Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Afraid To Say It Out Loud


bartfull

Recommended Posts

IrishHeart Veteran

Gemini and I have an understanding that she is to pick me up on the way to anywhere she goes... :) .... so, now, 2 of us are coming.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

YES!!! PLEASE come! I'll even close the shop for at least a day so I can be your sight-seeing guide. gluten-free restaurants in Hot Springs? Not a chance! But acutally, I HAVE eaten at Wolly's and gotten away with it. But Rapid City has lots of gluten-free places.

To get here, you would fly into Rapid City Regional airport. It's probably more expensive to fly into Rapid than it would be to fly to Denver and rent a car, but then you're looking at a six or seven hour drive to get to the Hills.

I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies. It's big and it's "West", but it is also small and cozy. Simply put, it's the most beautiful place I've been in my life, and I have traveled all over this country.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!

lucky28 Explorer

Yay! So glad to hear that your hard work and struggle is finally paying off!

IrishHeart Veteran

I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!

This born and bred Bostonian and die hard NOO ENGLANDAH would love to meet you someday, too! I will remember your offer.

;)

love2travel Mentor

YES!!! PLEASE come! I'll even close the shop for at least a day so I can be your sight-seeing guide. gluten-free restaurants in Hot Springs? Not a chance! But acutally, I HAVE eaten at Wolly's and gotten away with it. But Rapid City has lots of gluten-free places.

To get here, you would fly into Rapid City Regional airport. It's probably more expensive to fly into Rapid than it would be to fly to Denver and rent a car, but then you're looking at a six or seven hour drive to get to the Hills.

I used to live in Connecticut so I know what you mean by paved over cow paths. One thing I think you will like about the Hills is it is halfway between being "big sky" West, and rural New England. There are a lot more trees than the video showed, and our mountains are more like New England mountains than the Rockies. It's big and it's "West", but it is also small and cozy. Simply put, it's the most beautiful place I've been in my life, and I have traveled all over this country.

So, come visit. Gemini, Irish Heart, and EVERYBODY ELSE. I want to meet ALL of you and thank you in person for all you have done for me!!

What a tremendous thing to be able to say that about where you live. Unfortunately I cannot - it is not a pretty town whatsoever. Except for our park which I love but it is not very established so the trees are not large. However, our house in Croatia is a different matter. That is our piece of paradise. An old stone house nestled in thick forest surrounded by olive groves and vineyards and the Adriatic Sea - a far cry from our highly industrialized oil town!

Anyway, I believe I mentioned to you awhile ago that I have been to the Black Hills (saw the Passion Play) and really enjoyed the beauty of the area.

elleystar Newbie

Hey, small world, I am a ways north of you up in Spearfish!

I still never got the MRI. Some friends were talking about a benefit party for me but when our local no-kill animal shelter burned to the ground (they lost 11 dogs and one cat), I put on a benefit party for them instead. Then smene else did too. And after that there was ANOTHER benefit party for them (Can you tell we lve animals here?) People are benefitted out, at least for a while.

But the way I'm feeling right now, I really think that whatever it is, it's going to go away and never come back.

This was really sad. People rallied to support them though, I heard donations were coming in from all over the world. That was very selfless of you to put on a benefit for the shelter instead of yourself!

sreese68 Enthusiast

And I am HAPPY. I don't mean the kind of happy you feel when something good happens. I mean the kind of happy that has me waking up in the morning looking forward to the day, knowing it's going to be a good day no matter what happens.

Now, I think I'll go run a marathon or something. Maybe build a bridge, fight a forest fire, or invent something that will insure world peace. I've got to do SOMETHING with all this energy! :lol:

I love you all!!!

So thrilled for you!! I think finally being HAPPY after not having that for years was one of the nicest surprises I had! So glad it happened for you, too!

I took my new energy and went tandem skydiving. Twice. So much fun!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Hey, small world, I am a ways north of you up in Spearfish!

This was really sad. People rallied to support them though, I heard donations were coming in from all over the world. That was very selfless of you to put on a benefit for the shelter instead of yourself!

Maybe one of these days we can get together. There is a really good Indian restaurant in Rapid that is gluten-free and most of their stuff is corn free too. I could meet you there and we can talk about our diets, and our beautiful Hills, and hey - we can even gossip about some of the folks on this forum! (Just joking :lol: )

Yeah, it was heartbreaking when Tonia's burned down, but the one good thing that came out of it is the raised awareness. I just hope that when she is done rebuilding people keep in mind that she ALWAYS needs donations. 90 dogs can go through a lot of food quickly!

So, when our friends come out to visit we can take them to the Needles Highway and to Spearfish Canyon. They are my two favorite places in the world. And some time when you make it down to Hot Springs, you'll have to stop and see me at the music store. I'll even share my lunch if you don't mind eating my lousy cooking!

bartfull Rising Star

So thrilled for you!! I think finally being HAPPY after not having that for years was one of the nicest surprises I had! So glad it happened for you, too!

I took my new energy and went tandem skydiving. Twice. So much fun!!!!

I'm too old to try skydiving now, but if I were younger...

But happy? Oh yeah. Between feeling lousy and the emotions involved with taking care of and then losing my friend, I haven't played much music in the past seven months. But last Thursday I wrote a new song and suddenly I feel REALLY alive again!

It feels so good to feel good!!

My wish is that every single member of this forum, and those who haven't even found us yet, will someday feel as good as you and I do now.

dani nero Community Regular

My wish is that every single member of this forum, and those who haven't even found us yet, will someday feel as good as you and I do now.

Amen to that :-)

Gemini Experienced

What a tremendous thing to be able to say that about where you live. Unfortunately I cannot - it is not a pretty town whatsoever. Except for our park which I love but it is not very established so the trees are not large. However, our house in Croatia is a different matter. That is our piece of paradise. An old stone house nestled in thick forest surrounded by olive groves and vineyards and the Adriatic Sea - a far cry from our highly industrialized oil town!

Anyway, I believe I mentioned to you awhile ago that I have been to the Black Hills (saw the Passion Play) and really enjoyed the beauty of the area.

OK folks...sounds like Croatia will be next on the bucket list! Sounds heavenly...... :D

Bartfull....I am in the midst of a move into my new home and it's supposed to happen by end of July so travel right now is not an option BUT there is always next year and I really want to come and see your home. What a great description and I can picture it very well. I like trees...... ;)

love2travel Mentor

OK folks...sounds like Croatia will be next on the bucket list! Sounds heavenly...... :D

Yes, it is heavenly. Almost hard to imagine. Even more difficult to express in words! You will just have to come and see it. My cousin who was born and has lived in Germany his entire life has traveled to over 100 countries and he maintains Croatia is his favourite. :)

Gemini Experienced

Yes, it is heavenly. Almost hard to imagine. Even more difficult to express in words! You will just have to come and see it. My cousin who was born and has lived in Germany his entire life has traveled to over 100 countries and he maintains Croatia is his favourite. :)

Well, if I knew that you and I would be cooking all the food, I'd be happy as anything to come to Croatia! My biggest fear when traveling to out of the way places is getting sick or lack of good food to eat. Not a problem in your kitchen! Bed and breakfast for Celiacs has got to be a HUGE, untapped market!

I should really do this in retirement.......

IrishHeart Veteran
Bed and breakfast for Celiacs has got to be a HUGE, untapped market!

I should really do this in retirement.......

I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.

elleystar Newbie

Maybe one of these days we can get together. There is a really good Indian restaurant in Rapid that is gluten-free and most of their stuff is corn free too. I could meet you there and we can talk about our diets, and our beautiful Hills, and hey - we can even gossip about some of the folks on this forum! (Just joking :lol: )

Yeah, it was heartbreaking when Tonia's burned down, but the one good thing that came out of it is the raised awareness. I just hope that when she is done rebuilding people keep in mind that she ALWAYS needs donations. 90 dogs can go through a lot of food quickly!

So, when our friends come out to visit we can take them to the Needles Highway and to Spearfish Canyon. They are my two favorite places in the world. And some time when you make it down to Hot Springs, you'll have to stop and see me at the music store. I'll even share my lunch if you don't mind eating my lousy cooking!

WaitWHAT? A gluten-free Indian restaurant in Rapid? Do you mean Curry Masala?

bartfull Rising Star

WaitWHAT? A gluten-free Indian restaurant in Rapid? Do you mean Curry Masala?

Yes! A while back there was a "gluten free festival" in Rapid and all of the restaurants that had gluten free menus were there with food. I was rather limited because of the corn intolerance, but I still ate well, and some of my favorites came from Curry Masala.

The festival was wonderful. There were several mini seminars, one with a compounding pharmacist, one on gluten-free kids, one on testing, all kids of informative stuff. I hope they do it again.

Gemini Experienced

I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.

Don't hold your breath....at the rate this economy is going, it's going to be a while before I retire. However, when it happens, you'll be the first to know. Soemone will have to cover the breakfast because I am NOT a morning person. I can cover the wine hour in the afternoon...... ;)

dani nero Community Regular

I am waiting for you to retire so we can do this.

Lawd knows we have enough talent in this group alone to run one, feed them well and entertain them nightly while we all sip our wine....

we have artists, musicians, cooks, bakers....O mama,

we could make a fortune, meet more wonderful celiacs and live happily ever after.

Don't let this just simple chitchat! :-O It sounds like the perfect place for a vacation! You should establish it in Croatia or italy! I would definitely come to it every year!

IrishHeart Veteran

I can cover the wine hour in the afternoon...... ;)

Now see, this is the problem....ALL of you will want the afternoon wine hour shift and I'll be stuck with the breakfast shift. :angry:

I want WINE TOO!!!!!! :lol:

IrishHeart Veteran

Don't let this just simple chitchat! :-O It sounds like the perfect place for a vacation! You should establish it in Croatia or italy! I would definitely come to it every year!

This is where we need LOVE2TRAVEL---she has the place in Croatia!!!!

bartfull Rising Star

I can't drink wine so I could take the breakfast shift - IF I were a morning person. But I can play guitar for you. :)

IrishHeart Veteran

I can't drink wine so I could take the breakfast shift - IF I were a morning person. But I can play guitar for you. :)

That works, honey!!

I KNEW I'd get the breakfast shift anyway. :)

squirmingitch Veteran

Awwwww, that's okay; I'll take the breakfast shift as long as someone else makes the pastries & breads. Then I'll be happy to serve them up as well as cook bacon, eggs, sausage, grits, ham...whatever. As long as the guests don't expect me to make morning chit chat. I tend to be on auto pilot in the morning. Than I'll go take a nap & join y'all for wine later.cool.gif

IrishHeart Veteran

Awwwww, that's okay; I'll take the breakfast shift as long as someone else makes the pastries & breads. Then I'll be happy to serve them up as well as cook bacon, eggs, sausage, grits, ham...whatever. As long as the guests don't expect me to make morning chit chat. I tend to be on auto pilot in the morning. Than I'll go take a nap & join y'all for wine later.cool.gif

AHA!! Now,I'm all set. Here's my breakfast shift partner!

I'll take the pastries and breads, sweetie!

and Lawd knows, I've got the chit-chat. :lol:

I'll be sunning myself in the afternoon and joining you all for wine later, too.

Okay, we have the plan...who has the $$$$$$$$$ and the place?

elleystar Newbie

Yes! A while back there was a "gluten free festival" in Rapid and all of the restaurants that had gluten free menus were there with food. I was rather limited because of the corn intolerance, but I still ate well, and some of my favorites came from Curry Masala.

The festival was wonderful. There were several mini seminars, one with a compounding pharmacist, one on gluten-free kids, one on testing, all kids of informative stuff. I hope they do it again.

Bummed that I missed that!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,203
    • Most Online (within 30 mins)
      7,748

    Milarynn
    Newest Member
    Milarynn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • kopiq
      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
    • kopiq
      Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info.                
    • trents
      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
×
×
  • Create New...