year ? Any information be much appreciated and any tips on how to stop the constant diarrhoea I have currently also be appreciated guys x
    • Cathijean90
      I’m terrified it’s too late for me😭

      By Cathijean90 · Posted

      Thank you so much Scott 🫶🏻
    • Wheatwacked
      SkinSafe

      By Wheatwacked · Posted

      I use Listerine.  Rinse first to soften the tarter, then brush with Oral B electric toothbrush super sonic.  The $15 ones at the supermarket.  At 73 I still have all my teeth.  While a blood test can measure iodine levels, it's not the most accurate method for assessing iodine status, and urinary iodine excretion is considered a better indicator.  Have any of your dermatologists ever done a biopsy for dermatitis herpetiformis?  I may have missed it.  Note the similarity of Casal's necklace to one of your symptoms. Pellagra rash is a characteristic skin manifestation of niacin (vitamin B3) deficiency. It typically presents as:  Erythema: Red, sunburned-like areas of skin, often on the face, neck, arms, and legs.  Scaliness: Dry, flaky skin that may become thickened and crusty.  Hyperpigmentation: Darkened patches of skin, particularly in sun-exposed areas.  Casal's necklace: A dark, pigmented band around the neck.  I am currently taking these} Vitamin D 10,000 IU (250 mcg) DHEA 100 mg 500 mcg Iodine  10 drops of Liquid Iodine B1 Thiamin 250 mg  B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg 4 times a day for hyperlipidemia. B5 Pantothenice Acid 500 mg Vitamin C 500 mg     Selenium 200 mcg  Several times a week
    • Itsabit
      SkinSafe

      By Itsabit · Posted

      I will. Thanks. I did just have mg B12 drawn. I should also state that I am already taking a Vit D supplement, as I live in the US in New England sand just about everyone who lives here is deficient, esp during our winters with less exposure to natural sunlight. I was also taking a chewable bariatric vitamin as well because of my food issues related to my cancer treatment (which was many years ago, but there are long term effects.) I just stopped it because I was unable to get any gluten information about it. And it did contain iodine. Is there even a vitamin that doesn’t? I don’t know, but I will check. I also take Calcium and Magnesium in the form of “Rolaids” for leg cramps/spasms, with good effects. Thanks. 
×
×
  • Create New...