Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Just Called.....

skoki-mom

By skoki-mom
in Coping with Celiac Disease

Recommended Posts

skoki-mom Explorer
skoki-mom
Posted

I had a positive antiendomysial antibody. He told me right after my scope I had classic celiac disease bowel changes. I've been gluten-free for 2 weeks now. He just called me with my pathology and I have complete vilious atrophy. So why do I feel like I've been hit over the head with a 2x4????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AmandaD Community Regular
AmandaD
Posted

I felt the same way...it's because it's such a massive life change, don't you think? (I was just diagnosed this past Tuesday...)

I just went to the grocery store for the first time after my dietary appointment. It took me THREE HOURS TO SHOP with this booklet I was given. I even had to make a call to a manufacturer while I was there...

How old are you? Do you have kids that have it as well?

Anyways - you'll do well...I think I might be feeling better already... :D

I had a positive antiendomysial antibody.  He told me right after my scope I had classic celiac disease bowel changes.  I've been gluten-free for 2 weeks now.  He just called me with my pathology and I have complete vilious atrophy.  So why do I feel like I've been hit over the head with a 2x4????

<{POST_SNAPBACK}>

tarnalberry Community Regular
tarnalberry
Posted

Because it's real, and it's quantified now. You don't know if maybe this is a minor little thing that is transient that hasn't really had a significant effect on your body; you know that you certainly have a serious case of celiac disease and that you must go gluten-free for life and have a lot of intestinal damage to be repaired as you heal. Getting hit with that, no matter what we try to prepare for, is tough. But you have a head start - you're already on the gluten-free diet. That's one small blessing.

SueC Explorer
SueC
Posted

Hi Lori,

I recieved the same news 5 months ago :( and remember the feeling well.... I still have it some days, but it does get easier. Hang in there! This is a great place to find LOTS of answers!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,253
    • Most Online (within 30 mins)
      7,748
    Kari M
    Newest Member
    Kari M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Symptoms after ingesting gluten

      By trents · Posted

      Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.
    • Juliana82
      Symptoms after ingesting gluten

      By Juliana82 · Posted

      Does anyone have bleeding after eating gluten? You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Wheatwacked
      GLUTEN FREE OCD MEDICATION

      By Wheatwacked · Posted

      vitamin D levels in obsessive-compulsive disorder "The number of participants with vitamin D insufficient ... and vitamin D deficiency ... in the OCD group was statistically significantly higher than the control group... and also the number of participants whose vitamin D levels were in the normal range ... in the OCD group was statistically significantly lower than the control group." Low vitamin D iscommon in Celiac Disease patients. Also no lithium in drinking water (bottled water) or in areas with low ground water Lithium contributes to anxiety. Association between naturally occurring lithium in drinking water and suicide rates The EPA calculated a provisional oral reference dose (p-RfD) of 2 μg/kg-day using the Provisional Peer-Reviewed Toxicity Value   https://www.epa.gov/system/files/documents/2023-11/ucmr5-technical-fact-sheet-lithium-in-drinking-water.pdf Should we all take a bit of lithium?! Raising my vitamin D to 80 ng/ml and taking 5 mg a day of Lithium Orotate for a few month helped me.
    • Wheatwacked
      Toddler Diagnosis?

      By Wheatwacked · Posted

      After 3 months without gluten he will have healed and his blood tests will be negative. That does not mean "not celiac, ok to eat wheat, rye and barley again.  It does mean the diet is working.  Many of those recently diagnosed with Celiac Disease are often deficient in vitamin D and other vitamins and minerals.  It's a side effect called Malabsorption.  Get his blood checked for 25(OH)D level to be sure.
    • Wheatwacked
      Celiac Maybe a Possibility?

      By Wheatwacked · Posted

      Yeah, but that's probably not where you want to eat, anyway.
×
×
  • Create New...