Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had My 2 Kids Tested Today


skoki-mom

Recommended Posts

skoki-mom Explorer

What a harrowing experience, yikes! Well, even though they were totally freaking out about getting blood work, it's nice to know you have healthy kids who have no idea what blood work is! Should be about 2 weeks now until I know the results. My 5 year old displays some symptoms, my 7 year old displays none. My sister and I both have Celiac, so part of me is prepared for at least one of them to be affected, although of course I am hoping both of them are fine. Their dad and I just split up over the summer, so I am sort of hoping my 5 year old's tummy aches might just be stress related and not Celiac. However, I just really need to know one way or the other, and so do they. They had both the anti-endomysial and the transglutimase (did I get that right??) done so we should have some pretty conclusive results. I sure hope they don't have to deal with this!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AmandaD Community Regular

I think you were smart to do that. I have a 5, 3 and 1 year old and am contemplating having them tested soon. I was just diagnosed myself last week. NOne of them really have any classic symptoms....My doctor told me the ttg test is incredibly accurate.

What a harrowing experience, yikes!  Well, even though they were totally freaking out about getting blood work, it's nice to know you have healthy kids who have no idea what blood work is!  Should be about 2 weeks now until I know the results.  My 5 year old displays some symptoms, my 7 year old displays none.  My sister and I both have Celiac, so part of me is prepared for at least one of them to be affected, although of course I am hoping both of them are fine.  Their dad and I just split up over the summer, so I am sort of hoping my 5 year old's tummy aches might just be stress related and not Celiac.  However, I just really need to know one way or the other, and so do they.  They had both the anti-endomysial and the transglutimase (did I get that right??) done so we should have some pretty conclusive results.  I sure hope they don't have to deal with this!

<{POST_SNAPBACK}>

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,559
    • Most Online (within 30 mins)
      7,748

    Noel P
    Newest Member
    Noel P
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @TexasCeliacNewbie! The test results you posted strongly point to celiac disease. It is likely that your physician will want to perform an endoscopy with biopsy of the small bowel lining to confirm the results of the celiac antibody bloodwork results you just posted. It is important that you not cut back on gluten consumption until the endoscopy/biopsy is complete, assuming, that is, one is forthcoming.  Can you post the actual reference ranges used by the lab for the tests to determine positive/negative/normal/high/low? Scales used by these labs are different from one place to the other so the raw numbers don't mean much without the scale used by the lab. There aren't industry standards for this. By the way, you probably won't be able to edit the original post so please post the extra info in new post. May we ask about the cancer you mentioned? There are some things that can elevate the antibody test scores, at least mildly, besides celiac disease.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me that otherwise are worrying me that my previous cancer is recurring.  Thank you for all of your expertise in this area! Immunoglobulin A, Qn, Serum 140 (normal) Deamidated Gliadin Abs, IgA 256 (High) Deamidated Gliadin Abs, IgG 65 (High) t-Transglutaminase (tTG) IgA 31 (High) t-Transglutaminase (tTG) IgG 10 (High)
    • trents
      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
    • TerryinCO
      Here's the test result I was refering to.  I may not be understanding this correctly.
    • trents
      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
×
×
  • Create New...