Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To Sals, Or Not To Sals!


dani nero

Recommended Posts

dani nero Community Regular

I posted this thread here because my DH is the most prominent side effect that I get from consuming too large amounts of salicylates!

I'm experiencing some changes regarding my sals sensitivity, so I was wondering (for those who also react to sals) if they've experienced the same thing!

I've noticed that I can handle a bigger amount of foods that are high on sals, such as cherry tomatoes. I even tried to test this by eating frozen mangoes, frozen berries, and even a few fresh blue berries (which I'm immensely enjoying by the way) and I'm so far almost getting away with it!

I was feeling particularly greedy the past three days, cheating on my diet with unlimited cherry tomatoes frozen mangoes, and berries (most of them were frozen but I did also have a few fresh blue berries), and I'm not sure what's going on, but I haven't been getting any new blisters. My rash -does- get a little dry, and it burned a little two nights ago, but that was it. I tried pushing it again yesterday by spoiling myself, and I'm ok so far. I'm not getting bad DH reactions, and my throat and nose are not hurting either!

Could it be that I'm getting over the sals sensitivity? Is that possible?

Could this be due to the fact that sals sensitivity occurs when enough sals have accumulated in the body until they start causing reactions.. So going off them for a while means that the body can start handling them again, until another overdose occurs?

Or could frozen fruits contain less sals than fresh ones?

I don't know what this is.. but I'm very happy and thankful that it's happening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

It's not just that, but even the sugar in these fruits have not been bothering me. I've not been getting anxious or bloated from the sugar.

squirmingitch Veteran

I'm delighted to hear this but would give a word of caution Dani. Sals ARE cumulative. So take it slow & easy. Don't push the limits too hard.

That was my problem with sals in the first place. I was eating everything sal! I was doing fine too. And then one day --- BOOM! Sal overdose b/c of the accumulation.

I went low sal & was doing good again. I was able to add a few sals back into the equation. Fine. Then I pulled a muscle in my flank --- it's either that or the neuro --- toooooo excruciating --- no way not to take meds for it. I chose Tylenol b/c it seems to be less aggravating than Naproxyn. But I had to take a lot of Tylenol throughout the day for 4 days. Then it caught up with me. Sals overload again. So, the sals are getting out of my system again & my rash is getting better.

Just be cautious & don't od.

pricklypear1971 Community Regular

It could be that the longer you're off gluten the more you can take. Thats what happened with me. In the beginning certain sals set me off horribly - colorings, MSG, just odd things - coconut to a degree. Too many almonds.... Then, after a while, after my rash healed I was ok with most sals.

I have noticed I can't get them ON my rash - I was using almond oil/Shea butter salve on the spot on my hand and thought it was ok. Nope. I finally figured out it was making it worse, switched to Vanicream and it's finally healing. I also can't get fruit or vegetables on the rash or it triggers a new outbreak. Thus, the kitchen gloves.

Iodine was worse for me. I was much more sensitive to iodine with my DH. Still am. I can eat sushi and get a dry red spot immediately.

As your antibodies fall, the more you can take? That's good news.

dani nero Community Regular

Understood, and thanks for everything gals :-) This is so wonderful! I'll try not to overdo it :-D

Yay!

dani nero Community Regular

I have noticed I can't get them ON my rash - I was using almond oil/Shea butter salve on the spot on my hand and thought it was ok. Nope. I finally figured out it was making it worse, switched to Vanicream and it's finally healing. I also can't get fruit or vegetables on the rash or it triggers a new outbreak. Thus, the kitchen gloves.

Iodine was worse for me. I was much more sensitive to iodine with my DH. Still am. I can eat sushi and get a dry red spot immediately.

I did notice that when I ate seasoned chicken with my hands once.. The seasoning wasn't spicy but my rash felt burn-ie when some of it came in contact.. I guess these rashes reacts from both sides :-)

It's really amazing how fast reactions can be. I sometimes thought it's was all in my head because the moment I ate those extra portions of sweet potato or extra sips of carrot juice, my nose starts itching.. And I would think "Can't be that fast!"

dani nero Community Regular

But I had to take a lot of Tylenol throughout the day for 4 days. Then it caught up with me. Sals overload again. So, the sals are getting out of my system again & my rash is getting better.

Sneaky no good sals :-( I'm glad you're doing better now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You know what's weird? 99% of the time that I eat a meal --- no sal, low sal, no iodine, low iodine --- whatever --- I get some itchiness for about 10 or 15 minutes. Then it goes away. Not bad itchy just "little tingles". My hubs noticed the same thing. We were talking about it yesterday. We were wondering if it might have anything to do with the food hitting your intestines & the villi. And since we aren't fully healed yet maybe --- I don't know --- maybe something to do with the body having to work harder to deal with the food & so it has to let up on keeping the itch from happening??????

It's weird.

ciamarie Rookie

You know what's weird? 99% of the time that I eat a meal --- no sal, low sal, no iodine, low iodine --- whatever --- I get some itchiness for about 10 or 15 minutes. Then it goes away. Not bad itchy just "little tingles". My hubs noticed the same thing. We were talking about it yesterday. We were wondering if it might have anything to do with the food hitting your intestines & the villi. And since we aren't fully healed yet maybe --- I don't know --- maybe something to do with the body having to work harder to deal with the food & so it has to let up on keeping the itch from happening??????

It's weird.

I've had that happen too, though not as frequently lately. And if the Tylenol was bothering you after a few days, it might have been sulfites too. Corn starch has sulfites. I had a headache today and wanted to take an aspirin but didn't for that reason.

squirmingitch Veteran

I've had that happen too, though not as frequently lately. And if the Tylenol was bothering you after a few days, it might have been sulfites too. Corn starch has sulfites. I had a headache today and wanted to take an aspirin but didn't for that reason.

Thanks ciamarie! I had no idea about the sulfites. Sheesh! It gets harder & harder. How are we supposed to use pain relievers? what can we use?

Di2011 Enthusiast

Open Original Shared Link

This is a guide I've used to keep a track of sulphites.

Given that I eat very little processed food and I am iodine and sals low I tend to avoid them naturally.

My sals reaction is definitely cumulative like other posters have stated. The longer gluten free the less intense my DH reaction to sals - unless I go overboard. I'd say I am low-mid intake of iodine (but only compared to us DH folk - certainly not taking in mid-range iodine compared to general population.. I think that part of the world is forever beyond mine).

I do hope you take everyones advice and go a bit steadier. Have a small treat once a day, or every other day. If you are like many of us you only need a small glutening for that sals / iodine intake to send your DH into a major spin.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    3. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,477
    • Most Online (within 30 mins)
      7,748

    bwhntr1953
    Newest Member
    bwhntr1953
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.