Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fructose Malabsorption

jessthirtytwo

Recommended Posts

jessthirtytwo Apprentice
jessthirtytwo
Posted

Hey everyone! So, I have been gluten free for 8 months, and for 6 and a half of those months I have felt great. The last month and a half has been full of gas and bloating constantly. I have been keeping a food diary and I think I am having a problem with fructose (I already do not eat dairy). I am just feeling so overwhelmed with this new intolerance, meaning more food I cannot eat.

How do I begin on a fructose reduced/free diet? Also, is it possible that these lactose and fructose intolerances will go away if I go off the offending foods for a while?

Thanks so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Yes, people go on low/no fructose diets.

Have you tried digestive enzymes with meals? It maybe a stage of healing you're going through (I went through a gassy/bloaty phase).

rosetapper23 Explorer
rosetapper23
Posted

A great diet is outlined in "Primal Body, Primal Mind," a book by Nora Gedgaudes. No grains, no dairy, and no fruit (or very little). It's easy to follow, and I feel great eating the way early man used to

ukdan Rookie
ukdan
Posted

I've had similar problems with sugars and have found following a low FODMAP diet helps, I haven't got any links to hand but there is plenty of stuff online if you search for it.

I've found it is still a bit trial and error as not all foods listed as 'safe' are suitable for me personally but it has helped a lot once you figure out the main culprits of the bloating.

AVR1962 Collaborator
AVR1962
Posted

It is all a matter of trial and error sometimes to figure these things out. I personally was having trouble with certain veggies like cabbage, cauliflower causing gassy bloated issues. Then my sugars started bothering me but what I could nto understand is it seemed more than just fruit and refined sugar. I finally took all grains out of my diet as well as fruits and refined sugar and I am feeling much better. I think the other grains were giving me issues that I was not associating with corn and rice. I also do not eat potatoes. Keep a food diary and experiment to find what works.

jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

thanks for the tips everyone! and I have been taking digestive enzymes with ever meal; they do seem to help somewhat, until dinner rolls around and I get huge again. I am in my last week of the semester at college, so spare time is a rare thing. but I think once I am done with school for the summer I will have more time to figure out exactly what foods are causing my problems, and I may try the Paleo diet, I have heard interesting things about it : )

thanks again!

  • 3 weeks later...
Carebear Apprentice
Carebear
Posted

I think berries and really ripe bananas are supposed to be pretty good. I found your post looking for my own information on fructose intolerance. How is it that we're randomly having this problem after 6 months? I thought these sorts of things would be on the way out...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

I think berries and really ripe bananas are supposed to be pretty good. I found your post looking for my own information on fructose intolerance. How is it that we're randomly having this problem after 6 months? I thought these sorts of things would be on the way out...

i know, i have no idea why after we have been feeling great for so long that now it is starting all over again. i went to my doctor yesterday about my bloating symptoms, and he had no idea. ughh, guess we have to do it on our own. but yes, i have found berries and bananas to be ok. also i think citrus fruits are ok too. and spinach, i eat a lot of that haha.

good luck with everything, here's to hoping it will go away in another 6 months!

bartfull Rising Star
bartfull
Posted

I've been on the diet for almost a year now, and I felt so incredibly great at first it was a real shock when things went back downhill. But FINALLY I think I've turned the corner. I think I read here that it takes an average of 18 months to figure it all out. So be patient, keep a food diary, and know that it WILL get better.

In the meantime, you can always come here for advice and support. :)

jeanzdyn Apprentice
jeanzdyn
Posted

the best advice is to keep a food diary. that is the easiest way to figure out what foods may be causing your symptoms. note your symptoms in the food diary as well to help keep track of everything.

I have used a food diary in the past to help figure out symptoms and reactions.

Best thing I ever did for figuring out my symptoms.

  • 1 month later...
Carebear Apprentice
Carebear
Posted

I have to chime in - 6 months gluten free, and I'm also so bloated all of a sudden!! I figured out it's fructose, but I can't seem to handle any carbs either. Paleo works great, but it's difficult to maintain while traveling and on backpacking trips. How long did this annoying bloaty phase last for you more healed folks? Nice to know I'm not alone, but I'm sorry you guys are having these problems too.

jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

I have to chime in - 6 months gluten free, and I'm also so bloated all of a sudden!! I figured out it's fructose, but I can't seem to handle any carbs either. Paleo works great, but it's difficult to maintain while traveling and on backpacking trips. How long did this annoying bloaty phase last for you more healed folks? Nice to know I'm not alone, but I'm sorry you guys are having these problems too.

What I have done is just cut a lot of sugar out of my diet, especially refined sugar. That has seemed to help my bloating so much! Also, stress was a huge factor. Unfortunately, the digestive tract is connected to the nervous system and when we get stressed our intestines and stomach take a hit. I dont think there is one finite answer to our problems, we just have to experiment and see what works...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      Recently launched Daura Non-Alcoholic Named One of the Best in the World by Forbes

    2. Iam
      - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Yes. I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy. Numerous dental visits and several professionally made bite plates did very little to help with symptoms
    3. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    4. Scott Adams
      0

      New Research Reveals Why the Gut May Stay Sensitive Even After a Gluten-Free Diet

    5. bobadigilatis
      - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm. Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748
    Hcon74
    Newest Member
    Hcon74
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Feel like I’m starting over

      By trents · Posted

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By bobadigilatis · Posted

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.