Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Home Testing Kits For Celiac?


JenniBea

Recommended Posts

JenniBea Newbie

So I have being feeling a little rubbish (like death!!) recently, and after comparing my list of symptoms with those of celiac disease sufferers, I decided to buy a home-testing kit and I got a positive result. I have done a blood test at the doctors, but am still waiting for results. Also, I am going for an endoscopy in two weeks. I was just wondering, how reliable do you guys think these testing kits are? Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JaneWhoLovesRain Enthusiast

So I have being feeling a little rubbish (like death!!) recently, and after comparing my list of symptoms with those of celiac disease sufferers, I decided to buy a home-testing kit and I got a positive result. I have done a blood test at the doctors, but am still waiting for results. Also, I am going for an endoscopy in two weeks. I was just wondering, how reliable do you guys think these testing kits are? Thanks in advance!

Jenni - what is the home testing kit? I've never heard of it but sounds like something I would like to try (since no doctor believes I have celiac.) Is it something for which you have to eat gluten in order for it to work right?

Jane

JenniBea Newbie

Hi Jane! It is called a 'bio-card', which works in a similar way to a pregnancy test, but instead of pee, you take blood from your finger with a small device provided with the pack. You prick your finger, and that goes is the designated window on the card, then add a diluting solution, also provided, and watch the test window. Takes 10 minutes, doesn't hurt, and confirmed to myself that I wasn't imagining things. It tests for IgA an IgG in your blood, which only appear in your blood if you have been taking gluten. So I guess you have to suck it up ad get some toast!! Always a down-side, eh?! But they do have high claims of accuracy.

They sell for around

VydorScope Proficient

Intersting... does not look like it is sold in America though... anyone know how accurate it is?

nvsmom Community Regular

I just took the Ani Biotech Biocard Celiac test (by 2G Pharma Inc.) this weekend and it gave me a positive result too :unsure: ... I just joined the forum to ask about this. I've got a doctor appointment tomorrow and then (probably) blood tests early next week so I imagine that I'll know how accurate it is by... July?

I'm in Canada. The company is out of Finland. The test has been endorsed by Health Canada and the Canadian Celiac association so Canadians seem to think it's a good indicator of Celiac, although the test says an "The only confirmatory test for celiac disease is a small intestinal biopsy".... sigh.

Nicole

MrsMcC Rookie

Hi, I am in the UK too and have seen these online, but don't know if somewhere like Boots sells them over the counter? Seriously thinking of getting one.

I had a really good appointment with my Consultant yesterday. He agrees that because all the tests so far have come back ok (abdo scan, endoscopy - although was not looking for Celiac damage as we hadnt even thought about it when they did the endoscopy!!)

He said there is a very good chance of Celiac, but if the test comes back negative has said I definitely have a gluten intolerance and should go Gluten Free after the bloods are done anyway.

He is writing to my family doctor to ask for them to do full Celiac screen, but I may have to wait 2 weeks.... I just want to start feeling better and I felt a huge improvement after 10 days going gluten free, but of course am now eating the evil stuff and feel like poo again!

It was so nice talking to a doctor who didnt think I am crazy or a hypochondriac, which is how I felt!

VydorScope Proficient

Anyone know of an American store I can get this from? I would like to try it before my son goes to long gluten-free for it to matter and ordering from UK/etc will just take to long in shipping. I am not putting my son back on gluten for this, but do want to try it. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Malisa1 Newbie

Intersting... does not look like it is sold in America though... anyone know how accurate it is?

You can buy it from an online Canadian pharmacy because the US doesn't have an equivalent home test. I suggest that you squeeze the tip of your finger, though, so a lot of blood will collect there. I did not and couldn't squeeze out enough blood to save my life. Just an FYI

VydorScope Proficient

You can buy it from an online Canadian pharmacy because the US doesn't have an equivalent home test. I suggest that you squeeze the tip of your finger, though, so a lot of blood will collect there. I did not and couldn't squeeze out enough blood to save my life. Just an FYI

Do you know of a respectable one I could order from?

nvsmom Community Regular

Do you know of a respectable one I could order from?

Health Canada and the Canadian Celiac Association both endorse the Ani Biotech Biocard Celiac test (by 2G Pharma Inc.). It's the test that I took and got a positive tTg test on (I only squeezed out about 75% of the blood needed for the test too). I have also taken a blood test (in a lab) but I haven't got my results back yet so i can't personnally attest to it's reliability yet.

Anyway, if you google that product you might find results. I bought mine from Amaranth Whole Foods Market but I have no idea if they would ship one down there.

Nicole S

Skylark Collaborator

You order a Celiacsure home kit from here. They will ship to individuals in the US. It is a TTG test with the same risk of false negatives as any TTG blood test.

Open Original Shared Link

  • 1 month later...
Will29 Rookie

I just took this and got a negative, I have been gluten free for two weeks but have been eating gluten since last night (and think I accidentally did a few times in the two weeks). Should the test be accurate if I have been eating it since last night, or was I too quick, do I still need to wait two weeks, or can I say it's intolerance now not celiac?

Skylark Collaborator

I just took this and got a negative, I have been gluten free for two weeks but have been eating gluten since last night (and think I accidentally did a few times in the two weeks). Should the test be accurate if I have been eating it since last night, or was I too quick, do I still need to wait two weeks, or can I say it's intolerance now not celiac?

The home tests are better for finding celiac than for ruling it out. TTG tests are 80% accurate. There is still a 20% chance that you are celiac so no, you shouldn't assume you are intolerant.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,112
    • Most Online (within 30 mins)
      7,748

    cam4180
    Newest Member
    cam4180
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StaciField
      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...