Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It Was Frightening Last Night...


lorka150

Recommended Posts

lorka150 Collaborator

<_<

So last night for dinner, I made something new for the first time since being gluten free (for about one month). I bought one of those cedar planks and grilled salmon on the bbq. Everything I had on the salmon and side dishes were similar to what I always eat. The only thing new was the plank.

Well, maybe the plank was somehow contaminated.

Three minutes into my meal, I got that familiar brain fog. I couldn't see, got really dizzy, and stomach cramps. Ten minutes later, on the toilet. Stomach pain and dizzyness lasted for the rest of the night.

Then the insomnia hit. At about 3am, there was a party in my stomach - it was so loud it was ALMOST funny. But irritating. You see, I wasn't invited to this party, I was an irritated, tired outsider who wanted to get to bed!

5am, I lay in bed. My chest started to hurt. I started to drift off to sleep and my breathing got really shallow. I had to concentrate to breathe. I tried to take my pulse, but I couldn't concentrate to get through a minute. When I finally did, my heart rate was 38.

About an hour later, I was in intense pain. I could hardly breathe or move. I wanted to get someone, but it just hurt too much. The pain ran from my chest and my whole stomach.

I don't remember how long this lasted. Somewhere at around 6am I drifted off to sleep til around 7.

I'm awake now (was here and there from about 7-8), but man... I'm glad THAT is over. Has anyone ever had anything like that? The longer you are gluten free, does the 'glutening' get worse?

Anyone else think it was the plank? (I don't know what else it could have been?)

Also, at around 8:30 I ran back to the bathroom with a huge poop, and right now, I feel like if I open my mouth (even to say good morning), I would throw up. The only thing I can fathom consuming is a milkshake, which I think I am just craving for some reason becasue I don't eat dairy and haven't had one for about 5 years :lol:

Any ideas?

I'm glad it's over.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Sorry you had to go through that :(

Has anyone ever had anything like that? The longer you are gluten free, does the 'glutening' get worse?
I have had gluten reactions similar to what you explained. I also get dizzy, brain fog, insomnia (sometimes), nausea, diarrhea, mild-severe stomach pain (sometimes to the point where I cannot move because it hurts so bad), and I feel like I have the flu. I have never had any real problems with breathing but I can get intense heart palpitations. You may actually have a wheat allergy in addition to celiac, which may cause the breathing problems.

I think gluten reations do get worse after being gluten free, at least for me they do. I actually got a few reactions that I didn't have before going gluten-free. Like chicken pox-like bumps on the skin, heart palpitations, and intense stomach pain.

Anyone else think it was the plank? (I don't know what else it could have been?)
If the plank was just cedar, than it is unlikely. But really anything you ate or anything that touched your food could have been contaminated. I have been getting mysterious gluten contaminations off and on for about two months now. I have narrowed down two possibles sources; contaminated gluten-free maple leaf hot dogs, and possible cross contamination at a place that cooks gluten-free.
tarnalberry Community Regular

Yep, that reaction sounds like mine, though more severe. Brain fog, noisy stomach, pain in the abdomen are all glutening signs for me. I hope it passes quickly for you.

Rachel--24 Collaborator

I feel bad after I eat salmon that has color added. Its like poison to me.

Guest nini

oh yes that sounds exactly like my worst gluten reactions... terribly frightening.

Was the salmon fresh or frozen? Some brands of frozen salmon or fish in general, will dust them with flour before wrapping them...

doubt seriously it was the plank... had the grill been used for gluten stuff before and maybe not cleaned thoroughly enough?

I'm so sorry you feel bad...hope you feel better soon.

JoeB Apprentice

This is pretty timely from my perspective. Prior to being diagnosed in April, I used to get sick every time we cooked on the grill. Since being diagnosed, we've been cooking my food on a separate teflon tray on the grill. That stopped me from getting sick, but it was getting complicated trying to cook food containing gluten at the same time as gluten-free.

Yesterday, I put a wire brush on my electric drill and cleaned every bit of gunk off the grates. After that, I used brillo. I declared the grill "gluten-free" and so far after two meals, I haven't had a problem.

Don't relay on just scraping the grill and burning off the residue. It doesn't work.

mandigirl1 Enthusiast
I feel bad after I eat salmon that has color added. Its like poison to me.

<{POST_SNAPBACK}>

How so??????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

There is something toxic about farm-raised salmon with color added. I haven't done any research on it but I work in a grocery store and I know by law they have to put those little "color added" stickers on the package now. I kept buying salmon and everytime I ate it I felt worse...I always felt bad anyway so it took awhile to figure out the salmon wasnt helping. Somebody recently mentioned to me about the "dangers" of eating farm-raised salmon. That was enough for me....I haven't eaten it since. Maybe someone else is more up to date on the subject.

ianm Apprentice

Food colorings can produce reactions in some people. I used to have a neighbor that would get a really bad rash if it had a certain type of red food dye in it. I don't remember what it was exactly but it was used mostly in candy. You are probably reacting to the dye put into farm raised fish.

Guest BERNESES

Yikes! That sounds like my night last night. Ugh! I don't know about the salmon or the plank, although thyose are certainly possibilities, but when I grill, I grill ALL my stuff on tinfoil. It's not the same but it has kept me safe so far.

Carriefaith Enthusiast
but when I grill, I grill ALL my stuff on tinfoil.
same here, until I get my very own BBQ ;)
pixiegirl Enthusiast

In my opinion there is something toxic about all farm raised salmon, just just the coloring. I only eat wild salmon, yes its hugely expensive, but I eat way smaller amounts.

Susan

nettiebeads Apprentice
Food colorings can produce reactions in some people. I used to have a neighbor that would get a really bad rash if it had a certain type of red food dye in it. I don't remember what it was exactly but it was used mostly in candy. You are probably reacting to the dye put into farm raised fish.

<{POST_SNAPBACK}>

When I was a kid my mom used to buy IGA hot dogs which I loved, but I would get severe migraines after eating them. I figured out it was the red dye that was used.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.