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Recent Activity
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- Morgan Tiernan replied to Morgan Tiernan's topic in Dermatitis Herpetiformis5
How to navigate living with dermatitis herpetiformis
Hey @Rogol72! thanks for your very helpful response. Those videos are great and super educating! I’ve forwarded them to my family members too as often it can be very difficult to explain to those around you just what you’re going through. Though, I’m fortunate that they’re super supportive and keen to help me get to the bottom of the problem. I...- coeliac
- dermatitis herpetiformis
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- Morgan Tiernan replied to Morgan Tiernan's topic in Dermatitis Herpetiformis5
How to navigate living with dermatitis herpetiformis
Hi Trents, thank you so much for your help and support. Yes it’s not ideal from my surgery practice. This is just one of the many problems I have experienced with them, we’ve had to pay to go to a private consultant now instead (I’m from South Wales in the UK, spot on about the spelling of “coeliac”! I completely forgot there was another way of sp...- coeliac
- dermatitis herpetiformis
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- Lynnard replied to Lynnard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Waiting on biopsy results but wanted opinion on bloodwork
Thank you - that makes perfect sense and I understand. celiac disease is an autoimmune disease which will cause further damage while gluten sensitivity is different. Based on my symptoms and bloodwork, I am almost certain I have celiac disease. I kind of hate to hope for a positive biopsy but a negative one would be frustrating for sure. Regardless, I have... -
- trents replied to Lynnard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Waiting on biopsy results but wanted opinion on bloodwork
Let's talk about terminology for the sake eliminating (as much as possible) confusion. Unfortunately, the terms "gluten sensitive" and "gluten intolerant" have, historically, been used indiscriminately. There are two primary categories of gluten disorders whose "official" terms are 1. celiac disease and 2. Non Celiac Gluten Sensitivity or NCGS for short.... -
- Lynnard replied to Lynnard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Waiting on biopsy results but wanted opinion on bloodwork
Thank you! This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made. Or does it matter because presumably recommendation of gluten-free diet will...
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