Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fructose Malabsorption

jessthirtytwo

Recommended Posts

jessthirtytwo Apprentice
jessthirtytwo
Posted

Hey everyone! So, I have been gluten free for 8 months, and for 6 and a half of those months I have felt great. The last month and a half has been full of gas and bloating constantly. I have been keeping a food diary and I think I am having a problem with fructose (I already do not eat dairy). I am just feeling so overwhelmed with this new intolerance, meaning more food I cannot eat.

How do I begin on a fructose reduced/free diet? Also, is it possible that these lactose and fructose intolerances will go away if I go off the offending foods for a while?

Thanks so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Yes, people go on low/no fructose diets.

Have you tried digestive enzymes with meals? It maybe a stage of healing you're going through (I went through a gassy/bloaty phase).

rosetapper23 Explorer
rosetapper23
Posted

A great diet is outlined in "Primal Body, Primal Mind," a book by Nora Gedgaudes. No grains, no dairy, and no fruit (or very little). It's easy to follow, and I feel great eating the way early man used to

ukdan Rookie
ukdan
Posted

I've had similar problems with sugars and have found following a low FODMAP diet helps, I haven't got any links to hand but there is plenty of stuff online if you search for it.

I've found it is still a bit trial and error as not all foods listed as 'safe' are suitable for me personally but it has helped a lot once you figure out the main culprits of the bloating.

AVR1962 Collaborator
AVR1962
Posted

It is all a matter of trial and error sometimes to figure these things out. I personally was having trouble with certain veggies like cabbage, cauliflower causing gassy bloated issues. Then my sugars started bothering me but what I could nto understand is it seemed more than just fruit and refined sugar. I finally took all grains out of my diet as well as fruits and refined sugar and I am feeling much better. I think the other grains were giving me issues that I was not associating with corn and rice. I also do not eat potatoes. Keep a food diary and experiment to find what works.

jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

thanks for the tips everyone! and I have been taking digestive enzymes with ever meal; they do seem to help somewhat, until dinner rolls around and I get huge again. I am in my last week of the semester at college, so spare time is a rare thing. but I think once I am done with school for the summer I will have more time to figure out exactly what foods are causing my problems, and I may try the Paleo diet, I have heard interesting things about it : )

thanks again!

  • 3 weeks later...
Carebear Apprentice
Carebear
Posted

I think berries and really ripe bananas are supposed to be pretty good. I found your post looking for my own information on fructose intolerance. How is it that we're randomly having this problem after 6 months? I thought these sorts of things would be on the way out...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

I think berries and really ripe bananas are supposed to be pretty good. I found your post looking for my own information on fructose intolerance. How is it that we're randomly having this problem after 6 months? I thought these sorts of things would be on the way out...

i know, i have no idea why after we have been feeling great for so long that now it is starting all over again. i went to my doctor yesterday about my bloating symptoms, and he had no idea. ughh, guess we have to do it on our own. but yes, i have found berries and bananas to be ok. also i think citrus fruits are ok too. and spinach, i eat a lot of that haha.

good luck with everything, here's to hoping it will go away in another 6 months!

bartfull Rising Star
bartfull
Posted

I've been on the diet for almost a year now, and I felt so incredibly great at first it was a real shock when things went back downhill. But FINALLY I think I've turned the corner. I think I read here that it takes an average of 18 months to figure it all out. So be patient, keep a food diary, and know that it WILL get better.

In the meantime, you can always come here for advice and support. :)

jeanzdyn Apprentice
jeanzdyn
Posted

the best advice is to keep a food diary. that is the easiest way to figure out what foods may be causing your symptoms. note your symptoms in the food diary as well to help keep track of everything.

I have used a food diary in the past to help figure out symptoms and reactions.

Best thing I ever did for figuring out my symptoms.

  • 1 month later...
Carebear Apprentice
Carebear
Posted

I have to chime in - 6 months gluten free, and I'm also so bloated all of a sudden!! I figured out it's fructose, but I can't seem to handle any carbs either. Paleo works great, but it's difficult to maintain while traveling and on backpacking trips. How long did this annoying bloaty phase last for you more healed folks? Nice to know I'm not alone, but I'm sorry you guys are having these problems too.

jessthirtytwo Apprentice
jessthirtytwo
Posted
  • Author

I have to chime in - 6 months gluten free, and I'm also so bloated all of a sudden!! I figured out it's fructose, but I can't seem to handle any carbs either. Paleo works great, but it's difficult to maintain while traveling and on backpacking trips. How long did this annoying bloaty phase last for you more healed folks? Nice to know I'm not alone, but I'm sorry you guys are having these problems too.

What I have done is just cut a lot of sugar out of my diet, especially refined sugar. That has seemed to help my bloating so much! Also, stress was a huge factor. Unfortunately, the digestive tract is connected to the nervous system and when we get stressed our intestines and stomach take a hit. I dont think there is one finite answer to our problems, we just have to experiment and see what works...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    2. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      @Jmartes71, I understand your frustration and anger. I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone. My doctors did not recognize nutritional deficiencies. Doctors are trained in medical learning institutions that are funded by pharmaceutical companies...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in...
    5. marion wheaton
      - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748
    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.