Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It Was Frightening Last Night...


lorka150

Recommended Posts

lorka150 Collaborator

<_<

So last night for dinner, I made something new for the first time since being gluten free (for about one month). I bought one of those cedar planks and grilled salmon on the bbq. Everything I had on the salmon and side dishes were similar to what I always eat. The only thing new was the plank.

Well, maybe the plank was somehow contaminated.

Three minutes into my meal, I got that familiar brain fog. I couldn't see, got really dizzy, and stomach cramps. Ten minutes later, on the toilet. Stomach pain and dizzyness lasted for the rest of the night.

Then the insomnia hit. At about 3am, there was a party in my stomach - it was so loud it was ALMOST funny. But irritating. You see, I wasn't invited to this party, I was an irritated, tired outsider who wanted to get to bed!

5am, I lay in bed. My chest started to hurt. I started to drift off to sleep and my breathing got really shallow. I had to concentrate to breathe. I tried to take my pulse, but I couldn't concentrate to get through a minute. When I finally did, my heart rate was 38.

About an hour later, I was in intense pain. I could hardly breathe or move. I wanted to get someone, but it just hurt too much. The pain ran from my chest and my whole stomach.

I don't remember how long this lasted. Somewhere at around 6am I drifted off to sleep til around 7.

I'm awake now (was here and there from about 7-8), but man... I'm glad THAT is over. Has anyone ever had anything like that? The longer you are gluten free, does the 'glutening' get worse?

Anyone else think it was the plank? (I don't know what else it could have been?)

Also, at around 8:30 I ran back to the bathroom with a huge poop, and right now, I feel like if I open my mouth (even to say good morning), I would throw up. The only thing I can fathom consuming is a milkshake, which I think I am just craving for some reason becasue I don't eat dairy and haven't had one for about 5 years :lol:

Any ideas?

I'm glad it's over.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Sorry you had to go through that :(

Has anyone ever had anything like that? The longer you are gluten free, does the 'glutening' get worse?
I have had gluten reactions similar to what you explained. I also get dizzy, brain fog, insomnia (sometimes), nausea, diarrhea, mild-severe stomach pain (sometimes to the point where I cannot move because it hurts so bad), and I feel like I have the flu. I have never had any real problems with breathing but I can get intense heart palpitations. You may actually have a wheat allergy in addition to celiac, which may cause the breathing problems.

I think gluten reations do get worse after being gluten free, at least for me they do. I actually got a few reactions that I didn't have before going gluten-free. Like chicken pox-like bumps on the skin, heart palpitations, and intense stomach pain.

Anyone else think it was the plank? (I don't know what else it could have been?)
If the plank was just cedar, than it is unlikely. But really anything you ate or anything that touched your food could have been contaminated. I have been getting mysterious gluten contaminations off and on for about two months now. I have narrowed down two possibles sources; contaminated gluten-free maple leaf hot dogs, and possible cross contamination at a place that cooks gluten-free.
tarnalberry Community Regular

Yep, that reaction sounds like mine, though more severe. Brain fog, noisy stomach, pain in the abdomen are all glutening signs for me. I hope it passes quickly for you.

Rachel--24 Collaborator

I feel bad after I eat salmon that has color added. Its like poison to me.

Guest nini

oh yes that sounds exactly like my worst gluten reactions... terribly frightening.

Was the salmon fresh or frozen? Some brands of frozen salmon or fish in general, will dust them with flour before wrapping them...

doubt seriously it was the plank... had the grill been used for gluten stuff before and maybe not cleaned thoroughly enough?

I'm so sorry you feel bad...hope you feel better soon.

JoeB Apprentice

This is pretty timely from my perspective. Prior to being diagnosed in April, I used to get sick every time we cooked on the grill. Since being diagnosed, we've been cooking my food on a separate teflon tray on the grill. That stopped me from getting sick, but it was getting complicated trying to cook food containing gluten at the same time as gluten-free.

Yesterday, I put a wire brush on my electric drill and cleaned every bit of gunk off the grates. After that, I used brillo. I declared the grill "gluten-free" and so far after two meals, I haven't had a problem.

Don't relay on just scraping the grill and burning off the residue. It doesn't work.

mandigirl1 Enthusiast
I feel bad after I eat salmon that has color added. Its like poison to me.

<{POST_SNAPBACK}>

How so??????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

There is something toxic about farm-raised salmon with color added. I haven't done any research on it but I work in a grocery store and I know by law they have to put those little "color added" stickers on the package now. I kept buying salmon and everytime I ate it I felt worse...I always felt bad anyway so it took awhile to figure out the salmon wasnt helping. Somebody recently mentioned to me about the "dangers" of eating farm-raised salmon. That was enough for me....I haven't eaten it since. Maybe someone else is more up to date on the subject.

ianm Apprentice

Food colorings can produce reactions in some people. I used to have a neighbor that would get a really bad rash if it had a certain type of red food dye in it. I don't remember what it was exactly but it was used mostly in candy. You are probably reacting to the dye put into farm raised fish.

Guest BERNESES

Yikes! That sounds like my night last night. Ugh! I don't know about the salmon or the plank, although thyose are certainly possibilities, but when I grill, I grill ALL my stuff on tinfoil. It's not the same but it has kept me safe so far.

Carriefaith Enthusiast
but when I grill, I grill ALL my stuff on tinfoil.
same here, until I get my very own BBQ ;)
pixiegirl Enthusiast

In my opinion there is something toxic about all farm raised salmon, just just the coloring. I only eat wild salmon, yes its hugely expensive, but I eat way smaller amounts.

Susan

nettiebeads Apprentice
Food colorings can produce reactions in some people. I used to have a neighbor that would get a really bad rash if it had a certain type of red food dye in it. I don't remember what it was exactly but it was used mostly in candy. You are probably reacting to the dye put into farm raised fish.

<{POST_SNAPBACK}>

When I was a kid my mom used to buy IGA hot dogs which I loved, but I would get severe migraines after eating them. I figured out it was the red dye that was used.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,653
    • Most Online (within 30 mins)
      7,748

    daweesa
    Newest Member
    daweesa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.