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Having Extreme Spasms?


Razzle Dazzle Brazell

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Razzle Dazzle Brazell Enthusiast

I have been having weakness in my grip in my left and right hands and have recently developed extreme spasms in my left and right foot constantly. It sometimes seizes my legs. Is this a normal reaction? I have been going gluten free for about three weeks and it seems like a slip up makes me have worse symptoms than before i stopped...Never had foot seizures before.

Also i have recently started drinking crystal light gluten-free green tea. Could too much caffeine be the culprit or further exacerbate the problem.


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IrishHeart Veteran

Your post has many questions/topics.

Muscle spasms, weakness and seizures can occur with Celiac.

Are you a celiac?

You mention "slip ups" (do not know what that means?) and so it will be hard for any of us to say definitely what is going on.

and I do not know much about crystal light. Caffeine causes heart palps, etc, in some people, but again, your post is not very specific so we may need more info to help you.

kareng Grand Master

Not sure those symptoms have anything to do with caffiene but

From the website

q:

what is the caffeine content in the crystal light iced tea flavors?

a:

CRYSTAL LIGHT® Iced Teas contain only 10 mg caffeine per serving. (Instant teas contain 26-36 mg caffeine per 8 fl. oz serving while brewed tea contains approximately 48 mg caffeine per 8 fl. oz serving).

Peach Tea mix (Tub and OTG) - 15mg of caffeine per 8 fl. oz serving (naturally occurring)

Raspberry Tea mix - 10mg of caffeine per 8 fl. oz serving (naturally occurring)

Decaffeinated Iced Tea mix - less than 1 mg of caffeine per 8 fluid oz. serving

(naturally occurring)

Green Tea Raspberry (Tub and OTG) - 10mg of caffeine per 8 fl. oz serving (naturally occurring)

Great Tea Peach Mango (OTG) - 25mg per serving

Green Tea Honey Lemon (OTG only) - 10mg of caffeine per 8 fl. oz serving (naturally occurring)

Crystal Light products with Energy positioning contain added caffeine. Crystal Light Energy Wild Strawberry contains 60 mg caffeine per 8 fl oz serving.

Razzle Dazzle Brazell Enthusiast

Your post has many questions/topics.

Muscle spasms, weakness and seizures can occur with Celiac.

Are you a celiac?

You mention "slip ups" (do not know what that means?) and so it will be hard for any of us to say definitely what is going on.

and I do not know much about crystal light. Caffeine causes heart palps, etc, in some people, but again, your post is not very specific so we may need more info to help you.

I have not ben diagnosed as celiacs. I was told by a chiropractor of all ppl i may have an allergy to gluten based off diet journal, symptoms and medical history. Saw an ND who was supposed to order a test for gluten allergy but only ordered CBC and metabolic panel. I do not have insurance and cant afford to have doctors beating around the bush to keep getting money out of me. Anyway when i have anything with gluten in it, including processed maltodextrin from wheat, i swell up like im 8 months pregnant. I get tired, fatigued and even very lethargic, i can barely breathe b/c of the swelling and my temp also gets low. Oh and my throat and sinuses swells especially if its in a drink. When I was 19 diagnosed with interstitial cystitis. I was also diagnosed as having pernicous anemia recently at 21 even though before eliminating gluten i ate like a pig all the time and didnt like snack foods. I am concerned that at some point since my symptoms are so severe I should find someone who can work with me and do an honest thorough examination but no insurance makes it hard. I guess its also worth mentioning that i have had multiple arrythmia episodes and have had echos and ultrasounds and catsscans of my brain and everything came back normal after episodes.

By slip ups i am referring to accidently ingesting a food or drink that has wheat based products like a sausage pattie that has vague ingredient like "spices" or buying walmart brand drink mixes instead of crystal light.

kareng Grand Master

I have not ben diagnosed as celiacs. I was told by a chiropractor of all ppl i may have an allergy to gluten based off diet journal, symptoms and medical history. Saw an ND who was supposed to order a test for gluten allergy but only ordered CBC and metabolic panel. I do not have insurance and cant afford to have doctors beating around the bush to keep getting money out of me. Anyway when i have anything with gluten in it, including processed maltodextrin from wheat, i swell up like im 8 months pregnant. I get tired, fatigued and even very lethargic, i can barely breathe b/c of the swelling and my temp also gets low. Oh and my throat and sinuses swells especially if its in a drink. When I was 19 diagnosed with interstitial cystitis. I was also diagnosed as having pernicous anemia recently at 21 even though before eliminating gluten i ate like a pig all the time and didnt like snack foods. I am concerned that at some point since my symptoms are so severe I should find someone who can work with me and do an honest thorough examination but no insurance makes it hard. I guess its also worth mentioning that i have had multiple arrythmia episodes and have had echos and ultrasounds and catsscans of my brain and everything came back normal after episodes.

By slip ups i am referring to accidently ingesting a food or drink that has wheat based products like a sausage pattie that has vague ingredient like "spices" or buying walmart brand drink mixes instead of crystal light.

Spices cannot hide wheat in the US. Wheat must be labelled clearly if it is in a drink mix ( unlikely) or maltodextrin ( again unlikely) or spices. Or any food.

Razzle Dazzle Brazell Enthusiast

Not sure those symptoms have anything to do with caffiene but

From the website

q:

what is the caffeine content in the crystal light iced tea flavors?

a:

CRYSTAL LIGHT

Razzle Dazzle Brazell Enthusiast

Spices cannot hide wheat in the US. Wheat must be labelled clearly if it is in a drink mix ( unlikely) or maltodextrin ( again unlikely) or spices. Or any food.

Yeah the drink mix had wheat labeled i just was an idiot and didnt think to check it b/c i bought walmart brand.

It is good to know that spices must be labeled b/c other sources told me that some ingredients are processed with wheat but are claimed to be gluten free because they are so highly processed.


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Razzle Dazzle Brazell Enthusiast

Spices cannot hide wheat in the US. Wheat must be labelled clearly if it is in a drink mix ( unlikely) or maltodextrin ( again unlikely) or spices. Or any food.

I just thought i would update. Sunday i didnt drink any caffeine at all and symptoms began to subside over that weekend. When i went back to work on monday my foot spasms returned with d. The only thing i was sharing there was water from a brita water filter (drank about a liter at least everyday). I decided to take my own water in and my symptoms have completely disappeared. I know correlation does not predict causation but still very interesting.

IrishHeart Veteran

. The label says gluten free but it does have maltodextrin from who knows what in it.

Maltodextrin is safe.

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