Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten In Other "gluten-free" Grains?


otnemem

Recommended Posts

otnemem Rookie

I came across this, from a certain store's preface to their gluten-free list:

"Some gluten sensitive individuals can tolerate buckwheat, millet, amaranth, quinoa, teff, and/or sorghum. Because of the individuality of tolerance, this list does not include foods containing these foods. You should try them, one at a time only after your strict gluten free diet has eliminated all gluten-related symptoms, and only if your doctor approves. If you add any of these to your diet, observe carefully for obvious as well as subtle symptoms of intolerances."

Is this true? Because I've been doing pretty well and am having major issues today after eating a bunch of home-baked amaranth pumpkin muffins last night and this morning. All ingredients were gluten-free, and so I was really confused as to why I'm feeling sick. Anyone have any info about this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I've been told that not a lot is known about some of these other flours and to use them with caution. I eat buckwheat with no problems.

kabowman Explorer

I have problems with gluten-free foods if I eat too much of one thing. One or two I can handle, half a pan of brownies will make me sick for days. Even when all the products in the brownies are perfectly safe for me to eat.

The lesson, don't overdo and don't wait too long to satisfy your sweet tooth!!!!

Rachel--24 Collaborator

I tried buckwheat flour and had a major reaction. It was right before I went gluten-free so I hadnt even begun healing yet. I'm scared to try any of the flours now. Maybe when all my symptoms are gone and I'm feeling 100% I'll give it another try.

Carriefaith Enthusiast
I tried buckwheat flour and had a major reaction.
Sometimes buckwheat flour is mixed in with wheat flour, which may have been the cause of your reaction. 100% buckwheat flour is gluten-free.
Rachel--24 Collaborator
Sometimes buckwheat flour is mixed in with wheat flour, which may have been the cause of your reaction. 100% buckwheat flour is gluten-free.

<{POST_SNAPBACK}>

Carrie,

It was Bob's Red Mill...suppossed to be gluten-free and processed in a room away from the gluten flours....I suppose it could still be contaminated or I'm just hyper-sensitive...who knows. <_<

Bette Explorer

Yeah I just recently had a problem with buckwheat see :

Open Original Shared Link

At this point I am not sure if I am sensitive to buckwheat or the Arrowhead Mills flour is contaminated??? Since it affected both me and my daughter I think the flour might be cross contaminated. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nevadan Contributor

Did your muffins happen to contain butter or other casein/lactose ingredients? I found that I am also sensitive to these as well as gluten, and I hear this is pretty common at least at first after going gluten-free. Two or three gluten-free choc chip cookies made with butter are enough to set off my symptoms.

George

Claire Collaborator
I tried buckwheat flour and had a major reaction. It was right before I went gluten-free so I hadnt even begun healing yet. I'm scared to try any of the flours now. Maybe when all my symptoms are gone and I'm feeling 100% I'll give it another try.

<{POST_SNAPBACK}>

Hello Rachel - strange that you had a reaction to buckwheat as it is not a grain - not even in the grass family. It is a berry. You could just be allergic to it. Certainly it has no gluten. Claire

Rachel--24 Collaborator
Hello Rachel - strange that you had a reaction to buckwheat as it is not a grain - not even in the grass family. It is a berry. You could just be allergic to it. Certainly it has no gluten.  Claire

<{POST_SNAPBACK}>

Yeah...I know it doesnt contain gluten. Its just processed in a facility where gluten containing flours are processed as well...so buckwheat CAN be contaminated with gluten even though it doesn't naturally contain gluten.

Bette Explorer

Yeah Rachel,

I have to agree, depending on what brand, as I found out it can be contaminated with other flours, unless it is a100 percent dedicated line.

I loved the pancakes, so if you come across a buckwheat flour without the risk of cross contamination let me know ;)

Bette

Japsnoet Explorer

I’m on a rotation diet and I eat buckwheat, millet, amaranth, quinoa, sorghum and rice without any trouble. I think what often happens is that your systems is very sensitive when you can’t eat gluten and that it easily gets irritated. In my case it is. By eating a variety I believe on can prevent building up an allergy against a grain. That is the only way I have been able to keep my intolerance and allergies under control. So far in Australia they are very strict when a product states it is gluten free, no trace of gluten is allowed. I have not had any problem with cross contamination in any of the above products. Our food labelling laws are very strict, but a real lifesaver if you have food intolerances. :rolleyes:

Bonnie Explorer

I had a problem with buckwheat when I first when gluten-free. Now 5 months down the line I am absolutely fine with it - the flour and puffed cereal. Perhaps you just need more time to heal?

Japsnoet, just had to say, I followed your advice and not only baked bread with Sorghum and Maize Meal (with success) but I tried quinoa. Quinoa is probably the best thing I have found on this diet! :lol: It is so tasty and I am using it instead of rice (as I am intolerant). Just wanted to say thanks!

Yvonne

Carriefaith Enthusiast
Carrie,

It was Bob's Red Mill...suppossed to be gluten-free and processed in a room away from the gluten flours....I suppose it could still be contaminated or I'm just hyper-sensitive...who knows.

My worst gluten reaction ever (over two weeks and the worst stomach pain) was after eating a bagged salad with Bob's Red Mill flaxseed. It was the first time that I had the flaxseed. I have been terrified of both products ever since... I think that it is interesting that you had a reaction after eating a Bob's Red Mill product too, which makes me wonder if it is contaminated <_<

Kasey'sMom Enthusiast

Carriefaith,

Hummm my dd hasn't had flax seed in a while because she kept reacting to it. I though maybe she was allergic to flax. The brand of flas was Bob's Red Mill. I read a post that some of their products are done in a dedicated area and some are not. Does anyone know for sure about Bob's?

Thanks! :)

Carriefaith Enthusiast
Carriefaith,

Hummm my dd hasn't had flax seed in a while because she kept reacting to it. I though maybe she was allergic to flax. The brand of flas was Bob's Red Mill. I read a post that some of their products are done in a dedicated area and some are not. Does anyone know for sure about Bob's?

I almost wonder if some of their stuff is contaminated... If no one knows for sure, I think I may contact the company and ask, since some of us are getring sick from it. I would sure like to know! But in the meantime, I am avoiding all of their products.

Has anyone else had problems with Bob's Red Mill?

Rachel--24 Collaborator
I almost wonder if some of their stuff is contaminated... If no one knows for sure, I think I may contact the company and ask, since some of us are getring sick from it. I would sure like to know! But in the meantime, I am avoiding all of their products.

Has anyone else had problems with Bob's Red Mill?

<{POST_SNAPBACK}>

From what I understand they have a dedicated line for the gluten-free products and they are in a seperate room from the other flours. I remember someone posting that they knew someone who had toured the facility and said that flour was flying around everywhere and contamination seemed likely. <_< I never reacted to the flaxmeal I used but the buckwheat flour got me bad.

Carriefaith Enthusiast
I remember someone posting that they knew someone who had toured the facility and said that flour was flying around everywhere and contamination seemed likely.
ooo that doesn't sound good <_<

I found this on their website:

"Bob’s Red Mill stone grinds flours in a dedicated room for the production of its gluten-free line and performs batch testing before processing and after packaging. The company adheres to the Codex Alimentarius standard – the international gluten-free food standard for manufacturers. While the current Codex gluten-free standard specifies a gluten limit of 200 parts per million (ppm), Bob’s Red Mill’s gluten-free products consistently fall below 20 ppm."

So.. from reading that, it seems like their gluten free products can contain very small amounts of gluten.

Rachel--24 Collaborator

I think if there is some contamination...its very small. Maybe after I'm healed I wouldn't notice it?? When I tried buckwheat I wasn't "officially" on the gluten-free diet but had eliminated all grains....my system was extremely sensitive at that time but I didn't know I had gluten intlerance yet. Maybe a tiny bit just set me off or maybe I was just reacting to a new grain being introduced into my very messed up and sensitive digestive system. :huh:

skbird Contributor

Carrie - do you have any problem with citric acid? I can't eat most of the bagged salads as they are washed in a veggie rinse with citric acid (not listed on the label, BTW, but from experience I know which brands are ok now). I get gastro symptoms as well as migraine and some other reactions, too. My local Outback restaurant uses the stuff, too.

Additionally, is there any chance the bagged salad manufacturer also bags salads with croutons? Some of the brands I've seen locally will have a little packet inside with croutons, maybe this particular salad didn't have those but others processed could, could be cross-contamination there?

I haven't had any problems with flax, personally, so can't speak to that.

Stephanie

Carriefaith Enthusiast
Carrie - do you have any problem with citric acid?
I don't think so, but I don't think I've been tested for an allergy to it.

Additionally, is there any chance the bagged salad manufacturer also bags salads with croutons? Some of the brands I've seen locally will have a little packet inside with croutons, maybe this particular salad didn't have those but others processed could, could be cross-contamination there?

I used to eat these salads all the time with no problems except the time that I had that flax seed on it. I don't think any of the salads have croutons (I will look into it). That is why I though it my have been the flax seed that was contaminated. I am super sensitive to gluten since I also have a wheat allegy, so the smallest tiniest bit of gluten really bothers me.

Bette Explorer

Regarding the Arrowhead Mills Buckwheat flour:

I contacted Arrowhead Mills and this was their response :

Thank you for taking the time to contact us regarding our Buckwheat Flour. We strive to maintain the highest quality products and appreciate your patronage.

The Buckwheat flour is wheat and gluten free. The items which bear the label "gluten free" or "made with gluten free ingredients" are formulated and tested to be gluten free (below the detectable limit of 10ppm).

The Hain Celestial Group's labeling declares major allergens (peanuts, soybeans, milk, eggs, fish, crustaceans, tree nuts, and wheat) and we follow the U.S. FDA's regulations. In addition, our labeling always declares gluten containing ingredients. We recognize the serious nature of the allergen issue and we strive to minimize risk.

Both major and minor ingredients of all products, as well as all processing procedures and equipment, are closely scrutinized and all potential allergen issues as determined by the Hain Celestial Group are declared on our labeling.

We assure you, the consumer, that strict manufacturing processes and procedures are in place and that each manufacturing facility has active allergen control programs.

Thank you for your continued support of The Hain Celestial Group. If we can be of further assistance, please feel free to contact us at 1-800-434-4246, Monday through Friday from 7AM - 5PM Mountain Time.

Sincerely,

George

Consumer Relations

Ref # 1118426

So now I am really confused. Maybe it is an allergic reaction, but it affected both me and my daughter so that's a little strange that we both are allergic. By the other post it sounds like Bob's Red Mills can cause problems too, although I have used their flax seed for a couple of years now and have not had a problem

.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,249
    • Most Online (within 30 mins)
      7,748

    Diane Hemp
    Newest Member
    Diane Hemp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      There are thirteen essential vitamins:  eight B vitamins, four fat soluble vitamins, and Vitamin C.  They all work together.   If you are deficient in one, you are probably low in the other dozen.  Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well.  Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine B6 to function properly.  Pyridoxine B6 needs Riboflavin B2.  Vitamin C is needed to interact with B12 as well.  Thiamine B1 and Niacin B3 are also needed to provide the energy for these vitamins to function properly.  If one is also low in Folate and Pyridoxine, B12 Cobalamine is not going to be able to function properly and the body doesn't bother to absorb it.   Vitamin D is safe even in high doses.  Vitamin D3 should be supplemented.  Vitamin D2 is not as well utilized because it's synthetic, not a form the body can utilize easily.  Vitamin D must be activated by Thiamine Vitamin B1.  Insufficient Thiamine B1 will make one feel "dopey".  Thiamine is needed for brain function.  The brain uses as much energy just thinking as your muscles do while running a marathon.   Multivitamins do not contain sufficient amounts of essential vitamins to correct nutritional deficiencies.  Supplementing with ALL eight B vitamins, extra Thiamine (don't use the form thiamine mononitrate because it's not absorbed nor utilized well), Vitamin C and the four fat soluble vitamins will be more beneficial than just supplementing one or two vitamins by themselves. With sufficient amounts of essential vitamins, the immune system gets regulated and becomes less reactive to other things like pollen, molds and animal dander.  Sleep apnea is frequently found in Thiamine insufficiency.  The eight essential B vitamins are water soluble and easily excreted if not needed.  The B vitamins all work together.  Supplement them together. Thiamine deficiency disorders: a clinical perspective https://pubmed.ncbi.nlm.nih.gov/33305487/  
    • Jane07
      i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give?
    • Michelle Amirault-Packard
      He should definitely have his vitamin D and Vitamin B12 checked.  I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But  I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a wasn’t Anemic and the normal protocol is , if you are not Anemic they don’t test for B-12.  She had no problem doing the test for me and it came back super super deficient . So I was given a shot of B12 once a week for 4 weeks and I give myself 1 shot intramuscular once a month now for 18 years. Once your B12 is low it can take a long time to bring it back up and sustain it. I think it took about 6 months to get a decent number and about a year to get it right. I do get my Vitamin D checked but not yearly more like every other year because it is a more expensive test and I tend to always be low. I do take a vitamin D supplement but I would talk to your doctor before taking a supplement to make sure you don’t take too much especially if you are already taking a multivitamin. Because too much D can also have some bad side effects.  Celiacs tend to be able to take a higher dose due to our digestive and malabsorption issues but always talk to your doctor before taking. Other things could be making him feel extremely tired  like new allergies like pollens, animals, molds etc.. sleep apnea is a huge one( cause extreme fatigue) and some medications. Just other things he can have checked! Good luck 
    • knitty kitty
      I suggest you eliminate dairy from your son's diet next.  Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments.   Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products.  Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten.   Do research in Dr. Derrick Lonsdale and TTFD thiamine.  Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress!
    • Scott Adams
      It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...