Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did I Get Glutened!?!

CanineGluten

Recommended Posts

GFinDC Veteran
GFinDC
Posted

I could get tested for celiac.

Eating once a day, or having a feeding window.. isn't an idea I made up.

Hi CG,

If you decide to get tested, it is important that you continue eating a regular gluten diet until the testing is completed. There is no "perfect" test for celiac disease right now, but the best chance of detecting the antibodies is before starting the gluten-free diet. Even then it is hit or miss. Ask your doctor to do the full celiac antibody panel. There are several different kinds of antibodies they test for. Some doctors will want to do an endoscopy also and take 5 or more biopsy samples to check them under a microscope. They are looking for damage to the villi that line the small intestine. Some doctors will diagnose on the blood antibodies only, without the endoscopy. You also have the option of going gluten-free without testing. There is no law saying you have to get an official diagnosis to eat gluten free foods. Many people on this forum have done just that, after years of misdiagnosis by doctors.

If you have symptoms, especially digestive symptoms, going gluten-free may help clear them up. Even if you are not celiac, some people react to gluten and have what is called NCGI (non-celiac gluten intolerance). There are no medical tests for NCGI though, we have to figure it out for ourselves. I suggest you write down your symptoms, and how you feel each day before going gluten-free and afterwards. Sometimes people have symptoms like joint pain or muscle aches, etc. etc. that resolve after going gluten-free, and they didn't think they were anything to do with gluten. You already know that gluten makes you anti-social, and it did that to me also. The thing is, gluten can affect the whole body, not just the gut. One condition it causes is called "gluten ataxia" which affects the brain and makes it difficult for people to walk etc. It is serious stuff having a gluten problem, and you can develop many problems including additional auto-immune disease if you continue to eat gluten. The current thinking is that around 30% of people in the USA that carry at least one of the genes for celiac disease. And it is widespread in other countries too.

I don't remember if I posted these thread links for you earlier or not. But anyway , these may be helpful for you to review.

Again, I don't see any problem with eating once a day myself. It just won't fix celiac disease is all.

FAQ Celiac com

http://www.celiac.co...uestions-about-celiac-disease/

Celiac Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...-for-breakfast-

today/page__pid__726053__st__180#entry726053

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

I would revise that to say that many cheap brands contain wheat. In higher end foods you are more likely to see rice. Pearled barley does appear in some top tier brands, and oats are sometimes included. Read the ingredients. The most common wheat source in dog products is in biscuits, not food. There are many wheat-free biscuits available, but they will cost a lot more than a MilkBone.

Thanks for the correction :-) All bunny pellets contain gluten except for Zoopreem (sp?) regardless of their price-range, which is why I thought it would be the same for dog food.

CanineGluten Newbie
CanineGluten
Posted
  • Author

Im here because Im here.

I have no problems except when someone steps up to say IFing is wrong.

Scuse me? lol..

Jestgar Rising Star
Jestgar
Posted

I don't think anyone is saying it's wrong, just wrong for some people. Diabetics should never skip meals, people who take meds that require food should never skip meals, people on thyroid meds shouldn't skip meals...

I'm confused though, are you saying that eating gluten light works for you, as long as you fast after eating gluten? Or do you always feel poorly after gluten, and fasting helps the symptoms pass more quickly?

psawyer Proficient
psawyer
Posted

Im here because Im here.

That "answer" is not an answer at all.

I have no problems except when someone steps up to say IFing is wrong.

Oh, so if I understand that, your purpose here is to advance your own personal agenda, even though it is in conflict with the purpose this board--helping celiacs heal. Good to know.

CanineGluten Newbie
CanineGluten
Posted
  • Author

back up

i dont know if i am "celiac"

just want to shoot the s$#&

and IFing is amazing. not here to sell it.. but seriosuly it would help so many people.

why the "f" would you want to eat if your digestive system is screwed up

ravenwoodglass Mentor
ravenwoodglass
Posted

why the "f" would you want to eat if your digestive system is screwed up

To Live.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

To Live.

Was getting ready to say this to him AGAIN, but you beat me to it.

Thanks, Raven! :)

WE need to EAT--Celiacs need to eat. We were in starvation mode long enough.

Adalaide Mentor
Adalaide
Posted

I know I'm just repeating, but it simply is not safe for celiacs to starve ourselves all day and binge in the evenings. We've suffered years of being malnourished and we simply can't get what we need to survive. We also can't afford to do things that will put us at risk of additional autoimmune diseases, one of which is diabetes. Binge eating can contribute to developing diabetes.

You can call it whatever you want to, but that doesn't change what it is. If you're spending 23 hours a day not eating and an hour a day stuffing your face with literally anything you feel like putting in there you really need to seek help for your eating disorder. Doing something that absurd is especially dangerous (as in life threatening) for celiacs. If you even suspect you could have celiac you need to either get tested or stay gluten free before you kill yourself.

Oscar Apprentice
Oscar
Posted

To Live.

Exactly.

A person recovering (healing) from celiac disease has a damaged intestine and has been starving for some time. As the gut heals, and begins to absorb nutrients again, it is important not to overload it by trying to eat too much at once. Eating small amounts, frequently, works well. Bingeing and fasting is counter-productive.

If you have diagnosed celiac disease, it is important to eat nutritious meals multiple times per day while healing. Complete recovery may take a few years. Do not listen to CanineGluten--he clearly does not understand the purpose of this forum.

  • 2 weeks later...
CanineGluten Newbie
CanineGluten
Posted
  • Author

Whatever. Go ahead and think to yourself fasting is not healthy.

GFinDC Veteran
GFinDC
Posted

Hi CanineG,

I don't think the idea of intermittent fasting is bad.

Open Original Shared Link

Intermittent fasting (IF) is a Open Original Shared Link that alternates between periods of Open Original Shared Link (usually meaning consumption of water only) and non-fasting.

There is some evidence that intermittent fasting may have beneficial effects on the health and Open Original Shared Link of animals—including Open Original Shared Link—that are similar to the effects of Open Original Shared Link (CR). There is currently no consensus as to the degree to which this is simply due to an (often) concomitant overall decrease in calories. (IF and CR are forms of Dietary Restriction (DR), which is sometimes referred to as Dietary Energy Restriction (DER).)

It may be bad for some people of course, we aren't all the same. But it can probalby help some people too. The fasting itself is ok IMHO, as long as you are NOT eating gluten when you aren't fasting. And you don't overdo the fasting either.

ravenwoodglass Mentor
ravenwoodglass
Posted

Today I had coffee, yerba mate, and water.. up till 11 AM.

I was feeling fine. My face wasnt puffy under my eyes like when I get glutened.

So even though I kinda wanted to keep fasting, since I had breaded fish last night.. and wanted to clean out..

Fasting in itself is not bad when done properly. I fast frequently myself. Fasting as a way to allow yourself to eat gluten is the problem.

If you are having reactions to gluten then you need to stay away from it whether you have a formal diagnosis or not.

Fasting does not stop the antibodies from their attack. Only being gluten free will do that.

Oscar Apprentice
Oscar
Posted

Oh, my! Raven, you're saying it isn't WHEN we eat, it is WHAT we eat! Who knew?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,998
    • Most Online (within 30 mins)
      7,748
    Kay k
    Newest Member
    Kay k
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      Vaccines

      By knitty kitty · Posted

      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      Increasing symptoms after going gluten free

      By knitty kitty · Posted

      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
    • knitty kitty
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By knitty kitty · Posted

      Welcome to the forum, @WildFlower1, Here's an article that explains about the updated gluten challenge guidelines.  Be sure to read the comments below the article. Have you been checked for nutritional deficiencies?  Low iron can affect antibody production, causing false negatives on antibody testing.  Do you currently struggle with low iron?   Low Vitamin D can cause amenorrhea, cessation of menstrual periods.   Correcting nutritional deficiencies is a big part of Celiac disease.  We don't absorb well the eight essential B vitamins and other vitamins and minerals like calcium, resulting in osteopenia, hair loss, infertility, and neurological symptoms.  Unfortunately, doctors are not given much training in nutritional deficiencies and don't recognize the connection with the malabsorption of Celiac disease. We get very frustrated here with doctors ordering us to put a harmful substance in our bodies in order for them to say "that makes you sick".   Duh, we know that already. Do try to increase your consumption of gluten for at least two weeks before retesting.  Eat the chewy kinds of breads.  Cookies and cakes don't have as much gluten in them as those chewy artisan breads and thick pizza crusts. I admire your tenacity at continuing the gluten challenge.  Do keep us posted on your progress.  We'll continue to support you on your journey to diagnosis and recovery.
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I would continue with your gluten challenge for another 2-3 weeks with the increased intake of gluten as outlined above.  You now say if you were confirmed to have celiac disease you would be even more strict about avoiding cross-contamination whereas in your first post you said, "Previously for many years 10+ I have been on a strict gluten free diet." Those statements seem to contradict one another. The celiac community as a whole understands that to be "on a strict gluten free diet" necessarily involves significant attention to cross-contamination. If you have not been strict with regard to CC up to now, it is difficult to say how that may have compromised your recovery and contributed to ongoing symptoms. Yet, even a significant reduction that falls short of gluten free can yield negative test results.
×
×
  • Create New...