Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fructose Malabsorption

jessthirtytwo

Recommended Posts

jessthirtytwo Apprentice
jessthirtytwo
Posted

Hey everyone! So, I have been gluten free for 8 months, and for 6 and a half of those months I have felt great. The last month and a half has been full of gas and bloating constantly. I have been keeping a food diary and I think I am having a problem with fructose (I already do not eat dairy). I am just feeling so overwhelmed with this new intolerance, meaning more food I cannot eat.

How do I begin on a fructose reduced/free diet? Also, is it possible that these lactose and fructose intolerances will go away if I go off the offending foods for a while?

Thanks so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Yes, people go on low/no fructose diets.

Have you tried digestive enzymes with meals? It maybe a stage of healing you're going through (I went through a gassy/bloaty phase).

rosetapper23 Explorer
rosetapper23
Posted

A great diet is outlined in "Primal Body, Primal Mind," a book by Nora Gedgaudes. No grains, no dairy, and no fruit (or very little). It's easy to follow, and I feel great eating the way early man used to

ukdan Rookie
ukdan
Posted

I've had similar problems with sugars and have found following a low FODMAP diet helps, I haven't got any links to hand but there is plenty of stuff online if you search for it.

I've found it is still a bit trial and error as not all foods listed as 'safe' are suitable for me personally but it has helped a lot once you figure out the main culprits of the bloating.

AVR1962 Collaborator
AVR1962
Posted

It is all a matter of trial and error sometimes to figure these things out. I personally was having trouble with certain veggies like cabbage, cauliflower causing gassy bloated issues. Then my sugars started bothering me but what I could nto understand is it seemed more than just fruit and refined sugar. I finally took all grains out of my diet as well as fruits and refined sugar and I am feeling much better. I think the other grains were giving me issues that I was not associating with corn and rice. I also do not eat potatoes. Keep a food diary and experiment to find what works.

jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

thanks for the tips everyone! and I have been taking digestive enzymes with ever meal; they do seem to help somewhat, until dinner rolls around and I get huge again. I am in my last week of the semester at college, so spare time is a rare thing. but I think once I am done with school for the summer I will have more time to figure out exactly what foods are causing my problems, and I may try the Paleo diet, I have heard interesting things about it : )

thanks again!

  • 3 weeks later...
Carebear Apprentice
Carebear
Posted

I think berries and really ripe bananas are supposed to be pretty good. I found your post looking for my own information on fructose intolerance. How is it that we're randomly having this problem after 6 months? I thought these sorts of things would be on the way out...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

I think berries and really ripe bananas are supposed to be pretty good. I found your post looking for my own information on fructose intolerance. How is it that we're randomly having this problem after 6 months? I thought these sorts of things would be on the way out...

i know, i have no idea why after we have been feeling great for so long that now it is starting all over again. i went to my doctor yesterday about my bloating symptoms, and he had no idea. ughh, guess we have to do it on our own. but yes, i have found berries and bananas to be ok. also i think citrus fruits are ok too. and spinach, i eat a lot of that haha.

good luck with everything, here's to hoping it will go away in another 6 months!

bartfull Rising Star
bartfull
Posted

I've been on the diet for almost a year now, and I felt so incredibly great at first it was a real shock when things went back downhill. But FINALLY I think I've turned the corner. I think I read here that it takes an average of 18 months to figure it all out. So be patient, keep a food diary, and know that it WILL get better.

In the meantime, you can always come here for advice and support. :)

jeanzdyn Apprentice
jeanzdyn
Posted

the best advice is to keep a food diary. that is the easiest way to figure out what foods may be causing your symptoms. note your symptoms in the food diary as well to help keep track of everything.

I have used a food diary in the past to help figure out symptoms and reactions.

Best thing I ever did for figuring out my symptoms.

  • 1 month later...
Carebear Apprentice
Carebear
Posted

I have to chime in - 6 months gluten free, and I'm also so bloated all of a sudden!! I figured out it's fructose, but I can't seem to handle any carbs either. Paleo works great, but it's difficult to maintain while traveling and on backpacking trips. How long did this annoying bloaty phase last for you more healed folks? Nice to know I'm not alone, but I'm sorry you guys are having these problems too.

jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

I have to chime in - 6 months gluten free, and I'm also so bloated all of a sudden!! I figured out it's fructose, but I can't seem to handle any carbs either. Paleo works great, but it's difficult to maintain while traveling and on backpacking trips. How long did this annoying bloaty phase last for you more healed folks? Nice to know I'm not alone, but I'm sorry you guys are having these problems too.

What I have done is just cut a lot of sugar out of my diet, especially refined sugar. That has seemed to help my bloating so much! Also, stress was a huge factor. Unfortunately, the digestive tract is connected to the nervous system and when we get stressed our intestines and stomach take a hit. I dont think there is one finite answer to our problems, we just have to experiment and see what works...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 1...
    2. knitty kitty
      - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      @Trish G, I like dates, they have lots if fiber as well. But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small...
    3. knitty kitty
      - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines. Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured...
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement. Thanks again
    5. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      If you were wondering why milk protein bothers you with Celiac Disease. Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748
    rolland mcclay
    Newest Member
    rolland mcclay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      Fiber Supplement

      By knitty kitty · Posted

      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.