Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Celiac Disease Be Causing My Other Health Issues?


dmcook1990

Recommended Posts

dmcook1990 Newbie

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

You said things got worse "Since I moved back home"....are you are getting cross-contaminated somehow?

There could be a number of reasons why you feel worse, but let's start with this one.

frieze Community Regular

Hello all,

I am new to posting in forums about Celiac Disease but I am very excited to begin. My name is Danielle and I am a 21 year old recent college graduate. I was diagnosed with Celiac Disease in early 2009. I was also diagnosed with GERD, Chronic Migraines, Carpal Tunnel Syndrome and Cavus Foot Deformity before and after my Celiac diagnosis. Recently, I lost my health insurance through the government when I turned 21 and of course I had several tests and procedures scheduled afterwards. In addition to gluten, I try to stay away from dairy too.

My symptoms of Celiac include cramps, gas, bloating, diarrhea, easy bruising, iron deficient anemia, fatigue, weakness, fluid retention, nausea, vomiting and others. Some of the other symptoms I am experiencing may not be caused by Celiac.

I graduated in May 2012, just a few months ago. Since I moved back home after graduation, I have been the sickest I've been in my life. I feel anxious and somewhat depressed all the time; resulting in loss of sleep and I am overwhelmed with everything. My sleeping habits are completely screwed up. Going to sleep at 4am and waking up at 1pm seems like my natural sleep/wake cycle. Each day when I wake up, I feel like a took a sedative in my sleep. I can barely keep my eyes open and I sleep through my alarms and wake ups. Then when I wake up, sometimes I have headaches and I always have diarrhea, bloating, nausea and just and overall feeling of being sick. It takes me hours of going to the bathroom and laying down until I feel better to even start getting ready for the day.

I had been applying for jobs and trying to volunteer but I have been so sick every day. I still have all of my Celiac Disease symptoms and now even more. I am hoping to see if anyone has similar stories and what they did to overcome this. Also, could all my issues be caused by Celiac? I have been eating a careful gluten free diet and I should have some improvement in how I feel...

Thank you and I appreciate responses!!!

-Danielle

I had typed up a reply earlier, lost in ...

1) When did you start you gluten free life? did you see any improvement at that time?

2) Do you presently live in a mixed household?

3) Who does your food prep? and are they cognizant of what you require?

4) Have you checked all your personal care items and meds/supplements?

5) Totally unconected to celiac, are depressed r/t lack of employment?

eatmeat4good Enthusiast

Gluten can cause all of what you are experiencing. At my sickest that was how every single day was....

Only being 100% gluten free will fix it.

That means traces and cc need to be watched for and avoided carefully.

You can get better, but your food is your lifeline...so be sure it is gluten free.

Severe and profound depression and anxiety can be caused by Celiac. If I fet any gluten at all, I feel that way too.

good luck and I hope you figure this out soon, it's a miserable way to live.

dmcook1990 Newbie

I do not think there is any cross contamination at my house. My mom eats mostly gluten free too. She does have some gluten items but we are sure to have our own butter and condiments and everything so we eliminate a lot of the possibiltities.

dmcook1990 Newbie

1) When did you start you gluten free life? did you see any improvement at that time?

I began eating gluten free almost immediately after being diagnosed in 2009. I relapsed back to gluten during my 3rd year in college but then started back up on it after a few months. My mom says she saw improvements especially in my bathroom usage but I dont feel dramatically better ever. I feel like there are slight improvements but I expected to feel much better in a few months as my doctor informed me I most likely would.

2) Do you presently live in a mixed household?

Yes I live with my mo who does not eat fully gluten free all the time.

3) Who does your food prep? and are they cognizant of what you require?

My mom and I do our food prep and she also mostly eats gluten free. We are very careful about cross contamination.

4) Have you checked all your personal care items and meds/supplements?

I have checked the medications and some cosmetics. I am still working on my shower items to see if they contain any gluten.

5) Totally unconected to celiac, are depressed r/t lack of employment?

It definetly could be related. I also think that being so illl has made me stay home more and not do the things I enjoy. I only hang out with a few friends because I feel anxious. Not sure why but I just don't want to see anyone.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    2. - trents replied to JamieAnn's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Jersey Mike’s option: Gluten-free bread

    3. - JamieAnn posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Jersey Mike’s option: Gluten-free bread

    4. - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Persistent isolated high DGP-IGG in child despite gluten-free diet

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,508
    • Most Online (within 30 mins)
      7,748

    JamieAnn
    Newest Member
    JamieAnn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
    • trents
      Welcome to the celiac.com community, @JamieAnn!  Glad you had a good experience at your local Jersey Mike's.  In the town I live in all we have is Subway and they stopped offering gluten free buns. So, I can't eat there anymore. Oh, more recently there has come to our town a Firehouse sub shop and, according to the Internet, they offer gluten free buns but I haven't tried them yet. For super sensitive celiacs, cross-contamination in handling at these sub shops may also be a problem.
    • JamieAnn
      Today, in Uniontown, PA,  I ordered Jersey Mike’s Italian sub on gluten-free bread (paid extra for gluten-free) for my brother who hasn’t had a sub in yrs (neorological prob if consumes). He’s so happy! Their gluten-free bread is from a company that specializes in gluten-free products, some of which I’ve enjoyed before, so figured a sub would be good! Jersey Mike’s fast-food restaurant chain
    • cristiana
      Thank you @knitty kitty x
    • trents
      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks.  When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did before going gluten free. They have lost all tolerance to the poison they had when consuming wheat products regularly. That is certainly the case with me. A couple of years ago I accidentally consumed a wheat biscuit my wife had made thinking it was a gluten free one and it made me violently ill. So, I mention that as I don't know if your son has started the gluten challenge yet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.