Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To Sals, Or Not To Sals!


dani nero

Recommended Posts

dani nero Community Regular

I posted this thread here because my DH is the most prominent side effect that I get from consuming too large amounts of salicylates!

I'm experiencing some changes regarding my sals sensitivity, so I was wondering (for those who also react to sals) if they've experienced the same thing!

I've noticed that I can handle a bigger amount of foods that are high on sals, such as cherry tomatoes. I even tried to test this by eating frozen mangoes, frozen berries, and even a few fresh blue berries (which I'm immensely enjoying by the way) and I'm so far almost getting away with it!

I was feeling particularly greedy the past three days, cheating on my diet with unlimited cherry tomatoes frozen mangoes, and berries (most of them were frozen but I did also have a few fresh blue berries), and I'm not sure what's going on, but I haven't been getting any new blisters. My rash -does- get a little dry, and it burned a little two nights ago, but that was it. I tried pushing it again yesterday by spoiling myself, and I'm ok so far. I'm not getting bad DH reactions, and my throat and nose are not hurting either!

Could it be that I'm getting over the sals sensitivity? Is that possible?

Could this be due to the fact that sals sensitivity occurs when enough sals have accumulated in the body until they start causing reactions.. So going off them for a while means that the body can start handling them again, until another overdose occurs?

Or could frozen fruits contain less sals than fresh ones?

I don't know what this is.. but I'm very happy and thankful that it's happening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

It's not just that, but even the sugar in these fruits have not been bothering me. I've not been getting anxious or bloated from the sugar.

squirmingitch Veteran

I'm delighted to hear this but would give a word of caution Dani. Sals ARE cumulative. So take it slow & easy. Don't push the limits too hard.

That was my problem with sals in the first place. I was eating everything sal! I was doing fine too. And then one day --- BOOM! Sal overdose b/c of the accumulation.

I went low sal & was doing good again. I was able to add a few sals back into the equation. Fine. Then I pulled a muscle in my flank --- it's either that or the neuro --- toooooo excruciating --- no way not to take meds for it. I chose Tylenol b/c it seems to be less aggravating than Naproxyn. But I had to take a lot of Tylenol throughout the day for 4 days. Then it caught up with me. Sals overload again. So, the sals are getting out of my system again & my rash is getting better.

Just be cautious & don't od.

pricklypear1971 Community Regular

It could be that the longer you're off gluten the more you can take. Thats what happened with me. In the beginning certain sals set me off horribly - colorings, MSG, just odd things - coconut to a degree. Too many almonds.... Then, after a while, after my rash healed I was ok with most sals.

I have noticed I can't get them ON my rash - I was using almond oil/Shea butter salve on the spot on my hand and thought it was ok. Nope. I finally figured out it was making it worse, switched to Vanicream and it's finally healing. I also can't get fruit or vegetables on the rash or it triggers a new outbreak. Thus, the kitchen gloves.

Iodine was worse for me. I was much more sensitive to iodine with my DH. Still am. I can eat sushi and get a dry red spot immediately.

As your antibodies fall, the more you can take? That's good news.

dani nero Community Regular

Understood, and thanks for everything gals :-) This is so wonderful! I'll try not to overdo it :-D

Yay!

dani nero Community Regular

I have noticed I can't get them ON my rash - I was using almond oil/Shea butter salve on the spot on my hand and thought it was ok. Nope. I finally figured out it was making it worse, switched to Vanicream and it's finally healing. I also can't get fruit or vegetables on the rash or it triggers a new outbreak. Thus, the kitchen gloves.

Iodine was worse for me. I was much more sensitive to iodine with my DH. Still am. I can eat sushi and get a dry red spot immediately.

I did notice that when I ate seasoned chicken with my hands once.. The seasoning wasn't spicy but my rash felt burn-ie when some of it came in contact.. I guess these rashes reacts from both sides :-)

It's really amazing how fast reactions can be. I sometimes thought it's was all in my head because the moment I ate those extra portions of sweet potato or extra sips of carrot juice, my nose starts itching.. And I would think "Can't be that fast!"

dani nero Community Regular

But I had to take a lot of Tylenol throughout the day for 4 days. Then it caught up with me. Sals overload again. So, the sals are getting out of my system again & my rash is getting better.

Sneaky no good sals :-( I'm glad you're doing better now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You know what's weird? 99% of the time that I eat a meal --- no sal, low sal, no iodine, low iodine --- whatever --- I get some itchiness for about 10 or 15 minutes. Then it goes away. Not bad itchy just "little tingles". My hubs noticed the same thing. We were talking about it yesterday. We were wondering if it might have anything to do with the food hitting your intestines & the villi. And since we aren't fully healed yet maybe --- I don't know --- maybe something to do with the body having to work harder to deal with the food & so it has to let up on keeping the itch from happening??????

It's weird.

ciamarie Rookie

You know what's weird? 99% of the time that I eat a meal --- no sal, low sal, no iodine, low iodine --- whatever --- I get some itchiness for about 10 or 15 minutes. Then it goes away. Not bad itchy just "little tingles". My hubs noticed the same thing. We were talking about it yesterday. We were wondering if it might have anything to do with the food hitting your intestines & the villi. And since we aren't fully healed yet maybe --- I don't know --- maybe something to do with the body having to work harder to deal with the food & so it has to let up on keeping the itch from happening??????

It's weird.

I've had that happen too, though not as frequently lately. And if the Tylenol was bothering you after a few days, it might have been sulfites too. Corn starch has sulfites. I had a headache today and wanted to take an aspirin but didn't for that reason.

squirmingitch Veteran

I've had that happen too, though not as frequently lately. And if the Tylenol was bothering you after a few days, it might have been sulfites too. Corn starch has sulfites. I had a headache today and wanted to take an aspirin but didn't for that reason.

Thanks ciamarie! I had no idea about the sulfites. Sheesh! It gets harder & harder. How are we supposed to use pain relievers? what can we use?

Di2011 Enthusiast

Open Original Shared Link

This is a guide I've used to keep a track of sulphites.

Given that I eat very little processed food and I am iodine and sals low I tend to avoid them naturally.

My sals reaction is definitely cumulative like other posters have stated. The longer gluten free the less intense my DH reaction to sals - unless I go overboard. I'd say I am low-mid intake of iodine (but only compared to us DH folk - certainly not taking in mid-range iodine compared to general population.. I think that part of the world is forever beyond mine).

I do hope you take everyones advice and go a bit steadier. Have a small treat once a day, or every other day. If you are like many of us you only need a small glutening for that sals / iodine intake to send your DH into a major spin.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      1

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Jmartes71 replied to Jmartes71's topic in Doctors
      6

      Second chance

    3. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,642
    • Most Online (within 30 mins)
      7,748

    Jen Radford
    Newest Member
    Jen Radford
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.