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Need A Little Advice


RB21

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RB21 Newbie

About a month ago I went in for an endoscopy. My throat was all swollen and red and my doctor told me my duodenum looks exactly like someone's with celiac. They did multiple biopsies of my throat and duodenum. Went in for the results and the doctor told me I'm allergic to some kind of food and to take prilosec twice a day and come back in June for another endoscopy. I've had symptoms for 6 years and I was told I had IBS. So I made an appointment to see an allgerisit in May even though the doctor told me to wait until the second endoscopy. I had a bad reaction to some food on Monday and I decided to go gluten free. Is this going to mess up my second endoscopy? Should I stay on a normal diet and wait or stick with the gluten free? Any suggestions would be helpful.


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Did the doctor actually diagnose you with celiac? Was his opinion about your intestine based on the biopsy results or just what he could see during the procedure? I'm mostly confused. Why would he prescribe prilosec for an allergy when he doesn't even know what that allergy is? To answer one question, yes, going gluten free before a biopsy will skew the results and could lead to a false negative. I'm in no position to give advice on what you should do, but if possible can you get in to see the doctor again sooner to talk things over? I also don't understand why he would want to prevent you from seeing an allergist. What difference does it make to him whether or not you determine what is causing this allergic reaction? If your throat was red and swollen that sort of sounds like it's approaching dangerous and waiting another month and a half just sounds hair-brained to me. I would certainly recommend keeping a journal listing what you eat and what symptoms you suffer from. You may be able to use that to pinpoint what is causing your problems. Other than that you may be recommended an elimination diet. Anyway, not really any advice I can offer on what to do, but hopefully you'll get some answers and start feeling better soon.

pricklypear1971 Community Regular

Get the lab report and see ifctgey biopsied you or just looked.

Did they run a Celiac blood panel?

If you go gluten-free now you can't undergo Celisc testing. Let's figure out if the testing has been done yet (if you can stand staying on gluten).

RB21 Newbie

Thanks for the advice. The doctor went off what it looked liked. They did biopsy it but I don't know if they ran a celiac test or not. He didn't say anything about it in the visit to go over what they found in the biopsy. Just that what I have is an allergic reaction to something I'm eating. No blood work was done. The endoscopy was ordered for my gallbladder problems. I'm starting to think the two are connected. The food journal sounds like a great idea, I'll do that and get a Celiac blood panel done. Thanks again so much for your help and advice.

pricklypear1971 Community Regular

Keep eating gluten for your Celiac panel!!! And make sure they give you all the tests - page 1 and 2. Insist on it. Open Original Shared Link

And I'd still get the lab report.

Yes, there's a connection between gallbladder disease and Celiac.

Your doctor is an idiot, btw.

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    • trents
    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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