Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Celiac Disease Be Causing My Other Health Issues?


dmcook1990

Recommended Posts

dmcook1990 Newbie

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

You said things got worse "Since I moved back home"....are you are getting cross-contaminated somehow?

There could be a number of reasons why you feel worse, but let's start with this one.

frieze Community Regular

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle

I had typed up a reply earlier, lost in ...

1) When did you start you gluten free life? did you see any improvement at that time?

2) Do you presently live in a mixed household?

3) Who does your food prep? and are they cognizant of what you require?

4) Have you checked all your personal care items and meds/supplements?

5) Totally unconected to celiac, are depressed r/t lack of employment?

eatmeat4good Enthusiast

Gluten can cause all of what you are experiencing. At my sickest that was how every single day was....

Only being 100% gluten free will fix it.

That means traces and cc need to be watched for and avoided carefully.

You can get better, but your food is your lifeline...so be sure it is gluten free.

Severe and profound depression and anxiety can be caused by Celiac. If I fet any gluten at all, I feel that way too.

good luck and I hope you figure this out soon, it's a miserable way to live.

dmcook1990 Newbie

I do not think there is any cross contamination at my house. My mom eats mostly gluten free too. She does have some gluten items but we are sure to have our own butter and condiments and everything so we eliminate a lot of the possibiltities.

dmcook1990 Newbie

1) When did you start you gluten free life? did you see any improvement at that time?

I began eating gluten free almost immediately after being diagnosed in 2009. I relapsed back to gluten during my 3rd year in college but then started back up on it after a few months. My mom says she saw improvements especially in my bathroom usage but I dont feel dramatically better ever. I feel like there are slight improvements but I expected to feel much better in a few months as my doctor informed me I most likely would.

2) Do you presently live in a mixed household?

Yes I live with my mo who does not eat fully gluten free all the time.

3) Who does your food prep? and are they cognizant of what you require?

My mom and I do our food prep and she also mostly eats gluten free. We are very careful about cross contamination.

4) Have you checked all your personal care items and meds/supplements?

I have checked the medications and some cosmetics. I am still working on my shower items to see if they contain any gluten.

5) Totally unconected to celiac, are depressed r/t lack of employment?

It definetly could be related. I also think that being so illl has made me stay home more and not do the things I enjoy. I only hang out with a few friends because I feel anxious. Not sure why but I just don't want to see anyone.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,671
    • Most Online (within 30 mins)
      7,748

    brad Mccarroll
    Newest Member
    brad Mccarroll
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.