Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Celiac Disease Be Causing My Other Health Issues?

dmcook1990

Recommended Posts

dmcook1990 Newbie
dmcook1990
Posted

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

You said things got worse "Since I moved back home"....are you are getting cross-contaminated somehow?

There could be a number of reasons why you feel worse, but let's start with this one.

frieze Community Regular
frieze
Posted

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle

I had typed up a reply earlier, lost in ...

1) When did you start you gluten free life? did you see any improvement at that time?

2) Do you presently live in a mixed household?

3) Who does your food prep? and are they cognizant of what you require?

4) Have you checked all your personal care items and meds/supplements?

5) Totally unconected to celiac, are depressed r/t lack of employment?

eatmeat4good Enthusiast
eatmeat4good
Posted

Gluten can cause all of what you are experiencing. At my sickest that was how every single day was....

Only being 100% gluten free will fix it.

That means traces and cc need to be watched for and avoided carefully.

You can get better, but your food is your lifeline...so be sure it is gluten free.

Severe and profound depression and anxiety can be caused by Celiac. If I fet any gluten at all, I feel that way too.

good luck and I hope you figure this out soon, it's a miserable way to live.

dmcook1990 Newbie
dmcook1990
Posted
  • Author

I do not think there is any cross contamination at my house. My mom eats mostly gluten free too. She does have some gluten items but we are sure to have our own butter and condiments and everything so we eliminate a lot of the possibiltities.

dmcook1990 Newbie
dmcook1990
Posted
  • Author

1) When did you start you gluten free life? did you see any improvement at that time?

I began eating gluten free almost immediately after being diagnosed in 2009. I relapsed back to gluten during my 3rd year in college but then started back up on it after a few months. My mom says she saw improvements especially in my bathroom usage but I dont feel dramatically better ever. I feel like there are slight improvements but I expected to feel much better in a few months as my doctor informed me I most likely would.

2) Do you presently live in a mixed household?

Yes I live with my mo who does not eat fully gluten free all the time.

3) Who does your food prep? and are they cognizant of what you require?

My mom and I do our food prep and she also mostly eats gluten free. We are very careful about cross contamination.

4) Have you checked all your personal care items and meds/supplements?

I have checked the medications and some cosmetics. I am still working on my shower items to see if they contain any gluten.

5) Totally unconected to celiac, are depressed r/t lack of employment?

It definetly could be related. I also think that being so illl has made me stay home more and not do the things I enjoy. I only hang out with a few friends because I feel anxious. Not sure why but I just don't want to see anyone.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.