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Dr. Called After Hours

Lisa

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Lisa Mentor
Lisa
Posted

Hey Fellow celiac disease's (or rather guys with celiac disease, better?)

Just got a call from my new internist Dr. at 6:30 this evening. He saw his patients all day and he sits down and calls who he feels he needs too. Boy was I impressed. I certainly made a point of telling him that. As long as he stays here, he will be my Dr. for life.

Results: Anti-body test for Celiac was Neg. BUT....I told him that by the time they drew blood for testing, I was on (as best as I could) the gluten-free diet for about three weeks and he said that that would definately effect the results. Good news is that every thing else looked good....Liver, pancreas, gall blatter, bla, bla, bla...

So that is good. Yeah for me.

B-12 level was the ONLY thing that needed addressing. So he suggested B-12 shots once a week for a month, then once a month. Fatigue is a very real issue for me now.

gluten-free diet is working. Acid, mostly gone, am. poops sink, (after lunch sometimes not), but improving every day.

Just wanted to say that you all have taught me alot and would encourage any new members to read as much on the site that they can. It is VERY time consumming, but well worth it toward improving your health.

Yeah for me...now I just need to keep the pine trees off my house tomorrow night. Now that's the pits.

Thanks you all for your help Lisa B

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tarnalberry Community Regular
tarnalberry
Posted
Results:  Anti-body test for Celiac was Neg.  BUT....I told him that by the time they drew blood for testing, I was on (as best as I could) the gluten-free diet for about three weeks and he said that that would definately effect the results.  Good news is that every thing else looked good....Liver, pancreas, gall blatter, bla, bla, bla...

So that is good.  Yeah for me.

B-12 level was the ONLY thing that needed addressing.  So he suggested B-12 shots once a week for a month, then once a month.  Fatigue is a very real issue for me now.

gluten-free diet is working.  Acid, mostly gone, am. poops sink, (after lunch sometimes not), but improving every day.

<{POST_SNAPBACK}>

Congrats on the responsive doctor and the good (at least, readily dealt with) lab results! :-)

Lisa Mentor
Lisa
Posted
  • Author

Thanks I feel mentally stronger.

Canadian Karen Community Regular
Canadian Karen
Posted

Wow Lisa,

Sounds like you have a really dedicated doctor there. He's definitely a keeper!

Well, it sounds like everything is under control except for the B12. The shots should take care of that though.....

I really happy you got such great news......

Now make sure you take cover before Hurricane Ophelia hits!!!!

Hugs.

Karen

frenchiemama Collaborator
frenchiemama
Posted

My doctor is like that too. She called me at like 7:30 pm to tell me that my results came back positive. She has been fantastic. She didn't really know much about celiac disease, but since my diagnosis she has been going way out of her way to learn about it, she even went to a seminar to learn more.

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    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
    • Marie70
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Marie70 · Posted

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    • RMJ
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      By RMJ · Posted

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