Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems Tolerating Lactaid Tablet?


mamaupupup

Recommended Posts

mamaupupup Contributor

Hi all,

Quick question for the lactose-free crowd...has anyone had problems tolerating the Lactaid tablet itself? Our twin who is Celiac and has an incredibly low lactase score seems to be having more stomach pains taking the Lactaid tablet and eating dairy. In fact, she has twice thrown up after the combo of Lactaid tablet and ice cream.

Our plan is to go with lactose free milk/ice creams, etc for now. We are considering taking her off dairy for some time, although we aren't sure what the boundaries are in terms of how to define dairy...etc.

Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

You are talking a child so this might not apply. I could not eat dairy and I did try to lactose enzymes. I found the one that you take prior to eating dairy simply did not work for me. The one that you took daily did as long as I took 2 a day. Is it possible to

hat it is not the lactose supplement that is making her sick but that it is not enough and it is causing hr to be sick from dairy?

ravenwoodglass Mentor

It is possible that she is reacting to casien and if that is the case lactaid tablets would not help. You may want to drop all dairy for a bit, watch out for casien on labels of 'dairy free' items, and see if that helps.

GFinDC Veteran

Make sure the lactaid tablets are gluten-free. Not all of them are.

tom Contributor

I don't think she's throwing up from the tablet.

If I were her I'd want to try true dairy-free for a couple weeks at a minimum. (Somehow casein can be in things called non-dairy :wacko: like powdered coffee non-dairy creamer)

Also, it could make sense if an "incredibly low lactase score" correlates to more villi damage indicating a more advanced case which could have a higher probability of celiac-related casein issues. Just spitballin' here.

I don't bet on much, but I'd bet she wouldn't've thrown up if she had the tablet w/out the ice cream.

mamaupupup Contributor

Thanks Tom!

Yes, I could do the test "Here's a tablet, let's see how you do!"

And, yes, we are about to go dairy free. Newbie question: is there a difference between dairy free and casein free?

And, here are her disaccharidase scores as background:

Lactase 2.2 Abnormal <15

Sucrase 13.4 Abnormal <25

Maltase 56.8 Abnormal <100

Palatinase 2.2 Abnormal <5

Thanks for the help and input!

BTW, this is a kiddo who has vomited a total of 5x in her entire life (she's 5.5) so I'm especially eager to figure it out!

mamaupupup Contributor

I just dug up my daughter's allergy testing: her Casein IgE came back negative. Does that mean she is not casein intolerant?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ninja Contributor

IgE testing does not test for intolerances. The IgE antibodies are involved in "true" allergies (histamine response(s)

mamaupupup Contributor

Thanks Laura--that's a BIG help!

I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy!

Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for that one!

runnergirl88 Newbie

I know a few people who have become immune to the lactaid pill, but have found great constant relief from something called Digestive Advantage Lactose Defense Formula. I am lactose intolerant as well and found these work nicely and are much more convenient.My friend suffers from sever lactose intolerant and he swears by it!

Hope this helps! I attached a link to show you what it looks like:

Open Original Shared Link

Stay strong! Feel better :D

tom Contributor

I know a few people who have become immune to the lactaid pill, but have found great constant relief from something called Digestive Advantage Lactose Defense Formula.

...

Open Original Shared Link

Curious about this & the phrase "become immune to the lactaid pill", I clicked the link. The pill is just lactase & a probiotic.

Most ppl w/ digestive issues should think about taking probiotics - or already be taking them, imho - whether lactose intolerant or not.

P.S. Thought it strange that the label http://www.digestiveadvantage.com/images/suppfacts-da-ldf.gif says "Contains Soy", though no ingredient looks suspect to this 5-yrs-soyfree celiac. Are they making maltodextrin from soy now?

Ninja Contributor

Thanks Laura--that's a BIG help!

I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy!

Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for that one!

No problem!

Well that's good that she didn't have a negative reaction

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,911
    • Most Online (within 30 mins)
      7,748

    Deborah anne
    Newest Member
    Deborah anne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jack Common
      My old results (almost a year ago) are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   I didn't have any symptoms now except tiredness but I think it's just work. I'm not IgA deficient as you can see so I don't need to do this Deamidated gliadin peptide IgG test. But I do because it's sometimes not in the normal range. What do you think this time? I think I don't have celiac disease. But this test... 
    • Wheatwacked
      @plumbago, I found a good PDF on cholesterol:  Unlocking the mysteries of VLDL: exploring its production, intracellular trafficking, and metabolism as therapeutic targets I just started it, but it may have answers for us, with whacky cholesterol.  The pharmaceuticals don't seem to be interested in anything but statins.   "The nicotine in tobacco causes a decrease in the HDL cholesterol level. " Maybe you should start smoking? 🤪 I have high LDL and low HDL.  It is genetic mutations in the LDLR, APOB, PCSK9, or LDLRAP1 genes. My whole family is on statins for Familial Hyperliperdemia except me.  December I had ultrasound and cat scan for Carotid Artery blockage and both sides are above 85% blockage.  I started on Atorvastatin and that made me weaker than ever, even with CoQ10.  I asked for and got prescription for 2000 mg/day Nicotinic Acid B3 and in the 3 weeks my numbers changed. I am feeling realy good lately.  Stronger and more flexible.  Sleeping better.  Getting roto router (TCar) as soon as I get clearance from a cardiologist.  I expect that by my next blood panels in April to be even better. I am beginning to believe that like vitamin D where the RDA only accounts for preventing Rickets, the RDA for B3 is way underestimated.   From Oct 22 to Jan 17: A1c from 13.5 to 10.2 eGFR from 55 to 79 Triglyeride from 458 to 362 Total cholesterol from 245 to 264 HDL from 27 to 44 VLDL from 84 to 68 LDL from 134 to 154
    • plumbago
      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
    • trents
      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    • knitty kitty
      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
×
×
  • Create New...