Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Maybe This Gluten Challenge Is Too Challenging For Me...

heathenly

Recommended Posts

heathenly Apprentice
heathenly
Posted

Including today, I have eight more days of eating gluten. I've been back on it for a mere six days, and I'm not sure I can hang much longer. I feel like a big baby for not being able to just suck it up. Yesterday I almost cheated by NOT eating gluten.

Your experiences with a gluten challenge? Is it just this miserable? I'd feel better to know it wasn't just me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

Hi! I'm sorry you're in pain and suffering. I've been on a gluten challenge for two and a half months, and I completely understand. I am absolutely miserable, and if you truly are celiac/gluten intolerant, it will be miserable (unless you're asymptomatic). But you don't have to eat gluten at every meal,and you don't have to gorge on it either. If it gets too bad, stop eating it if your doctor is okay with it. I've managed to stay with it, hang in there.

ravenwoodglass Mentor
ravenwoodglass
Posted

Talk to your doctor. Depending on the severity of your symptoms when you reintroduce gluten some doctors will stop the challenge and give you an 'official' diagnosis.

For some a gluten challenge just makes them a little ill, some feel awful but can still function and some will be incapitated. Only you can judge whether or not you can continue. Depending on how long you were gluten free and how much healing has taken place 2 weeks back on gluten may not be long enough to show anything on an endoscopy anyway. Even if it doesn't give you positive test results you now know the answer as to whether you can tolerate gluten or not.

tom Contributor
tom
Posted

I feel for ya, but did chuckle a bit seeing

...Yesterday I almost cheated by NOT eating gluten.

...

At least you didn't lose your sense of humor. :P

heathenly Apprentice
heathenly
Posted
  • Author

I've been on a gluten challenge for two and a half months, and I completely understand.

You must be amazingly tough. I'm in awe.

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

Hang in there!!! I know it's a miserable situation but hopefully you'll get accurate results in the end! Snaps to you both, that's not easy to do!! ?

heathenly Apprentice
heathenly
Posted
  • Author

ravenwoodglass, if two weeks isn't enough, I'm not giving it another shot. I'll just go on my merry way, gluten-free.

I'm trying, tom. ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


heathenly Apprentice
heathenly
Posted
  • Author

Hang in there!!! I know it's a miserable situation but hopefully you'll get accurate results in the end! Snaps to you both, that's not easy to do!! ?

Aw, thanks! Tomorrow is my last day of gluten, and it feels like a monumental achievement to have been back on gluten for this long (ha, ten whole days? seems far longer). I feel wretched.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

You must be amazingly tough. I'm in awe.

Haha thanks. It comes and goes in cycles for me. Like I'm miserable for several days/weeks and then I can almost convince myself that I feel normal again and then sick once more. I'm gluten-free for good now, after breaking out in a horrible rash that isn't gone yet and I suspect won't be until after I am gluten-free for a while.

heathenly Apprentice
heathenly
Posted
  • Author

Haha thanks. It comes and goes in cycles for me. Like I'm miserable for several days/weeks and then I can almost convince myself that I feel normal again and then sick once more. I'm gluten-free for good now, after breaking out in a horrible rash that isn't gone yet and I suspect won't be until after I am gluten-free for a while.

I think I know what you mean. I've almost forgotten how much better I felt without gluten. The proof is in my weight gain, bloat, and messy house due to my total lack of energy.

My brief foray back into gluten land is over. Had my endoscopy today. The bonus was the nurse who had a sister with Celiac-- she slipped me a flier for a local gluten free bakery! Didn't know we had one!

Downside was my son commenting on my "bloat dress"- said it looked like something my mother would wear... ha. He was right.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,356
    • Most Online (within 30 mins)
      7,748
    Ahmed SDG
    Newest Member
    Ahmed SDG
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JohannesW85
      Do I have celiac/Gluten sensitivity?

      By JohannesW85 · Posted

      Thank you for your reply. Yep, the doctor made a mistake there for sure, but when my other doctor called she said I would wait for the referral to doctor for the gastro it can take months, and so long she thought it would be a good idea to stay gluten free.    I am really concerned about my problems tough and I don’t know if I am eating something with gluten to upset my stomach with the sulphur burps and dihareaa. I have also taken stool samples that I am going to leave on Friday this week and that’s another thing that I am worry about, if it shows something else. I mean, if am ”gluten free” why do I have problems with the stomach still? As I understand, the problem with dihareaa and other problems is when you get gluten in you by mistake for example?    I have this rashes to, going to try to upload them here.  Here is the link to the pictures of the rashes, it’s not itchy.      https://postimg.cc/gallery/p2N8kT7
    • Beverage
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Beverage · Posted

      Also, Vera Salt and Ava Jane's taste SO MUCH BETTER. Not sharp, and i need to use a lot less. 
    • Beverage
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Beverage · Posted

      I've recently researched a lot about salt lately. Celtics sea salts have minerals, which have been tested to include aluminum, cadmium, iron, lead, and microplastics. I used to use Redmond salt, but it tests as having aluminum, iron, and lead. I finally settled on 2 clean salts: Vera Salt, which you can only order from their web site. Also Ava Jane's which I got from Amazon. These are now the only 2 I use.
    • Beverage
      Has anyone struggled with high blood pressure?

      By Beverage · Posted

      I had horrible reaction to lisinopril, a severe cough that kept me up all night. The cough is apparently common. I did better with irbesartan, no cough, and it controlled my BP better too. 
    • trents
      Do I have celiac/Gluten sensitivity?

      By trents · Posted

      Welcome to the forum, @JohannesW85! Your physician gave you bad advice in telling you to avoid gluten until the hospital calls you. Reducing gluten intake will invalidate celiac disease blood antibody testing but it will also invalidate the gastroscopy/biopsy if there is significant time involved between removing gluten and when the procedure is scheduled. The endoscopy/biopsy serves the purpose of checking for the damage caused to the lining of the small bowel caused by the inflammation inherent in celiac disease to that section of the intestines. If you remove gluten ahead of the procedure for a period of weeks or months, there may be enough healing of the intestinal lining to prevent detection of damage. Gluten is hidden in many manufactured food products that you would never expect to find it in. It can also be found in medications, health supplements and oral hygiene products. It is easy to eat a lower gluten diet by cutting out major sources such as bread and pasta but much more difficult to achieve a truly gluten free state. There is significant learning curve involved. Current recommendations for the "gluten challenge" in preparing for celiac disease testing are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a period of at least 2 weeks. But I would certainly extend that time period to make sure the testing is valid. You might also be dealing with NCGS (Non Celiac Gluten Sensitivity) rather than Celiac disease. NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both.
×
×
  • Create New...