Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Struggling With This

habbukuk

Recommended Posts

habbukuk Newbie
habbukuk
Posted

Hi All

Recently found out that I most likely have Celiac disease, and am really struggling.

I'm a food lover, and every day it seems like there is something else I can't have. Even stupid things like finding out I can't drink my favourite beer and thinking, well thats ok I'll have Jack Daniels instead then finding out thats a no go is really getting to me and I'm struggling to cope.

If anyone has any advice re. the mental side of coping with this, it would be really appreciated.

Habbukuk

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

It gets easier. We all have our moments where this seems impossible or incredibly frustrating. It takes a bit of time, but you do adjust and figure out some new favorites and alternatives.

Jack Daniels is gluten free, does that help?

Open Original Shared Link

Darn210 Enthusiast
Darn210
Posted

When my daughter was first diagnosed, I totally overcompensated with the treats. If the kids on her soccer team all got an oreo after the game, then she got a bowl of ice cream. If kids in her class got a handful of goldfish crackers, she got a bag of skittles. I didn't want her to feel deprived. As we progressed, the treats got a more appropriate in size.

I recommend finding a few "treats" so that you don't feel deprived . . . whatever floats your boat . . . really good chocolate, caramel popcorn, the best-looking strawberries even though they are outrageously priced, ice cream floats, etc.

but I will tell you what I would tell my daughter . . . "I still expect you to eat the good food at dinner time." :P

Lisa Mentor
Lisa
Posted

Janet offers good anecdotal advice.

You can tweak your diet and feel better and EAT better.

It's a bit of a loss in the beginning, but a greater gain in the long run.

Jack can be in your life too. :rolleyes:

Take a walk around this place. :D

habbukuk Newbie
habbukuk
Posted
  • Author

It gets easier. We all have our moments where this seems impossible or incredibly frustrating. It takes a bit of time, but you do adjust and figure out some new favorites and alternatives.

Jack Daniels is gluten free, does that help?

Open Original Shared Link

That does put a smile on my face! I must say, it's really confusing though because there are a lot of discrepencies in what I am told I can and can't have! Hard to keep up - lol!

MitziG Enthusiast
MitziG
Posted

It isn't easy. No way around that. And in the beginning, it is very hard. But you will grow accustomed to it, I promise. Traveling and social situations will never be as simple again, but it is important to maintain perspective. There are much worse things than this. Celiac is an inconvenience, but good health is truly a blessing!

habbukuk Newbie
habbukuk
Posted
  • Author

Some good advice in there. Thanks everyone, really appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

Hi All

Recently found out that I most likely have Celiac disease, and am really struggling.

I'm a food lover, and every day it seems like there is something else I can't have. Even stupid things like finding out I can't drink my favourite beer and thinking, well thats ok I'll have Jack Daniels instead then finding out thats a no go is really getting to me and I'm struggling to cope.

If anyone has any advice re. the mental side of coping with this, it would be really appreciated.

Habbukuk

Hang in there Habbukuk! Lucky for us life is not just one path or one door, when some doors get shut we can always open new ones :-) You'll find new things that you like. I learned to appreciate food MORE after going gluten free, because I had to do most of the cooking. Cooking is becoming a passion and with that passion comes great flavors and yum yums!

user853 Apprentice
user853
Posted

First, I am right there with you struggling. Beer tasting has been a part of my life with my husband for.. well.. ever! So, it is especially hard!

However, I totally agree with this...

Traveling and social situations will never be as simple again, but it is important to maintain perspective. There are much worse things than this. Celiac is an inconvenience, but good health is truly a blessing!

As a young adult cancer survivor, who has lost a sister and many friends to cancer, I am truly happy to have good health.

ALSO - try to focus on all the good stuff that you CAN eat and the can't eats will fall away!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,140
    • Most Online (within 30 mins)
      7,748
    Roxyanne18
    Newest Member
    Roxyanne18
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      Gotcha!
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
×
×
  • Create New...