Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Enough?


cmom

Recommended Posts

cmom Contributor

Finally got my sons to get the blood tests. I am agitated b/c I specifically stated that I wanted them to have the full celiac panel. When they went to the lab, they also stated they wanted it. Our local hospital sends the blood to a hospital in a larger city to be tested. They DID NOT do the full panel b/c they said the first part of the test did not indicate any celiac so it was not necessary. Here is what Dusty's lab report says (sorry for the length):

"Celiac Disease Panel Reflex to Titer

IMMUNOGLOBULIN A. Serum 162 mg/dL Reference Interval:68-378

Endomysial Antibody,IgA with reflex to titer (00-50734) to follow:

Client Comments:m00067501

LIS#: 20221418/GCH

Endomysial Antibody, IgA with Reflex to Titer

ENDOMYSIAL Ab, IgA Screen None Detected

ENDOMYSIAL Ab, IgA Titer NOT DONE

Because the Endomysial Ab,IgA screen was negative, the Endoymsial Ab IgA titer was not performed.

TEST INFORMATION:Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transglutaminase (tTG) assay. All samples which are positive are titered by IFA. The endomysial antigen has been identified as the protein cross-linking enzym"e known as tissue transglutaminase."

(Darin's report said the same thing except his level was 95 mg/dL) Is this enough info for me to be satisfied that they do not have celiac or should more testing be done to be sure? Thanks so much for your help as this really concerns me. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Well, that's not the full panel. They didn't do the anti-gliandin IgG or IgA. As for the "test not done" bit - I think all that's saying is that because it was negative, they didn't to the test that would give you a number.

Carriefaith Enthusiast
Because the Endomysial Ab,IgA screen was negative, the Endoymsial Ab IgA titer was not performed.

TEST INFORMATION:Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transglutaminase (tTG) assay.

I would request the tissue transglutaminase (tTG) to be done. I'm assuming from the above statement, that it was not done. This test is highly specific for celiac disease and should most definatly be used to test for celiac. If your doctor and lab won't do it, then maybe find someone who will?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Matt13 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Can food allergies like milk and soy flatten villi?

    2. - Rogol72 replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    3. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    4. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    5. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,334
    • Most Online (within 30 mins)
      7,748

    howe
    Newest Member
    howe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
×
×
  • Create New...