Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With G.i. Issues


elbar

Recommended Posts

elbar Apprentice

I am looking for an answer to a question that I have been wondering about for a while. I was diagnosed with celiac disease as a baby 62 years ago and my family was told that I was "cured" after 8 years on the special diet. Now I have found out that, while I didn't get any G.I. symptoms over these 54 years, apparently I did have DH symptoms and that was what brought me to the dermatologist last month.

Now I am told that I have DH, and celiac as well since there is no cure. My question is, if I follow a gluten-free diet, is it still possible to have stomach problems, or does that happen only if I get glutened? Now that I'm watching everything I eat, my stomach seems to be always in turmoil, as opposed to very rarely during these past 54 years.

Does anyone have an answer to that question? Thanks in advance if you do.

elbar


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I am looking for an answer to a question that I have been wondering about for a while.  I was diagnosed with celiac disease as a baby 62 years ago and my family was told that I was "cured" after 8 years on the special diet.  Now I have found out that, while I didn't get any G.I. symptoms over these 54 years, apparently I did have DH symptoms and that was what brought me to the dermatologist last month.

Now I am told that I have DH, and celiac as well since there is no cure.  My question is, if I follow a gluten-free diet, is it still possible to have stomach problems, or does that happen only if I get glutened?  Now that I'm watching everything I eat, my stomach seems to be always in turmoil, as opposed to very rarely during these past 54 years.

Does anyone have an answer to that question?  Thanks in advance if you do.

elbar

<{POST_SNAPBACK}>

Have you checked for 'hidden' sources of gluten, for example - stamps and envelopes, do you lick them, may not be safe. Did you de-gluten your kitchen throughly, change your toaster and are you careful not to let gluten containing foods near your food? Have you checked with your spice companies for the spices you use? McCormicks pure spices are safe, but check spice mixes. Have you checked your toothpaste, all medications, even ones for tummy problems, have you checked your soaps and shampoos? Do you grill on the same grill? Gluten is one of the most hard to break down proteins on earth, it doesn't break down even when incinerated. Do you ever use powdered gloves, food service or general service, often not safe.

Something our family has found in the last couple years is that now that we have been gluten-free for awhile when we get accidentally 'poisoned' the effects for my son who had little 'tummy' problems is more severe, for myself who was almsot totally disabled before it was diagnosed the tummy reaction is a little less, unless I get a good jolt.

If after you know for sure you have been gluten-free for awhile and you develop a long lasting problem you should get it checked. Most intestinal symptoms will be gone in at most a few days if totally gluten-free (usually). It of course is still possible to have other problems, other food intolerances like dairy or soy. In addition have you taken antibiotics in the last year or so, if so you might want to try some probiotics. Good luck and I hope you get a resolution of your difficulties soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,223
    • Most Online (within 30 mins)
      7,748

    Noddy989
    Newest Member
    Noddy989
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @EricaFilpi, please tell us more about your recovery...did you need to take iron infusions or supplements? What other supplements are you taking? I'll assume you've been gluten-free since August.
    • joleenrae
      We have been tested and tested negative. But we have not done the gene testing. 
    • cristiana
      So true, @trents, I was a skeptic myself!  
    • trents
      Although I disagree with interjecting the element of dermatitis herpetiformis since this is not a real issue for the OP, I think Rogo72 gives good advice about how to navigate social situations as a celiac when finding yourself in unsympathetic company. It requires developing somewhat of a tuff skin and holding your ground in order to be safe. The psychology of these situations is that family and friends try to make you as the celiac feel that you have a mental problem rather than a medical one. The fact is, they are the ones with the mental problem (ignorance and arrogance). It helps to avoid the brow beatdown to reframe it in that sense. But at the same time you must avoid the temptation to develop bitterness toward them which will destroy relationships. Rise above that and keep this one issue in its place so that it doesn't commandeer the whole of the relationships involved. As I mentioned above, I'm sure we can all remember times when we misjudged others because we were ignorant of the facts. One thing that sometimes happens in the celiac social experience is when some of those who were skeptical and critical of a celiac friend or family member find out they themselves have celiac disease. Boy, how that can change their attitude! And keep in mind, some studies have shown that almost 50% of the first degree relatives of those with celiac disease will themselves develop celiac disease. So, @sillyyak52, you may have the last laugh!
    • EricaFilpi
      Hey SicilyGirl, I feel your pain, I am 51 and was diagnosed in August with Celiac and actually had to have iron transfusions because my iron was so low. I never had energy, going to one store wiped me out, it was horrible. Then the weirdest thing happened two weeks ago, I realized I had energy when I was talking on a phone and moving heavy Christmas boxes around like they were nothing, and then I ran off to make dinner. Talk to your doctor about your concerns and give yourself some grace. 
×
×
  • Create New...