Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Visual Disturbances: Micropsia / Macropsia


revenant

Recommended Posts

revenant Enthusiast

without a doubt the scariest part of my gluten reaction is the perceptional disturbances that occur. It is a feeling that is hard to explain without the use of this original Alice in Wonderland picture

300px-Alice_par_John_Tenniel_11.png

"Micropsia is a condition affecting human visual perception in which objects are perceived to be smaller than they actually are. Micropsia can be caused by either optical distortion of images in the eye (as by glasses or certain ocular conditions) or by a neurological dysfunction. The condition of micropsia can be caused by more factors than any other visual distortion.[1]

Factors known to cause micropsia include traumatic brain injury, swelling of the cornea, epilepsy, migraines, prescription and illicit drug use, retinal edema, macular degeneration, central serous chorioretinopathy, brain lesions, and psychological factors. Dissociative phenomena are linked with micropsia, which may be the result of brain lateralization disturbance.[2]

Related visual distortion conditions include macropsia, a less common condition with the reverse effect, and Alice in Wonderland Syndrome, a condition that has symptoms that can include both micropsia and macropsia."

Macropsia is objects and your own body feel bigger than they actually are.

One more "condition" (Aka, symptom) is a more combined form of perception distortion called Alice in Wonderland syndrome.

" The Alice in Wonderland syndrome is a result of change in perception as opposed to the eyes themselves malfunctioning. The hallmark sign of AIWS is a migraine (AIWS may in part be caused by the migraine).AIWS affects the sufferer's sense of vision, sensation, touch, and hearing, as well as one's own body image.

The most prominent and often most disturbing symptom is that of altered body image: the sufferer will find that he/she is confused as to the size and shape of parts of (or all of) his/her body.

The eyes themselves are normal, but the sufferer 'sees' objects with the wrong size or shape or finds that perspective is incorrect. This can mean that people, cars, buildings, etc., look smaller or larger than they should be, or that distances look incorrect; for example a corridor may appear to be very long, or the ground may appear too close.

Similar to the lack of spatial perspective, the sufferer also loses a sense of time. That is, time seems to pass very slowly, akin to an LSD experience. The lack of time, and space, perspective thus leads to a distorted sense of velocity, since one is missing the two most important parts of the equation. For example, one could be inching along ever so slowly in reality, yet it would seem as if one were sprinting uncontrollably along a moving walkway, leading to severe, overwhelming disorientation. This can then cause the sufferer to feel as if movement, even within their own home, is futile."

I remember when I was a child I have have attacks of these. In general I had this feeling all of the time at a lower level and it would cause me to be what people call "clumsy" (running into walls, tripping, no balance, whatever), but the times when I would have attacks things would be greatly distorted and I would feel like that alice in wonderland pictures, and I would feel like I can't breath because my body is being pushed against the ceiling and time would seemingly just cease to move as well. There were other times when I would feel like I am running at full speed but going nowhere, while I'm perfectly still. Along with it comes a sense of panic, helplessness, being unable to escape.

I find it extremely hard to look at that because it reminds me of those scary moments.

How common is this, because I have found it to be directly related to gluten (I am guessing brain swelling) because my mom and I both have it only when we eat gluten, and sometimes other allergens. Whatever this is made me a very fearful child and my childhood seems kind of night-marish, I'm really glad that I'm able to look on it and see now that it's totally controllable and abnormal and that I don't have to live in "Warp World" ever again :) And most others don't either, i'm guessing!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kirily Newbie

Oh wow! I have never heard of this before at all! Thank you for posting about it. I'm afraid I definitely can't offer anything useful, but l really hope you find some helpful answers too.

Link to comment
Share on other sites
cavernio Enthusiast

Wow, that's freaky and must have been terrifying, but also fascinating! (I was on my way to being a cognitive psychology professor before my mental and physical health declined from what I now know is celiac disease.) I have never heard of things like this before beyond, as you've said LSD/other hallucinogens or brain damage, so I'm guessing it's not very common.

However I suppose it's possible that some things diagnosed as schizophrenia where people have similar symptoms exist and they have no idea it could be due to gluten. Certainly many things that we now know as toxic in large amounts, like lead and aluminum, can make people 'crazy'. Mental illnesses have all sorts of categorizations that seem half arbitrary/don't fit well, and mentall illnesses themselves are very common.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,759
    • Most Online (within 30 mins)
      7,748

    James Yates
    Newest Member
    James Yates
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • julie falco
    • Dhruv
      @trents I absolutely understand the perspective of getting off completely from wheat,  but sometimes situation may occur that you won't have choice to eat other than wheat,  my son travels a lot, since they travel in team, it's not easy to go out and find him a gluten free every single time! I have seen, even in NJ I m struggling to find out gluten free stuff, in this country we don't get fresh food in stores, other day i saw gluten free bread so hard that will never feel to eat it! Once in while means once in a while, when there is no absolute option. Here all goes by book, there is no enough scientific research done yet on eating gluten with celiac,  everyone has there own narrative,  only it being said don't eat wheat, but Noone has come up with the experience. And moreover my sons diagnosis is yet to define, whether he has celiac or NCGS. last time his endoscopy came negative hence doctor did not bother to tell us. I hope this time it will be the same case. We are figuring out why his billirubin is high, may be that could be the reason his igg iga test is high, will get check on all and come to the conclusion. My son and us is absolutely fine not eating gluten, but one can't guarantee that every time they will get the gluten free food other than home. I also don't trust under the table of "gluten free products" have see people still have same iga igg count even after following the diet. This is all learnings, will keep him under observation and go through the regular testing to find out how his body reacts to what.  I may sound like a fool, but medical is scam in US, hence i would consult doctors in India. 14 years ago they have announced i had a breast cancer, which was not, since then I don't trust medical system here.
    • Scott Adams
      Here are two older articles we've done on this topic which might be helpful:  
    • Rogol72
      I've been to Italy recently for a wedding and it was excellent. I made my own gluten-free sandwiches/pannini to take on the flights.  Spain is good and you can get good gluten-free breads in the supermarkets there. The UK and Ireland are very good also. Australia would be good since Coeliac Disease is fairly common there ...1 in 70 as opposed to 1 in 100 in other countries. You have to advocate for yourself in restaurants when eating out. I've read about several Coeliacs being cross contaminated from preordered gluten-free meals on airlines. Personally, I wouldn't trust a gluten-free meal on an airline especially long haul. Try the hashtag celiactravel on tiktok and instagram. Loads of Coeliacs posting about their experiences with plenty travel tips. The Atly app has a list of gluten-free friendly restaurants worldwide.
    • Pat Denman
      "Do not follow after the crowd to do what is bad." Bible. The world is full of crazy people who have little love for their neighbor. Eat what is best for you and ignore their recommendations. 
×
×
  • Create New...