Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Support Group In Boston


jenna

Recommended Posts

jenna Newbie

Hi

this is my first time here.

new to celiac-can someone pls email me re: a supt group in boston area-actually live in watertown


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb4480 Newbie
Hi

this is my first time here.

new to celiac-can someone pls email me re: a supt group in boston area-actually live in watertown

<{POST_SNAPBACK}>

Hi Jenna,

I live in Reading but I would be totally willing to be an email buddy until you find a group. I'm looking for one as well.

Steph

Stephberry2002@yahoo.com

jenvan Collaborator

Hey ladies! Here is info I could find on you for boston groups--just contact them and ck it out. Good luck!

Group: The Healthy Villi, Boston Chapter, CSA/USA

City: Boston

Contacts:

Ann Dodds-Frerichs

84 Mill St.

Westwood, MA 02090

781-255-9033

Nola Ford

6 Ellery Square

Cambridge, MA 02138

617-547-1828

Marjorie Rogers

28 Bacon St.

Natick, MA 01760

508-653-5465

Internet:

Marjorie Rogers, mwrogers67@aol.com

Danna Feldgoise, gooseink@BITWISE.NET

Nixie Raymond, raymond@world.std.com

Updated: 10 Mar 2001

Group: Children's Celiac Support Group

City: Boston

Contacts:

Laurie A. Higgins

GI/Nutrition, Hunnwell grd

Children's Hospital

300 Longwood Ave.

Boston, MA 02115

Tracy Keegan

617-355-2127

Internet:

Laurie A. Higgins, Higgins@a1.tch.harvard.edu

Tracy Keegan, eaglekeeg@aol.com

WWW: WWW.childrenshospital.org/celiac

Updated: 21 Mar 2003

Chaula Hopefisher, Pittsfield

413-499-4380, hopefisher@chaula.com

CSA Healthy Villi Boston Chapter #67 Click here for this chapter's Website

Greater Boston Celiac/DH Support Group, Inc. Chapter phone #: 617-262-5422 toll-free: 1-888-4-CELIAC

CSA Massachusetts & Rhode Island Celiac Support Group for Children and Adults, Too #72 Click here for this chapter's Website

Mary Arruda, West Greenwich, RI

401/385-9175

Tanis E. Collard, Attleboro

508/399-6229, csgc@ix.netcom.com

  • 2 years later...
fruhead Newbie

hi there,

Unfortunately, I am unable to find **any** local support groups in Boston. :unsure: I am aware of The Healthy Villi (and joined a month or so ago)...their meetings are OUTSIDE the general Boston area. I understand this is due to traffic volume issues. However, this poses a problem to people (like me!) who do not own a car. :(

Is there a way to get a Boston group going? Actually **IN** the city of Boston...or at the very least, accessible by the MBTA system? (Preferably by train, not by bus.)

Otherwise, if anyone attends the Healthy Villi meetings, would they be willing to give us car-less folk a ride to the meetings?

I am at wits' end looking for a support group. I was just diagnosed earlier this year and mostly have a grip on it, but I would still like a support system of folks who have gone through the same illness as me.

thank you,

Lisa

melmak5 Contributor

I am in Cambridge and in the same "no car" situation.

Maybe if there are enough people who post in this thread we could all meet up and go from there.

rbh Apprentice

Hi Lisa -- unfortunately I can't be of help in getting to the Healthy Villi meeting as we probably won't go this time. However, I did want to let you know that the Not Your Average Joe's Restaurant in Watertown is very willing to accommodate gluten free diners. Apparently, they are in the midst of planning a specific gluten free menu too, but even now they are very friendly. (I live in Newton)

Rochelle

carriecraig Enthusiast

I used to love going to Not Your Average Joe's in Needham (where I worked) and Watertown (where I lived)! I haven't been there since before I was diagnosed and used to LOVE eating their bread with that olive oil/garlic/cheese dipping sauce.

I now live in NJ, but I'm glad to know that NYAJ is going to have a gluten-free menu - it will be good for when I visit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rbh Apprentice
I used to love going to Not Your Average Joe's in Needham (where I worked) and Watertown (where I lived)! I haven't been there since before I was diagnosed and used to LOVE eating their bread with that olive oil/garlic/cheese dipping sauce.

I now live in NJ, but I'm glad to know that NYAJ is going to have a gluten-free menu - it will be good for when I visit.

The dipping sauce for the bread itself is gluten free, so if you bring your own bread, they will mix up the sauce.

  • 3 weeks later...
melmak5 Contributor

Would anyone seriously be interested in meeting up in/around Boston?

  • 3 months later...
superbeansprout Rookie

Would anyone seriously be interested in meeting up in/around Boston?

Hi there, so I know this thread has been not answered in a while, but if anyone out there in Boston or thereabouts is still interested in getting together, I'm game. My name is Liz, I work in Medford (there is a Not Your Average Joe's in my office complex!) and it's accessible by MBTA orange line at Wellington Station. I am also willing to travel around the city and to the south shore as well, as I live in Marshfield...and have a car...so if anyone hears of a good support group, and wants to go, I'm willing to carpool. Or if we just want to start our own group, we can do that too!

Nina12488 Rookie

I am in college during the school year... but am from Hull, MA! If a support group does get started around the Boston area... let me know!

sallyterpsichore Explorer

Darn it, I just lost my post. Anyway, I live in Brookline, work in JP, and am a member of the Healthy Villi, but also am dependent on public trans. I was thinking awhile ago about starting a dinner group with local celiacs in the area, but have since added other things to my platter and don't have enough time anymore for that, really.

However, I'd be very open to meeting up with all of you. We could just head downtown and grab a bite at Legals or PF Changs. None of my friends have celiac and they're probably sick of hearing about it! :D

There's also a place out by me in Washington Square that has Redbridge and are aware of celiac disease and know enough about the diet to be able to make gluten free stuff, I've heard.

Looking forward to meeting you all!

~Sally

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,743
    • Most Online (within 30 mins)
      7,748

    Abbie Radtka
    Newest Member
    Abbie Radtka
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sandi20
      I really like Thorne!  I've researched thier products.  Thank you so much.
    • trents
      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is difficult to ferret out, like soy sauce and canned tomato soup, canned chili and canned pork n' beans, some "lite" pancake syrups, potato salad, flavorings, etc., etc. Gluten-containing grain products are hidden through alternate terminology and found in places you would never expect.  There is also "cross contamination" where naturally gluten free foods come into contact with gluten-containing grains during farming, transportation, storage and manufacturing processes. Then there is the issue of "cross reactivity" whereby you may be having gluten-like reaction to food proteins whose structure is similar to gluten. Chief among these are dairy, oats (even gluten-free oats), soy, corn and eggs. I am including this article that you might find helpful:   
    • K6315
      Prior to being diagnosed, I had a gluten heavy diet. I stopped all gluten exactly a week ago and have continued to feel sick in the ways I did prior to going gluten free - primarily on and off nausea, brain fog, and fatigue. Wondering if this is normal and, if so, how long can I expect to feel this way?
    • Scott Adams
      Some of the largest contract manufacturers in the U.S. include companies like NutraScience Labs, Capsugel (part of Lonza), and Thorne Research. These companies produce supplements for a wide range of brands, from small startups to well-known names.
    • Sandi20
      Thank you for your feed back and knowledge.  Scott do you know the names of the BIG manufactures who produce most supplements?  Love to research them all and decide on their principles and manufacturing certifications who I want to spend my dollars with if they provide other non private label supplements that are good. 
×
×
  • Create New...