Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Tests


GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor

I got the results of my second blood test (done after 2 months of eating gluten) and two of the four were "out of the normal range," aka greater than 15 and therefore assumably positive. While I don't know for sure, I believe they were IGA and IGG, coming in at 23.3 and 17 respectively. The nurse I spoke with on the phone wouldn't conclusively say they were positive. I've been referred to a gastroenterologist and will see him in two weeks, much longer than I'd like, but there aren't very many my insurance will take.

Over the last couple of weeks, I've developed bad hip/leg pain, and I have problems walking. It hurts to walk, and I wake up stiff and achy. If I sit for long periods of time, it hurts worse. I just feel generally weak, even though I haven't lost weight at all. I was reading on here about people who have problems with muscle wasting and celiac...I'm trying to figure out the connection and if I should be taking it easy on myself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

I got the results of my second blood test (done after 2 months of eating gluten) and two of the four were "out of the normal range," aka greater than 15 and therefore assumably positive. While I don't know for sure, I believe they were IGA and IGG, coming in at 23.3 and 17 respectively. The nurse I spoke with on the phone wouldn't conclusively say they were positive. I've been referred to a gastroenterologist and will see him in two weeks, much longer than I'd like, but there aren't very many my insurance will take.

Over the last couple of weeks, I've developed bad hip/leg pain, and I have problems walking. It hurts to walk, and I wake up stiff and achy. If I sit for long periods of time, it hurts worse. I just feel generally weak, even though I haven't lost weight at all. I was reading on here about people who have problems with muscle wasting and celiac...I'm trying to figure out the connection and if I should be taking it easy on myself.

if you are available with little warning, call the GI and get on the list to be called in case they have a cancelation.

GlutenFreeAustinite Contributor

if you are available with little warning, call the GI and get on the list to be called in case they have a cancelation.

Yes, I've done this. I'm especially eager because I leave for my freshman year of college on August 24th, and have a tentative family vacation earlier that month, and I'd really like to be feeling better for both of these events.

roxieb73 Contributor

Over the last couple of weeks, I've developed bad hip/leg pain, and I have problems walking. It hurts to walk, and I wake up stiff and achy. If I sit for long periods of time, it hurts worse. I just feel generally weak, even though I haven't lost weight at all. I was reading on here about people who have problems with muscle wasting and celiac...I'm trying to figure out the connection and if I should be taking it easy on myself.

I have these EXACT same symptoms. I am now gluten free one week and starting to feel better. Next week I start PT to regain some muscle strength. Big hugs to you I know how bad that is and the impact it has on your life. I hope you get back on a gluten free diet soon so you can start to feel better. ;)

Roxie

nora-n Rookie

IgA and IgG are just some general immunglobulins,

the celiac tests are something like tissue transglutaminase IgA or IgG, or gliadin IgA Ab or the IgG version

GlutenFreeAustinite Contributor

IgA and IgG are just some general immunglobulins,

the celiac tests are something like tissue transglutaminase IgA or IgG, or gliadin IgA Ab or the IgG version

Sorry, I forgot to specify....they were gliadin IgA/IgG. :P My bad. They didn't tell me the ttG ones, but they were much lower the first time (4 point something and 1 point something).

Oh Roxie! I hope you get better....I was in pt for almost two years following a shoulder injury from swimming. They really do help, but they make you work! It's refreshing to hear someone else with the same symptoms.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,637
    • Most Online (within 30 mins)
      7,748

    EmilyPB
    Newest Member
    EmilyPB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Matt13
      Hi Scott and Knitty! Thanks for the answers! You are very kind! Let put it this way: 1.I am now confirmed seronegative celiac. My Last push gastroscopy concluded that there is no atrophy and everything is ok in that regard. 2. From diagnostics perspective so far i have done multiple intestinal TUS, Mr Enterography, Multiple wide spectrum blood tests, Normal gastroscopy, Push gastroscopy(duodenum and jejunum)., Multiple X rays,Swallow test barium....i mean the whole package... 3. from doctors perspective i am in touch with 2-3 gastroenterologist, immunology and rheumatology doctor and general physician...and with psychiatric doctor. My problem is that i am still feeling like "s$#&" EVERY DAY even now when i am on GFD and i am still losing weight with very little energy through day. When i lay down, i do not feel pain or discomfort but during the day i feel bloated, intermitten pain in abdomen(usually upper QD and around belly), discomfort throught whole abdomen and other parts of body and with very little energy. I am trying my  best to be 100 % GFD but i am on very light mediterian food diet. I am currently on gfd  13 months (with small mistakes) Currently i am on ppi 20mg in the morning, now drinking ensure plus because of muscle and weight loss. My diagnose procedure is now lasting almost 3 years and since then i have lost 13-15kg. Please but please i am currently losing my mind...is there anybody who is going through this kind of hell like me? What more can i do? Thanks in advance, Kind regards, Matt    
    • Mnofsinger
      I appreciate the input and that would make sense to irritation/mouth sores. I'm more asking directly to the taste of the food being too salty as opposed to being irritated by salt.
    • jjiillee
      I got her results in the app but waiting for call from her doctor. Not sure what it means but maybe not celiac since villi are normal??  FINAL DIAGNOSIS: Duodenal biopsy (#1): DUODENAL MUCOSA WITH NO SIGNIFICANT ABNORMALITY. NO SIGNIFICANT VILLUS BLUNTING NOR INCREASED INTRAEPITHELIAL LYMPHOCYTES. Duodenal bulb biopsy (#2): MILD ACUTE DUODENITIS WITH FOCAL FOVEOLAR METAPLASIA. NO SIGNIFICANT VILLUS BLUNTING NOR INCREASED INTRAEPITHELIAL LYMPHOCYTES Gastric antral biopsy (#3): MILD CHRONIC FOCALLY ACTIVE GASTRITIS. PENDING IMMUNOSTAIN FOR HELICOBACTER ORGANSIMS (TO BE REORTED IN AN ADDENDUM). Gastric body biopsy (#4): GASTRIC OXYNTIC MUCOSA WITH NO SIGNIFICANT ABNORMALITY. Esophageal biopsy, distal (#5): SQUAMOUS MUCOSA WITH NO SIGNIFICANT ABNORMALITY. Esophageal biopsy, mid (#6): SQUAMOUS MUCOSA WITH NO SIGNIFICANT ABNORMALITY
    • Russ H
      I doubt very much that it contains any gluten. It works by producing an artificial blood clot, mixing 2 or more proteins found in the natural blood clotting cascade. These are refined from human blood donations. It comes in 2 vials that are mixed immediately before use and clot quickly.
    • nanny marley
      This literally happened to me today I had gluten after not eating it for over 6 months doing the elimination diet has I'm trying to get help with a diagnosis I ate gluten a few days ago and then stopped  because I went for my blood test today unfortunately it's not enough has I've now learned from some helpful people on this forum it has to be a lot longer before a test but my food today was really salty I just thout it was me because I'd deviated off my diet but I definitely tasted my  food  salty so that's a very intriguing investigation for me now thankyou for the post 
×
×
  • Create New...