Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Out Of A Meal Plan At College


GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor

So I'm heading off to college in the fall, and I'm currently awaiting a diagnosis. Currently, I will have to pay $1639.99 a semester, and I've been to their dining hall, and it's limited in terms of gluten free. There's a small cooler with a few bread items, a salad bar (with high CC risk), and a few vegetable items I'd feel safe eating (plain baked potatoes, boiled carrots, etc.). I don't want to pay that much money for a meal plan where I can't eat 90% of the items, and I feel like the CC risk in the cafeteria (it's a moderately sized public state university) would be extremely high. Does anyone have any tips for getting out of the mandatory meal plans?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You will probably need an official diagnosis. Contact the Disiabilty department and find out what you might need. They may tell you that, even with a diagnosis, they provide gluten-free food so pay up.

GlutenFreeAustinite Contributor

Thank you. The official diagnosis will most likely be in tomorrow so here's to hoping my school will be kind and understanding. They honestly provide like three gluten-free items, but maybe they'd be more careful if they had an actual celiac in the house...I don't think they do at the moment.

kareng Grand Master

You could print out ( with links to prove they are real) info from the various Celiac Centers. They all have a part where they have a "no gluten, not even a crumb" statement. Also, a note from your GI and regular doctor saying that those gluten-free provisions are not safe nor provide a balanced diet.

Have you talked to the food service and Disability Services yet? Maybe there are some accommodations made for the Celiacs but you didn't see it on a visit?

Have you thought about:

How will you provide food for yourself?

How you will get to a store to buy it ( if you don't have a car)?

How you will prepare it? A dorm might not let you have a crockpot, toaster, etc. They are hard to hide because the smell will waft out into the hallway.

Roommate who might not be sensitive and eat your gluten-free cookies? ( need a way to lock up food )

Getting this figured out before you get to school would be best. Having a written plan and documentation would also help. Having your parents involved will make them take you more seriously, too.

I don't remember how old you are. I'm assuming 18 or 19. I'm talking to you like I would to my 19 year old.

GlutenFreeAustinite Contributor

Yeah, I am going to contact the disability center on campus, but I'm waiting until I have the diagnosis, because I need to have that in hand before they will even talk to me...I checked out their website.

I have the finances to purchase my own food (if I'm not paying a meal plan), and will be able to bring my own kitchen supplies (they have a dorm kitchen); additionally, there's a mini-fridge/microwave in my room. While I don't have a car, there are two grocery stores in close proximity, and I will have a bike. Both of my roommates are completely understanding (one of them has a gluten-free brother) and won't eat my food if I ask them not to.

kareng Grand Master

Yeah, I am going to contact the disability center on campus, but I'm waiting until I have the diagnosis, because I need to have that in hand before they will even talk to me...I checked out their website.

I have the finances to purchase my own food (if I'm not paying a meal plan), and will be able to bring my own kitchen supplies (they have a dorm kitchen); additionally, there's a mini-fridge/microwave in my room. While I don't have a car, there are two grocery stores in close proximity, and I will have a bike. Both of my roommates are completely understanding (one of them has a gluten-free brother) and won't eat my food if I ask them not to.

Good job! Looks like you have thought this out! Good luck! I would love to know how this works out. Keep posting, especially if you get resistance. We may be able to think of something.

My son goes to Colorado State. They seem to have very good precautions in place. But you wouldn't know about some of them if you didn't ask. Like fresh gloves, fresh surface, fresh sandwich ingredients, fresh knife, mayo, etc. things the ordinary kid doesn't see.

GlutenFreeAustinite Contributor

Thank you! If I can't get them to waive the whole thing, I'd be happy with just paying a portion of the plan, and supplementing with my own foods. And I'll definitely post with what happens...I have another agonizing 24 hours before I know the diagnosis (not long at all in the scheme of things, but I'm just ready to know NOW haha).

Colorado State sounds fantastic. And the dining hall may be willing to make accommodations that I just don't know about yet. I'd need all of those precautions. I'm also trying to avoid processed foods because I've thrown my system for a loop with all the gluten I ate for the challenge. Plus I have a chronic yeast problem, so I need to be avoiding sugar anyway. Gah.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeAustinite Contributor

I spoke with dining services and I'm not sure how I feel. They cited their gluten free cooler, and I've been there. It literally had one loaf of bread and some pizza crusts. They said the guy who does the pizzas could make me one, but it would be prepared in the same area as regular pizzas. I'd eat mainly rice and boiled vegetables...I don't trust anything else as I'm sensitive to MSG and am trying to eat holistically as I've made myself feel awful this summer from the gluten challenge. He said if there was anything I wanted I could ask, but I worry, as it seems I shouldn't be paying as much considering I can eat very little there.

By the way, I was officially diagnosed with Non-Celiac Gluten Intolerance, but that makes no difference for me.

kareng Grand Master

Have you talked to the Disability office? Do you have something in writing ,from the doc , saying how he wants you to eat? You could write out for the doc what you want it to say.I wrote it and he copied it. YOu could email it & he could tweak it & then sign it. Spell check, etc

To School Administration of State U,

GFA has non Celiac gluten intolerance and sensitivities/allergies to X, Y, & Z. He cannot eat foods that have come into contact through food preparation with these foods. I have advised him to eat a healthy, well-rounded diet that does not contain any of these ingredients.

Because of these food restrictions, I have advised him to purchase and prepare his own food. I do not feel he can attain a healthy and safe diet from a college cafeteria enviroment.

sincerely,

Dr. Karen G

Something like that. Not too long but something that says you have a medical reason to eat a certain way and that the school could not accomadate. you could put something in about what it would take to accomadate you. Listing things like the basic no wheat, rye , barley, MSG, X, Y and Z in any foods. Also, a statement explaining that you cannot eat any foods that may have come in contact with the offending foods. a statement that you need a well rounded diet that includes meats, veggies, fruits, safe grains, dairy ? that has not been prepared with or come in contact with the unsafe foods.

Don't get silly and include liver and onions just because you don't like them. If you can't eat dairy but a tablespoon of butter in a batch of soup is OK, don't list it on your cc list. Don't abbreviate and don't use cc, use cross contact or may have come into contact with.

GlutenFreeAustinite Contributor

Yes, I called the disability office this morning and they were MUCH more helpful than the director of food services, thank heavens. I'm now waiting to hear back from my doctor and schedule an appointment so I can get the documentation. I'm going to have my GP do it as opposed to my GI doctor because she knows more of my history. My GI doctor is sending a letter though. I'm going to make sure I include MSG and foods high in sugar, because they mess with my yeast issues. thank you for your advice!

pianoland Rookie

I had a meal plan on campus (also a medium sized state school) and it literally became my safe haven to eat. At first it was a struggle. I was in constant contact with the executive chef, finding out what I could eat, and how to get more options. The exec chef wasn't doing what I needed, so I arranged a meeting with the top guy, the director of our food services. I explained to him the importance of gluten-free and what needs to happen to make eating gluten free safe. I also reached out to a manager who was really interested in helping me. Things really started to change after that. By the end of one semester, the all-you-can-eat dining hall personally prepared my dinner every night based on my schedule and what I wanted to eat. They fully trained staff on gluten free. They had "allergen-free zone" kits that they prepared sandwiches on, separate pan/utensil for stirfry station, fully stocked gluten free fridge/toaster/microwave... I can go on.

Having a meal plan is convenient when you live on campus. If you find the right people, make your needs known as well as the solution to any issues, and if you really stick to your guns, you can see a lot of change in a short amount of time.

Another thing... you're not alone. Guarantee there's a handful more people on your campus eating gluten free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.