Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gf Burn-out


Lisa

Recommended Posts

Lisa Mentor

Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step?

I guess, a little down tonight. The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now. Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

(This is an old hat speaking, so the perspective may not be as useful.)

When I get burnt-out dealing with the gluten-free stuff, I go back to making my really tried and true, normally gluten-free meals that I can fill my fridge with and just stay eating at home. I just plain ol' ignore anything but the meat/produce/beans/rice in the grocery store, and make sure everything in my house is unquestionable. I'll use my big 12qt pot to make soup or stew or both, and have plenty of leftovers. I'll make hummus and guacamole (both easy to make) so I can have vegetables with it and still have variety. Basically, give myself a lot of options that are simple but made from scratch that I don't have to think about. That means avoiding going out for meals, and making people come to my place for dinner instead of viceversa, but it's mentally easier on me that way when I'm feeling "used up".

mommida Enthusiast

It would be odd if you didn't feel this way. You are going through so many changes, feelings, and your body is trying to heal. Most books describe it as grieving for your past life.

How many of us have actually cried walking into a grocery store? I do suggest that you read Danna Korn's Kids with Celiac Disease. (Haven't read Wheat Free worry Free yet) It does address some of the emotional issues of diagnoses. We as adults try and supress too many of these feelings, and I just think it takes longer to adjust if your stuck in denial.

Laura

Lisa Mentor

Tiffany:

I have basically done well with the the gluten-free foods. (Still working on lipsticks, face cream and shampoo).

But it is the emotional fall-out , with the need to inspect everything that goes in your mouth that is making me TIRED.

It truely is a weiry task. I am one of the dumb bunnies that downloaded the Delfi-forum list and it shows up incripted on my computer....go figure...I didn't do it right and the computer wiz is at college in this household. Still working on fixing it.

THANKS FOR WRITING BACK. Lisa B.

PicturePerfect Explorer

I get down a lot, too. I don't know what brings it on. I guess I just start thinking about how I need to change my shampoo and lotion and then I just get upset that I have Celiac to begin with. But, I mean, its not like I want to go and eat gluten, because being sick is not worth it. I know that I am not very helpful, but I am a newbie at this too. :)

Hang in there.. we all try too!

Lisa

tarnalberry Community Regular
But it is the emotional fall-out , with the need to inspect everything that goes in your mouth that is making me TIRED.

<{POST_SNAPBACK}>

Those are the times I don't try anything new. Perhaps that's an old-hat thing... there are things I know that are safe that I don't have to think about. Perhaps it is having a mostly gluten-free kitchen... I don't even have to think about avoiding the three boxes that are my husbands gluten-filled ickiness.

You're totally right. Sometimes it just gets so damned tiring to be vigilant. It takes so much energy to do "everyday" things, like finding food, that we don't have a lot of energy left over for other things. It's like "whew... I tramped across the fields, hunted down a pack of well-labeled, safe-ingrediented boxes and managed to capture them and drag them home; I'm spent for the day". (I guess it's giving me a better appreciation for the days when you really had to hunt for your food in the wild! I'm glad I'm not back there!)

The "surround yourself with only safe stuff" is the only way I can think of to try to duplicate "hiding in a little shell", even if it's just for a little while.

I hope that, as time goes on, you'll be able to get to a point where you can do that - that you've found enough safe items that you can create a safety-zone for yourself.

Lisa Mentor

Thanks for your repy...without getting into a new forum.....

any lipsticks that are gluten-free? I am about as pale as a church mouse.

Bad night, (emotions) but will be good in the am.

Good night to all, thought and prayers to all Katrina's people.

Check back in the am. Thanks for you all being there.

Lisa B.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nogluten- Newbie

Lisa,

Hang in there. It does get easier over time. x

Guest BERNESES

Oh- how I know how you feel. I've been doing this for the last 7 months (I am definitely still a newbie) and I'm so tired, frustrated and disgusted. I don't mind the diet at all (actually, I had sort of weeded out a lot of things because I knew for some reason they just weren't making me feel good like beer, pasta, pancakes etc) but what I do mind is trying my butt off and still having accidents. THAT is frustrating. And just keeping the faith that I will heal. Sometimes it seems impossible but it's gotta happen. Right? Right!

calexander Newbie
Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step? 

I guess, a little down tonight.  The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now.  Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.

<{POST_SNAPBACK}>

Hey Lisa,

I had to do the six vials thing today too. 8 hrs. of fasting, then working all day and driving to the lab for testing this afternoon. They had to do 6 separate sticks and draw me 6 times over 2 hours. Yuck!! This was for lactose intolerance. I'm just praying that it turns out o.k. In the meantime, I'm eating Haagen Daz every chance I get. It may be my last!! But I can tell you that after my testing today, I was a train wreck. I don't know if it was because my blood sugar was probably really low from fasting, or what. But I felt like I just hit the end of my rope. I have days where I feel really really good and I know that the diet is helping. And then there are days like this when I wonder why I'm so down. I'm sure it's just frustration and the fact that it's one more thing for us busy moms to have to think about and keep track of.

Anyway, I can totally relate to how you feel. Hope your tests turn out good. Keep in touch. Cherie

Diosa Apprentice
Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step? 

I guess, a little down tonight.  The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now.  Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.

<{POST_SNAPBACK}>

I so understand where you are coming from!! I just worked it out this past May, and I've spent lots of time frustrated and in mourning over what I can no longer have.

What I've done is made my kitchen totally gluten-free and I cook all the time. At least for the week, I know that I don't have to worry about dinner nor lunches (usually leftovers from the previous night's dinner). Going to the grocery is another matter. :)

Also, I treat myself. There are some excellent gluten-free chocolate chip cookie recipes (if you can have chocolate chips nd rice flour), brownies (Bob'e Red Mill gluten-free Brownie mix is a lifesaver some days, especially for me - a chocaholic) or gluten-free chocolate bars (my personal preference is Green and Black's - no dairy in the dark chocolate nor the Maya Gold oranage chocolate). Doing this at least gives me a certain amount of normalacy.

Hope this helps a little.

Bonnie Explorer

Lisa, I totally relate to what you are going through.

I'm a newbie too - some days I feel great and some days I think I just can't do this!

Its so frustrating and tiring. I get really down and depressed at times especially when I'm in a hurry, juggling work and kids. In the old days I would just grab a pre-packed sandwich or a sausage roll at the shops. It KILLS me to make pizza etc. for my kids when I can't have it myself. They wont touch gluten-free food so I make separate meals!

I work in a small office of 6 girls - they order takeout all the time and eat it in front of me. They bring cake a lot too. I find this really difficult.

The thought that goes into shopping and cooking - the preparation of even a day out.

Sometimes is just seems like too much. BUT I never even contemplate eating gluten. That tells me something.

Just hang in there. We have to believe the others and trust it will get better.

Thinking of you!

Yvonne

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,009
    • Most Online (within 30 mins)
      7,748

    cradford.cc
    Newest Member
    cradford.cc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebygirl01
      Ortiz-Sánchez JP, Cabrera-Chávez F, de la Barca AM. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients. Nutrients. 2013 Oct 21;5(10):4174-83. doi: 10.3390/nu5104174. PMID: 24152750; PMCID: PMC3820067. AND SEE: Oats Intolerance in Celiac Disease. PLoS Med. 2004 Oct;1(1):e23. doi: 10.1371/journal.pmed.0010023. Epub 2004 Oct 19. PMCID: PMC523841. AND ALSO SEE: Bascuñán KA, Orosteguí C, Rodríguez JM, Roncoroni L, Doneda L, Elli L, Araya M. Heavy Metal and Rice in Gluten-Free Diets: Are They a Risk? Nutrients. 2023 Jun 30;15(13):2975. doi: 10.3390/nu15132975. PMID: 37447301; PMCID: PMC10346754. Celiac disease is one of the most common autoimmune gastrointestinal diseases; over the last decades, its prevalence indicates a mean annual increase in frequency currently calculated at 7.5% per year [23]. celiac disease is triggered by gluten present in the diet and the disease involves autoimmune and inflammatory damage to the small intestine in genetically susceptible individuals. To develop celiac disease a person must inherit the genetic predisposition; however, about one third of the population carries the risk genes and only ~1% of the population develops the disease, indicating that genetics is not sufficient to explain the condition. The environment participates by providing the triggering factor, i.e., gluten, and the disease is activated by environmental factors which, until now, have not been fully understood, among which changes in eating habits and the intestinal microbiota are considered to be significant factors [24,25]; yet, current knowledge is insufficient to explain the mechanisms involved. Currently, the only treatment for celiac disease is a GFD for life. AND ALSO SEE: Dr. Osborne: Although rice is considered gluten-free based on the definition set forth by the FDA, rice does contain a different form of gluten prolamin called orzenin. In my experience, those with known celiac disease or non celiac gluten sensitivity issues do better when avoiding rice.
    • trents
      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE:  The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%.
    • Scott Adams
      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
×
×
  • Create New...