Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tried Milk And Now Migraine


ShannonA

Recommended Posts

ShannonA Contributor

so today is 6 weeks dairy free and 20 days gluten free with an accidental exposure last week. My naturopath told me to wait only 1 month and then try adding milk and eggs gradually bc test indicated allergy to both of them. I had a piece of Hershey's chocolate and within 2 hours a migraine came on. I'm assuming it was the milk in the candy. He stated once my intestines were healed I would have no allergy to milk and eggs. So does anyone know approximately how long I should wait before trying them again? Thanks for any input!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

so today is 6 weeks dairy free and 20 days gluten free with an accidental exposure last week. My naturopath told me to wait only 1 month and then try adding milk and eggs gradually bc test indicated allergy to both of them. I had a piece of Hershey's chocolate and within 2 hours a migraine came on. I'm assuming it was the milk in the candy. He stated once my intestines were healed I would have no allergy to milk and eggs. So does anyone know approximately how long I should wait before trying them again? Thanks for any input!

Hi Shannon. Keep in mind that chocolate is a hugh migraine trigger. Also, if it's an allergy to milk as opposed to it cropping up after going gluten free, which is common, then the allergy may not improve or take much longer if there is improvement

I hope you get it sorted out soon.

Salax Contributor

It could be the milk, but also chocolate is known to be a trigger for migraine headaches.

Perhaps waiting on the milk up to 6 months. That seems about the norm around here. And when you try it again, I would recommend only trying milk. If you have no issues then move on to chocolate..but if the chocolate continues to give you migraines it might be the chocolate if you can tolerate milk separately.

Not sure on the eggs, never had to remove them from my diet. But maybe 6 months is a good time frame to let the body rest and heal.

Best of luck and feel better.

GFreeMO Proficient

This happens to me because I have a casein allergy. I get the migraine and sores on my face. Perhaps you are not tolerating casein.

Juliebove Rising Star

Chocolate can cause migraines.

Razzle Dazzle Brazell Enthusiast

It seems like I remember that chocolate naturall y has some caffeine in it. Do you have problems with headaches with other caffeine containing items like coffee or tea?

tarnalberry Community Regular

Theobromine, the caffeine like substance in migraines, is - as everyone has mentioned - is a known migraine trigger. If you want to test casein as a migraine trigger, try getting lactose-free Milland seeing what your response is.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShannonA Contributor

It seems like I remember that chocolate naturall y has some caffeine in it. Do you have problems with headaches with other caffeine containing items like coffee or tea?

No not at all
ShannonA Contributor

Theobromine, the caffeine like substance in migraines, is - as everyone has mentioned - is a known migraine trigger. If you want to test casein as a migraine trigger, try getting lactose-free Milland seeing what your response is.

What is that?
ravenwoodglass Mentor

As others have stated when you are challenging something you need to add that food in as pure a form as possible. For dairy you might want to start with a hard cheese like cheddar first as that is lactose free. If you tolerate that after a few days of eating it 2 to 3 times a day then move on to something like a small glass of milk to see if you are sensitive to lactose. When you challenge eggs eat them hard boiled or scrambled with nothing added.

You may have been reacting to the chocolate not the dairy in it. If you are craving some chocolate Ener-g chocolate chips are free of dairy and soy and when you have healed a bit more perhaps try those.

If you were glutened just a short time ago it will take some time to recover from that so wait until you have healed well and been symptoms free for a bit to rechallenge or add anything else to which you are sensitive.

Hope you're feeling better soon.

cavernio Enthusiast

Any accidental exposure to gluten would put your time being dairy free back to 0 days since any exposure to gluten will cause intestinal damage. Try again in a month-6 weeks. If you still find yourself reacting to dairy, I'd go 3 months, then 6 months, then a year and another year and I'd probably give up after those last 2 years.

I am personally not going to try adding dairy back into my diet for until gluten-free for 6 months, and I plan on starting with hard cheese that will have little/no lactose.

Theobromine's something in cocoa and coffee beans. There does exist dairy free dark chocolate in case you want to test for the chocolate reaction, although not necessarily tasty stuff you want to eat. Although both run the risk of cross contamination, Baker's dark baking chocolate *I think* has no dairy ingredients, and Just Us dark chocolate also doesn't add dairy.

ShannonA Contributor

So depressing.....thanks

frieze Community Regular

chocolate is on the list of tyramine containing foods, which includes red wine. hard cheese, flat beans, vanila, citrus fruit, peanuts...hmm and there are more....

so, perhaps the hard cheeses wouldn't be the best idea. good luck

GFinDC Veteran

So depressing.....thanks

Waiting 3 to 6 months is good.

You might want to try carob powder as an alternative to chocolate.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,565
    • Most Online (within 30 mins)
      7,748

    StephanieNewcomb-A
    Newest Member
    StephanieNewcomb-A
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      They've not made that call at this point. They say it looks more like Celiac's than common variable immune deficiency.  They say to get a positive diagnosis another endoscopy is needed after I've been on gluten-free diet awhile.  So, waiting for more input from Docs'.
    • Tazzy11
      Hi All! I recieved some coeliac serology test results but I am yet to see my g.p can anyone please confirm what these numbers mean?? Tissue transglutaminase IgA - 3 units (<20) Deamidated Gliadin Peptide IgG - 26H units (<20)   My IgG is high, does this mean it is positive?   
    • cristiana
      Karen, welcome to the forum. Another thing to add:  Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition.  In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and bloating should improve.  You might also find it helpful to stay clear of certain high fibre foods for a while, perhaps keeping a food diary to see if any are causing you to bloat a lot or give you stomach pain.  Lentils and soya were an issue for me in the short term, while I was recovering.  Also, are you taking iron - that can really hurt your belly and in my case it added to the bloating. The other point I wanted to make is has your doctor looked into any other reasons for your belly bloat.? There are a number of other gastric conditions that can result in a bloated belly.  A blood test and an ultrasound to check for possible gynaecological issues could also be something to speak to your GP about. It took me a few months for my bloating to subside, but the journey which involved a few tests along the way to ensure nothing else was was worth it.   Cristiana
    • badastronaut
      Thanks very much for the in depth reply!!! I'll discuss it with my doctor next week!
    • knitty kitty
      Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin is quite high (2,5 and 0,6). My ALT is also slightly elevated. I have been doing a gluten free diet quite strict although I did eat some gluten in the previous weeks.  "Could my blood result be this way because of gluten sensitivity and me being not strict enough? My echo showed no problems with my liver or pancreas. My bile ducts were fine too (although I don't have a gallbladder anymore).  "What to do??? Could this be gluten related?"   Your bilirubin is high.  The liver breaks down bilirubin.  The liver needs Thiamine to break down bilirubin.  Without sufficient Thiamine, bilirubin is not broken down and escapes into the bloodstream. High levels of bilirubin suppress the immune system.  High levels of bilirubin suppress the production of white blood cells, including anti-gluten antibodies.  The suppression of your immune system by high bilirubin could be the explanation for false negative Celiac antibody testing.  Thiamine is needed for antibody production.  Thiamine deficiency can cause false negatives on Celiac antibody tests.  If you are not making a lot of antibodies, you won't have much damage to the small intestine.   Your ALT is high.  The liver produces ALT.  When the liver does not have sufficient Thiamine, the liver produces more ALT that escapes into the bloodstream.  Elevated ALT is seen in thiamine deficiency. Your Lipase is high.  Lipase is produced in the liver and pancreas.  More Lipase is released by both in thiamine deficiency. Your gallbladder has been removed.  Gallbladder dysfunction is common in thiamine deficiency. Your Zinc is low.  Zinc absorption is enhanced when Thiamine is present.  Zinc is not absorbed well in thiamine deficiency. Your Folate is low.  Celiac Disease causes malabsorption of all the essential nutrients we need for health, the eight B vitamins, including Thiamine, the four fat soluble vitamin, Vitamin C and minerals like Zinc and Magnesium.  Thiamine stores can be depleted in as little as three weeks or even as quickly as three days.  Thiamine deficiency symptoms can wax and wane depending on how much thiamine is consumed that day.   If a high carbohydrate is eaten regularly, additional Thiamine is needed (500 mg per 1000 calories). Anxiety and depression are symptoms of thiamine insufficiency.  The brain just thinking  uses as much thiamine as muscles do when running a marathon.   I have had thiamine deficiency symptoms like you are experiencing.  My doctors did not recognize the symptoms of thiamine deficiency.  They just prescribed pharmaceuticals to cover up the symptoms which only made things worse.  I had a lot of nutritional deficiencies.  I ended up getting a DNA test to check for known genes for Celiac.  I have two Celiac genes.   Have you had a DNA test for Celiac genes?   I took Benfotiamine, a form of thiamine that promotes intestinal healing, and a B Complex to correct my deficiencies.   High doses of thiamine need to be taken to correct deficiency.  Talk to your doctor about administering thiamine intravenously.  Thiamine is safe and nontoxic even in high doses.  Thiamine is easily excreted in urine if not needed.  Improvement of symptoms should be seen within a few hours to a few days.  No harm in trying.  Process of elimination, etc.   Talk to your doctor and nutritionist.  Testing for nutritional deficiencies should be done before taking vitamin supplements, otherwise the vitamin supplements already taken will be measured.   I hope this helps you on your journey. References: https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6662249/#:~:text=CONCLUSION%3A,in men than in women. https://pubmed.ncbi.nlm.nih.gov/24923275/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6040496/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3772304/#:~:text=Based on the patient's history,were also no longer present. https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].  
×
×
  • Create New...