Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Out Of A Meal Plan At College


GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor

So I'm heading off to college in the fall, and I'm currently awaiting a diagnosis. Currently, I will have to pay $1639.99 a semester, and I've been to their dining hall, and it's limited in terms of gluten free. There's a small cooler with a few bread items, a salad bar (with high CC risk), and a few vegetable items I'd feel safe eating (plain baked potatoes, boiled carrots, etc.). I don't want to pay that much money for a meal plan where I can't eat 90% of the items, and I feel like the CC risk in the cafeteria (it's a moderately sized public state university) would be extremely high. Does anyone have any tips for getting out of the mandatory meal plans?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You will probably need an official diagnosis. Contact the Disiabilty department and find out what you might need. They may tell you that, even with a diagnosis, they provide gluten-free food so pay up.

GlutenFreeAustinite Contributor

Thank you. The official diagnosis will most likely be in tomorrow so here's to hoping my school will be kind and understanding. They honestly provide like three gluten-free items, but maybe they'd be more careful if they had an actual celiac in the house...I don't think they do at the moment.

kareng Grand Master

You could print out ( with links to prove they are real) info from the various Celiac Centers. They all have a part where they have a "no gluten, not even a crumb" statement. Also, a note from your GI and regular doctor saying that those gluten-free provisions are not safe nor provide a balanced diet.

Have you talked to the food service and Disability Services yet? Maybe there are some accommodations made for the Celiacs but you didn't see it on a visit?

Have you thought about:

How will you provide food for yourself?

How you will get to a store to buy it ( if you don't have a car)?

How you will prepare it? A dorm might not let you have a crockpot, toaster, etc. They are hard to hide because the smell will waft out into the hallway.

Roommate who might not be sensitive and eat your gluten-free cookies? ( need a way to lock up food )

Getting this figured out before you get to school would be best. Having a written plan and documentation would also help. Having your parents involved will make them take you more seriously, too.

I don't remember how old you are. I'm assuming 18 or 19. I'm talking to you like I would to my 19 year old.

GlutenFreeAustinite Contributor

Yeah, I am going to contact the disability center on campus, but I'm waiting until I have the diagnosis, because I need to have that in hand before they will even talk to me...I checked out their website.

I have the finances to purchase my own food (if I'm not paying a meal plan), and will be able to bring my own kitchen supplies (they have a dorm kitchen); additionally, there's a mini-fridge/microwave in my room. While I don't have a car, there are two grocery stores in close proximity, and I will have a bike. Both of my roommates are completely understanding (one of them has a gluten-free brother) and won't eat my food if I ask them not to.

kareng Grand Master

Yeah, I am going to contact the disability center on campus, but I'm waiting until I have the diagnosis, because I need to have that in hand before they will even talk to me...I checked out their website.

I have the finances to purchase my own food (if I'm not paying a meal plan), and will be able to bring my own kitchen supplies (they have a dorm kitchen); additionally, there's a mini-fridge/microwave in my room. While I don't have a car, there are two grocery stores in close proximity, and I will have a bike. Both of my roommates are completely understanding (one of them has a gluten-free brother) and won't eat my food if I ask them not to.

Good job! Looks like you have thought this out! Good luck! I would love to know how this works out. Keep posting, especially if you get resistance. We may be able to think of something.

My son goes to Colorado State. They seem to have very good precautions in place. But you wouldn't know about some of them if you didn't ask. Like fresh gloves, fresh surface, fresh sandwich ingredients, fresh knife, mayo, etc. things the ordinary kid doesn't see.

GlutenFreeAustinite Contributor

Thank you! If I can't get them to waive the whole thing, I'd be happy with just paying a portion of the plan, and supplementing with my own foods. And I'll definitely post with what happens...I have another agonizing 24 hours before I know the diagnosis (not long at all in the scheme of things, but I'm just ready to know NOW haha).

Colorado State sounds fantastic. And the dining hall may be willing to make accommodations that I just don't know about yet. I'd need all of those precautions. I'm also trying to avoid processed foods because I've thrown my system for a loop with all the gluten I ate for the challenge. Plus I have a chronic yeast problem, so I need to be avoiding sugar anyway. Gah.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeAustinite Contributor

I spoke with dining services and I'm not sure how I feel. They cited their gluten free cooler, and I've been there. It literally had one loaf of bread and some pizza crusts. They said the guy who does the pizzas could make me one, but it would be prepared in the same area as regular pizzas. I'd eat mainly rice and boiled vegetables...I don't trust anything else as I'm sensitive to MSG and am trying to eat holistically as I've made myself feel awful this summer from the gluten challenge. He said if there was anything I wanted I could ask, but I worry, as it seems I shouldn't be paying as much considering I can eat very little there.

By the way, I was officially diagnosed with Non-Celiac Gluten Intolerance, but that makes no difference for me.

kareng Grand Master

Have you talked to the Disability office? Do you have something in writing ,from the doc , saying how he wants you to eat? You could write out for the doc what you want it to say.I wrote it and he copied it. YOu could email it & he could tweak it & then sign it. Spell check, etc

To School Administration of State U,

GFA has non Celiac gluten intolerance and sensitivities/allergies to X, Y, & Z. He cannot eat foods that have come into contact through food preparation with these foods. I have advised him to eat a healthy, well-rounded diet that does not contain any of these ingredients.

Because of these food restrictions, I have advised him to purchase and prepare his own food. I do not feel he can attain a healthy and safe diet from a college cafeteria enviroment.

sincerely,

Dr. Karen G

Something like that. Not too long but something that says you have a medical reason to eat a certain way and that the school could not accomadate. you could put something in about what it would take to accomadate you. Listing things like the basic no wheat, rye , barley, MSG, X, Y and Z in any foods. Also, a statement explaining that you cannot eat any foods that may have come in contact with the offending foods. a statement that you need a well rounded diet that includes meats, veggies, fruits, safe grains, dairy ? that has not been prepared with or come in contact with the unsafe foods.

Don't get silly and include liver and onions just because you don't like them. If you can't eat dairy but a tablespoon of butter in a batch of soup is OK, don't list it on your cc list. Don't abbreviate and don't use cc, use cross contact or may have come into contact with.

GlutenFreeAustinite Contributor

Yes, I called the disability office this morning and they were MUCH more helpful than the director of food services, thank heavens. I'm now waiting to hear back from my doctor and schedule an appointment so I can get the documentation. I'm going to have my GP do it as opposed to my GI doctor because she knows more of my history. My GI doctor is sending a letter though. I'm going to make sure I include MSG and foods high in sugar, because they mess with my yeast issues. thank you for your advice!

pianoland Rookie

I had a meal plan on campus (also a medium sized state school) and it literally became my safe haven to eat. At first it was a struggle. I was in constant contact with the executive chef, finding out what I could eat, and how to get more options. The exec chef wasn't doing what I needed, so I arranged a meeting with the top guy, the director of our food services. I explained to him the importance of gluten-free and what needs to happen to make eating gluten free safe. I also reached out to a manager who was really interested in helping me. Things really started to change after that. By the end of one semester, the all-you-can-eat dining hall personally prepared my dinner every night based on my schedule and what I wanted to eat. They fully trained staff on gluten free. They had "allergen-free zone" kits that they prepared sandwiches on, separate pan/utensil for stirfry station, fully stocked gluten free fridge/toaster/microwave... I can go on.

Having a meal plan is convenient when you live on campus. If you find the right people, make your needs known as well as the solution to any issues, and if you really stick to your guns, you can see a lot of change in a short amount of time.

Another thing... you're not alone. Guarantee there's a handful more people on your campus eating gluten free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      New issue

    2. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      21

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      21

      Severe severe mouth pain

    4. - trents replied to Charlie1946's topic in Related Issues & Disorders
      21

      Severe severe mouth pain

    5. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,079
    • Most Online (within 30 mins)
      7,748

    GlutenFreeChef
    Newest Member
    GlutenFreeChef
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Curious if any other disregarded celiacs medically, not eating wheat and other foods im not to consume but yes its in the house because others have to eat. Currently dealing with eye issues, skin issues,blood and colon look fabulous because NOT consuming. Now im dealing with i may have ms or meningioma....Im also sibo positive, ibs which they think is the cause, " depression " which medical has caused me.Why is it so hard for medical to believe. I went to ER Dec 23 per pcp and got blood drawn sick as hell looking like a corpse bride with dark circles and pale skin.No surprise they said my blood is fine and I had to say thats not what im here for because im always told its fine when not, Ketones waked and then they said I have the flu, ya the flu 24/7 for years battling what the heck is going on.Doctors really need to listen, understand celiac which I've tried to school in past from what I've learned on these websites but it feels as if running in a useless circle. Im to take gabapentin 300. for a week and then go up to 600 since taking this and a other med that was prescribed no longer taking because it makes me awake.This one too is amping me up to not be sleepy when I am tired. Just curious if meningioma or ms is a link to core issue of celiac?I also saw the proclamation but confused because it states that California has two women?  Do I reach out to them? Ive already wrote to my local representative in Stanislaus County.Being celiac and dealing with a circus of clowns that didn't diagnose one doesn't make celiac go away and its not fair or right to us.Im angery, diagnosed by gi doctor by biopsy before foods eliminated from my diet, celiac sprue at the age of 23 in 1994.Now menopause has killed any tolerance i had and body affected badly.No one should go through the medical HELL ive been through.  Also positive HLA-DQ2 
    • Charlie1946
      @Caligirl57 hi and thank you for the reply! I have had myself scared to death over this. I am still having pain but it's not as bad. I have always had bad teeth and gums  @trents thank you, so omeprazole is the right thing to take?
    • cristiana
      @Charlie1946 You are more than welcome.  If you are struggling with mental health do consult with a medical professional and follow their advice if they think you need medication, as I did for a while, but I hope you will find these books as helpful as I did on the road to recovery.
    • trents
      PPI is the acronym for Proton Pump Inhibitor. Omeprazole is a PPI. PPI's work in a different way than do "H2 blockers" like Tagamet or Pepcid and different also from acid neutralizers like Tums. 
    • trents
      I think cristiana's post is an important contribution to this discussion and reinforces what I said earlier about the anecdotal nature of those reporting they seem to be able to tolerate wheat products in Europe. We need to be careful not to extrapolate from the particular to the general. And as she also implied, not having a discernable reaction to consuming a wheat product made in Europe or made from flour imported from Europe may not equate to "0" intestinal lining harm for those who actually have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.