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Hi All...am New Here


SensitiveMe

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SensitiveMe Rookie

I am Rose. Only recently came back online after being off for several years. I have been reading on this board for the past two weeks. While offline I also read quite a bit about Celiac Disease and Gluten Intolerance.

A bit over 2 years ago and during a stressful time I suddenly became nauseous and my GI tract went into quivering followed by constant spasming and constipation, episodes of very high blood pressures, my hair becoming very thin, my arms and legs tingling, shortness of breath and I steadily lost weight.

The endoscopy showed erosive gastritis but negative for Celiac Disease. After a blood test in which Digestive Disease Dr. said my IGE was very very high she did further blood work and said I was allergic to wheat and corn and that in time I would heal up. Onto an allergist who said I can't be allergic but an intolerant. I also stopped eating anything with soy quite a few years ago as it was causing me to have constant diarrhea. After quitting soy I started making my own bread using a bread flour with a high gluten content so perhaps that may have contributed toward the problem. I was lactose intolerant since my teens and a test now shows severe lactose intolerance. Whatever the problem since I stopped eating wheat a red raised rash I had for at least 20 years near both elbows has totally disappeared. However I still am in a state of constant GI spasming and constipation.

Am just introducing myself and giving background info. I enjoy visiting the forum here. You seem like a very supportive group of people and with a sense of humor. I'm still waiting for my sense of humor to come back :) and hopefully some of yours will rub off on me. Also looking forward to the recipe section. I recently discovered quinoa and love it and eat it just about everyday.


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T.H. Community Regular

Welcome to the group! Hope you can find some help and answers here. :-)

And yeah, the recipe section has tons of good ideas!

Bubba's Mom Enthusiast

Hello and welcome! I'm so glad gluten-free is helping you. Try probiotics for the intestinal spasms. With regular use you should see some improvement?

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    • ALBANICKAP
      Hi, I'm very frustrated with my problems related to the above.  I find Gluten to be easier than fructose, at times even lactose b/c I love cheese.  I do buy lactose free dairy products but still have problems.  Have recently been adding more bread to bulk up my stools.  Any suggestions for products that might help? Thx. AP  
    • Scott Adams
      Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
    • Celiacandme
      Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
    • Scott Adams
      Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If your biopsy ends up negative you still may want to go gluten-free for a few months to see if your symptoms go away. Also, be sure to eat tons of gluten daily in the 2 weeks leading up to your endoscopy, otherwise you could get false negative results.       
    • Scott Adams
      It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight.
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