Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Upside To Celiac


fisharefriendsnotfood

Recommended Posts

fisharefriendsnotfood Apprentice

I've been thinking, and I realize that being Celiac means we are very aware about what we eat. Like, we know every ingredient of every food item that enters our mouths. Here's a short story:

Me and two of my really, really good friends were at Baskin Robbins for ice cream. I got mint chocolate chip in a cup, obviously (mmmm...), my other friend got the same in a cone, and the other friend got chocolate chip cookie dough in a cone. We get out ice cream, and my friend who I'll call J for the purpose of this story, offers me a lick of her chocolate chip cookie dough ice cream. (By the way, she knows very well that I'm Celiac.)

J: Want some?

Me: Um, no thanks.

Other friend: She can't eat that!

J: Uh, why not?

Other friend: She's allergic to wheat! (lol that's what they think Celiac is... my oh my)

J: So?

Other friend: So, she can't eat chocolate chip COOKIE DOUGH ice cream, you idiot!

J: Why not?

Me: What do you think cookie dough is made of???

J: Cookie dough has wheat in it?

Me & Other friend: Yes!!!

J: Oh. Who knew? Sorry.

Yes, my friend isn't too bright about things like that.

So I was thinking, I was the only ten year old kid who knew what maltodextrin and wheat protein is. No one else knows what they're putting into their bodies. They don't even care or have a clue! I think I'm very lucky to have all this knowledge. Plus, I find food and how the body, especially the digestive system, works now.

Thanks for reading this long story!

Jackie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Jackie,

I read your story and have to tell you until the end, I thought the friends were my age. (30 something) I have conversations like that all the time. You are right when you say you are better educated because of your Celiac diagnoses.

Laura

fisharefriendsnotfood Apprentice
Jackie,

I read your story and have to tell you until the end, I thought the friends were my age. (30 something)  I have conversations like that all the time.  You are right when you say you are better educated because of your Celiac diagnoses.

Laura

<{POST_SNAPBACK}>

Oh, I'm not ten years old! I'm fourteen! Sorry about the confusion.

  • 2 weeks later...
Guest BellyTimber

I agree absolutely about this blessing

skoki-mom Explorer

I actually had a very well educated person say to me "pasta's got wheat in it?? :blink:

frenchiemama Collaborator

It's amazing how clueless some people are. I mean, even before I was diagnosed, I certainly knew that things like bread, pasta and cookie dough had wheat in them. But I'm constantly astounded by the number of people who don't seem to know anything about their food at all. What exactly do they think the stuff is made of??

PreOptMegs Explorer

If I had a dollar from every person who didn't know that "white flour" had wheat in it..............


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
If I had a dollar from every person who didn't know that "white flour" had wheat in it..............

<{POST_SNAPBACK}>

This thread makes me laugh at all the times I've had to educate people about what has flour/gluten in it. My office is right off of the kitchen. Several ladies will go next door to the grocery store (we're in a strip mall) and come back with lots of goodies (?) Like cookie dough ice cream AND cookies! They'll offer me one, and I'll say no I can't have that, then they'll offer me the other! Hello!! cookie dough and cookies have exactly the same ingredients! or offer crackers or something else and always surprised that they contain wheat. I can't get mad or anything, they are being generous, even if I can't eat what's being offered.

Rachel--24 Collaborator
  Several ladies will go next door to the grocery store (we're in a strip mall) and come back with lots of goodies (?)  Like cookie dough ice cream AND cookies!  They'll offer me one, and I'll say no I can't have that, then they'll offer me the other!  Hello!! cookie dough and cookies have exactly the same ingredients!

<{POST_SNAPBACK}>

:lol::lol: That made me laugh!!!!

Funny thing is if I never had to learn about this diet I would probably be one of those people who says "pasta has wheat?" :ph34r:

I don't think I had ever read a food ingredient label in my life.

Nicolette Rookie

I had something similar to this just yesterday. My in-laws came to visit us and we live on an island on the south coast of the UK, so its a popular holiday place and for those of you who don't know, in England, fish and chips out of paper is quite a favourite here.

Well, my mother-in-law, a very educated lady and quite a cook, said "let's all have fish and chips for lunch"

I said, I can't, because of the fish being coated with flour before it's put in batter and fried.

So she said, "oh, well just have the chips then."

HELLO?

I then had to explain that the fish was fried in the same oil as the chips and i really didn't fancy doing that at all. Next, my father-in-law, also an educated man who ran his own business for many years said to me, "so, this coeliacs thing, I guess it's okay for you to have a little bit of gluten, isn't it? You know, like diabetics can have alittle bit of sugar"

I just stared for a moment. I just didn't know what to say. Eventually, I replied about it being totally different and tried to go into detail, but i could tell they just didn't get it.

It's quite sad really. <_<

Guest GITRDONE

I totally agree, people don't think before they open there mouths.

When people tell me that a ccrumb can't hurt you. I now reply that that crumb will make me vomit like you would if you had the flu and its not a 24 hour flu its more like a 10 day flu. If they don't get that then I start in on the deterating intestinal linning caused by that crumb.

Anyway along the same note. My neighbors grand kids came over (4 & 6) to my place with their parents. And the parents told the kids "that is where you Macdonold hamburgers come from and the milk for your cereal, while pointing at my steer. :lol::lol: Then they went to pig pen and told them this where bacon comes from. These poor city kids didn't have clue and the parents weren't much better.

I think we are genius's compared to most people when it comes to food. But I also know that I'm eating much better then most.

Susan

fisharefriendsnotfood Apprentice

Today I went to a friend's birthday party and when I told them about Celiac when they saw I wasn't eating pizza, one asked if I could have whole wheat bread.

WHOLE WHEAT!!!

Oh my goodness. But this isn't very fair, since she isn't the smartest.

-Jackie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

    2. - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

    3. - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

    4. - Scott Adams replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    5. - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,570
    • Most Online (within 30 mins)
      7,748

    Chanty
    Newest Member
    Chanty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
    • Scott Adams
      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from casein sensitivity. IgG food panels, including yeast, are generally considered markers of exposure rather than proof of clinical intolerance. Aged cheeses like Irish cheddar are typically gluten-free, though they do contain casein and natural cultures. If symptoms are strong and repeatable, it may be worth working with a gastroenterologist or allergist to sort out true allergies, intolerances, or other GI conditions rather than assuming multiple cross-reactive immune triggers.
    • Scott Adams
      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are typically bound with food-grade binders, and if any starch were used in manufacturing, it would not remain in the finished water at measurable or biologically active levels. Plain water itself does not contain protein, and gluten is a protein. Major beverage companies also have strict allergen control programs, and gluten would need to be declared if intentionally added. If symptoms are occurring consistently after certain products, it may be worth discussing with a physician to explore other potential triggers, but at this time distilled water is not considered medically necessary for people with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.