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Unsure About Testing

bcgal00

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bcgal00 Newbie
bcgal00
Posted

I didn't get a lot of information from my GP so thought I'd ask you guys. This site is a wealth of information. I'm getting celiac blood test but that will only show if I have celiac disease right?...not wheat intolerance? I have a requisition to pick 5 food products for allergy blood testing also. I noticed a difference in symptoms when I stopped eating wheat for 2 wks (reduction of stuffy nose, film at back of throat, itchy eyes, dull headache, bloating, stomach discomfort)so will pick wheat as one item to test for. If I pick foods that I eat a lot of I would go with egg whites, milk, rice and tomatoes. I was allergic to rice and tomatoes mildly when tested as a teenager but no testing since. I'm frustrated that I can only pick 5 foods and GP didn't give me a referral to an allergist. So, I may be looking at a naturopath who does skin testing to see if that gives me more information. My GP didn't want to send me to allergist for skin testing b/c she says it is not accurate. I'll have to pay for a naturopath so that will have to wait a bit until the money is available.

No matter what the testing shows, I will be cutting wheat out of my diet b/c I can feel and see the difference in how my body reacts to it. As to other possible food allergies, I would like to have that information so I can adjust my diet. I've spent the last couple of yrs losing 45 lbs and exercising regularly so have worked hard to become fit and healthy and want to feed my body as best I can and feel the best I can. I tell you, when I stopped wheat for a few days and then woke up with no film at back of throat and no nose stuffiness I couldn't believe it! It took another 3-4 days before I noticed that my knees and hands didn't have the slight ache they normally would have off and on.

As for family health, my DD and GD have diabetes, another DD has Graves disease, another GD is lactose intolerant and my daughter with diabetes also has celiac disease. I don't know if any of these things are hereditary but it certainly has made me think more about my own health and possible unknown diagnoses for myself.

So, any advice about testing? I always ate wheat, stopped for 2 wks but have been back on again for a few days. After another wk of eating wheat will that be enough for the celiac testing or should I wait longer? Does eating one serving of wheat a day enough while I do this or should I be eating more?

Thx for any advice or info you have. Much appreciated.

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frieze Community Regular
frieze
Posted

1) See if your doc will give you the dx of celiac with the family hx and relief on the diet, prob. not, but wouldn't hurt to ask.

2) Yes, celiac has a genetic component.

3) Celiac and Type I DM have genes in common/both autoimmune diseases. Not so uncommon to see them in the same person.

4) Thyroid issues, again, autoimmune, not uncommon to see in celiacs.

5) Need to eat more than one serving of wheat a day, unless you are talking "Texas" size servings, lol. Your 2 weeks off may/may not alter your results,

6) You obviously have a problem with wheat, I wouldn't waste one of the five on it.

Good luck.

I didn't get a lot of information from my GP so thought I'd ask you guys. This site is a wealth of information. I'm getting celiac blood test but that will only show if I have celiac disease right?...not wheat intolerance? I have a requisition to pick 5 food products for allergy blood testing also. I noticed a difference in symptoms when I stopped eating wheat for 2 wks (reduction of stuffy nose, film at back of throat, itchy eyes, dull headache, bloating, stomach discomfort)so will pick wheat as one item to test for. If I pick foods that I eat a lot of I would go with egg whites, milk, rice and tomatoes. I was allergic to rice and tomatoes mildly when tested as a teenager but no testing since. I'm frustrated that I can only pick 5 foods and GP didn't give me a referral to an allergist. So, I may be looking at a naturopath who does skin testing to see if that gives me more information. My GP didn't want to send me to allergist for skin testing b/c she says it is not accurate. I'll have to pay for a naturopath so that will have to wait a bit until the money is available.

No matter what the testing shows, I will be cutting wheat out of my diet b/c I can feel and see the difference in how my body reacts to it. As to other possible food allergies, I would like to have that information so I can adjust my diet. I've spent the last couple of yrs losing 45 lbs and exercising regularly so have worked hard to become fit and healthy and want to feed my body as best I can and feel the best I can. I tell you, when I stopped wheat for a few days and then woke up with no film at back of throat and no nose stuffiness I couldn't believe it! It took another 3-4 days before I noticed that my knees and hands didn't have the slight ache they normally would have off and on.

As for family health, my DD and GD have diabetes, another DD has Graves disease, another GD is lactose intolerant and my daughter with diabetes also has celiac disease. I don't know if any of these things are hereditary but it certainly has made me think more about my own health and possible unknown diagnoses for myself.

So, any advice about testing? I always ate wheat, stopped for 2 wks but have been back on again for a few days. After another wk of eating wheat will that be enough for the celiac testing or should I wait longer? Does eating one serving of wheat a day enough while I do this or should I be eating more?

Thx for any advice or info you have. Much appreciated.

GFinDC Veteran
GFinDC
Posted

Here the is top 8 list. On the forum we often see people with soy, nightshades, dairy, corn, and egg intolerances.

Allergy testing is not the same as food intolerances though, so it may not help.

Celiacs react to the gluten in wheat, rye, barley, and sometimes oats.

Open Original Shared Link

  • Milk
  • Eggs
  • Peanuts
  • Tree nuts (such as almonds, cashews, walnuts)
  • Fish (such as bass, cod, flounder)
  • Shellfish (such as crab, lobster, shrimp)
  • Soy
  • Wheat

bcgal00 Newbie
bcgal00
Posted
  • Author

Thx for the info. I'll be going for testing tomorrow. This will hopefully give me some answers and I may decide to delve further into this with a nutritionalist later, depending on how I feel over the next month or so after making more dietary changes.

Cara in Boston Enthusiast
Cara in Boston
Posted

An allergy test will not tell you if you have celiac disease or a gluten intolerance. You may want to ask for a Celiac panel at the same time as your allergy tests.

Cara

Mom-of-Two Contributor
Mom-of-Two
Posted

I also wanted to add that if your own daughter HAS celiac, she got it from someone! :)

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