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- Wheatwacked replied to Nicbent35's topic in Introduce Yourself / Share Stuff33 year old gluten intolerance?
Hi @Nicbent35, When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration. With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing. In the meantime, though, continue on GFD. Her health is more important than convincing... -
- knitty kitty replied to plumbago's topic in Related Issues & Disorders3Anyone else with very high HDL?
@plumbago, Are you taking any folate with your B12? Folate helps regulate HDL levels. You may try taking a methylfolate supplement with your B12. If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency...- cholesterol
- hdl
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- Nicbent35 replied to Nicbent35's topic in Introduce Yourself / Share Stuff33 year old gluten intolerance?
Thank you for all that helpful info, does that mean it’s not a good idea to do what I’m doing? Or since it’s only been a week should I see if I could get her tested now? Would it show up still since it hasn’t been long if they tested her? -
- trents replied to Nicbent35's topic in Introduce Yourself / Share Stuff33 year old gluten intolerance?
Welcome to the forum, @Nicbent35! There is something called gluten withdrawal that might have come into play here as well. As strange as it might sound, gluten has some addictive properties similar to opiates and some people feel physically and emotionally out of sorts for a few weeks after it is removed from their diet. There are two recognized...- 1
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- plumbago replied to plumbago's topic in Related Issues & Disorders3Anyone else with very high HDL?
Yes, well, that's what we have been told, probably ever since the different types of cholesterol were identified. It's what most of our primary care providers are still telling us, it's what the commercials tell us. But researchers (up until now at any rate) have been learning a great deal about HDL. Nevertheless, the universe of what we still don't know...- cholesterol
- hdl
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By Wheatwacked · Posted
Hi @Nicbent35, When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration. With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing. In the meantime, though, continue on GFD. Her health is more important than convincing a doctor. Bring videos of her behaviors if you can. Even if the blood tests and biopsy prove negative, that is part of the diagnosis process for NCGS and later when she is recovered you can always do a Gluten Challenge. This is an important time in her developement. Celiac Disease causes malabsorption syndrome, leading to malnutrition, regardles of what she eats. Though NCGS may not cause malabsorption, it will affect food choices which can lead to malnutrition. There may be benifits that an official diagnosis may have, but they don't trump a healthy child. Get her healthy, then worry about validation later. Celiac Disease is difficult to diagnosed, especially in children, because doctors look for antibodies in the blood and young children have immature immune systems. Also you don't mention any gastrologic symtoms and celiac disease is traditionally considered gastrolic only. Not true. There are over 200 symptom that celiac disease and the accompaning malnutrion mimics or causes that often causes misdiagnosis and delay in recovery. While at the doctors, ask them about vitamin D deficiency and Iodine deficiency in particular. Milk being the primary source of iodine in the diet, but concerns exist regarding the lower iodine content in organic milk and reduced milk consumption in certain demographics. Vitamin D deficiency is 40% of the industrialized population and a recent study in the Great Britain showed a wopping 60%, beaten only by some areas of Canada at 70%. And B1, B2, B3, B5 and B6. Deficiencies in these are common in untreated Celiac Disease and they affect energy production. Are You Confused About Your Celiac Disease Lab Results? -
By knitty kitty · Posted
@plumbago, Are you taking any folate with your B12? Folate helps regulate HDL levels. You may try taking a methylfolate supplement with your B12. If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency despite supplementing, resulting in HDL levels not getting regulated, but running high or low. Pushing the envelope in explanations, too. -
Thank you for all that helpful info, does that mean it’s not a good idea to do what I’m doing? Or since it’s only been a week should I see if I could get her tested now? Would it show up still since it hasn’t been long if they tested her?
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Welcome to the forum, @Nicbent35! There is something called gluten withdrawal that might have come into play here as well. As strange as it might sound, gluten has some addictive properties similar to opiates and some people feel physically and emotionally out of sorts for a few weeks after it is removed from their diet. There are two recognized gluten disorders, celiac disease (aka, "gluten intolerance") and Non Celiac Gluten Sensitivity (aka, NCGS or just "gluten sensitivity" for short). They have symptoms that overlap. The difference is that celiac disease is an autoimmune condition that causes inflammation in the small bowel lining and, over time, damages the lining of the small bowel. There are specialized blood antibody tests that have been developed for diagnosing celiac disease. NCGS, on the other hand, does not damage the lining of the small bowel. No tests are yet available for NCGS. Celiac disease must first be ruled out in order to arrive at a diagnosis of NCGS but NCGS is 10x more common than celiac disease. Please be aware that if your daughter is on a gluten free diet, the celiac disease blood antibody tests will not give valid results. For the testing to be valid, she would need to have been eating normal amounts of gluten for weeks/months leading up to the day of the blood draw. If you remove gluten from her diet as an experiment, valid testing can be done later on but she would need to be restarted on gluten for weeks/months ahead of the blood draw. Also be aware that once on a gluten free diet, restarting gluten can produce more severe symptoms because all tolerance may have been lost.
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Yes, well, that's what we have been told, probably ever since the different types of cholesterol were identified. It's what most of our primary care providers are still telling us, it's what the commercials tell us. But researchers (up until now at any rate) have been learning a great deal about HDL. Nevertheless, the universe of what we still don't know about HDL is vast. And since I can sustain only a 35% level of understanding when I hear lectures on HDL, I will have to nutshell my layperson's understanding, which is that at this time, it's possible or likely that HDL-C levels are best understood as U-shaped, that there's a sweet spot right there in the dip of the "U" and anything before or after is not ideal. This is why I said what I did earlier about the "good" and the "bad" being oversimplifications. The research has long since moved on. There's a lot of talk about how the focus should be on functionality, that you want to make sure that all that HDL is performing how it should be. And now, that's it, I've exhausted my ability to explain my understanding of HDL!
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