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A Whole New World

caitlinpheatan

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caitlinpheatan Newbie
caitlinpheatan
Posted

Hello. I have recently learned that I have celiac disease. The diagnosis came as a shock but, given the symptoms I experienced that led me to the doctor, Celiac is the one disease/disorder that starts with the letter C that I think scares me the least.

I'm 43 and have experienced what I now see as the symptoms for about 4 years. Maybe longer, I just didn't pay attention to them or they weren't serious or severe enough for me to notice.

I have yet to have the biopsy to confirm but that will be scheduled and I'm just reading and learning about things so, I am glad to have found this forum.

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mamaw Community Regular
mamaw
Posted

Hello & Welcome

Please remember to stay on gluten until after you have your biospy.. that is very important so you get the correct results...

Skylark Collaborator
Skylark
Posted

Hi, and welcome. The other C diagnoses are scarier, aren't they?

caitlinpheatan Newbie
caitlinpheatan
Posted
  • Author

Hello & Welcome

Please remember to stay on gluten until after you have your biospy.. that is very important so you get the correct results...

Thank you. I didn't know that. I was prepared to go gluten free right away.

caitlinpheatan Newbie
caitlinpheatan
Posted
  • Author

Hi, and welcome. The other C diagnoses are scarier, aren't they?

Thank you. And yes they are. It's a lot of learning but I know it's survivable and manageable.

nvsmom Community Regular
nvsmom
Posted

Sorry to hear of your diagnosis but welcome to the board. I'm also new (2 weeks).... it's quite a learning curve isn't it? LOL

Best wishes with your biopsy.

caitlinpheatan Newbie
caitlinpheatan
Posted
  • Author

Sorry to hear of your diagnosis but welcome to the board. I'm also new (2 weeks).... it's quite a learning curve isn't it? LOL

Best wishes with your biopsy.

Thank you. I'm 43 and as healthy as a trout. I'm not at all used to being restricted in what I can eat... or having to think about it I guess is really what it boils down to.

I am reassured every time I walk through a grocery store and see the variety of gluten free food. But it's going to be an adventure...

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      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      Gotcha!
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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