Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotic Question


JSegura226

Recommended Posts

JSegura226 Apprentice

I have a question for all you probiotic experts..

In the month of June, I put on a good 15+ lbs while eating a whole foods diet and counting calories. During this time I also added a couple high calorie sweets everyday (Hail Merry Miracle tarts) for a calorie and fat boost...As July rolled in, my weight was the highest it had ever been in my entire life! I was on a roll and feeling great!.. Well I was on a roll up until 4th of July weekend... During this weekend I started to feel a bit gross in the gut and I knew something bad was coming... Sure enough, as the week progressed my bowel movements were getting more loose by the day, I was cramping, became very gassy and completely lost my appetite. I also developed what I think was a small case of thrush on my tongue...

I figured that I probably was eating too much sugar and developed an overgrowth of baddie microbes. Well I started a strict No-Sugar Diet about 12 days ago and started taking Culturelle Digestive health Dairy free along with my usual supplements of Digest gold and cod liver oil... I am on my 13th day on the probiotics and I feel like the probiotics are actually making me worse!! I wake up every morning feeling fine and take the pill and I swear I can feel it going through my system and upsetting everything on the way down. By mid day I am hunched over in pain...

My question is, Should I just buckle down and continue taking it until I feel better? Or should I stop and see if I feel better without it?? Also is 13 days long enough for a probiotic to go win the war with the bad bacteria?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraB0927 Apprentice

I have a question for all you probiotic experts..

In the month of June, I put on a good 15+ lbs while eating a whole foods diet and counting calories. During this time I also added a couple high calorie sweets everyday (Hail Merry Miracle tarts) for a calorie and fat boost...As July rolled in, my weight was the highest it had ever been in my entire life! I was on a roll and feeling great!.. Well I was on a roll up until 4th of July weekend... During this weekend I started to feel a bit gross in the gut and I knew something bad was coming... Sure enough, as the week progressed my bowel movements were getting more loose by the day, I was cramping, became very gassy and completely lost my appetite. I also developed what I think was a small case of thrush on my tongue...

I figured that I probably was eating too much sugar and developed an overgrowth of baddie microbes. Well I started a strict No-Sugar Diet about 12 days ago and started taking Culturelle Digestive health Dairy free along with my usual supplements of Digest gold and cod liver oil... I am on my 13th day on the probiotics and I feel like the probiotics are actually making me worse!! I wake up every morning feeling fine and take the pill and I swear I can feel it going through my system and upsetting everything on the way down. By mid day I am hunched over in pain...

My question is, Should I just buckle down and continue taking it until I feel better? Or should I stop and see if I feel better without it?? Also is 13 days long enough for a probiotic to go win the war with the bad bacteria?

I dont have an issue with putting on weight (I'm actually trying to lose it!) but I did have an issue with a high amount of probiotics in Kefir. I drank a small amount of Kefir just to see if I liked the taste and about an hour later I was curled up on the floor screaming in pain. My nutritionist told me that a lot of people with Celiac have a hard time with high amounts of probiotics at least until they heal more. She doesn't want me to drink any more for a long time until I can work it back in slowly. How long have you been gluten free? Maybe you should hold off on the probiotics until you've healed more??

Link to comment
Share on other sites
JSegura226 Apprentice

I dont have an issue with putting on weight (I'm actually trying to lose it!) but I did have an issue with a high amount of probiotics in Kefir. I drank a small amount of Kefir just to see if I liked the taste and about an hour later I was curled up on the floor screaming in pain. My nutritionist told me that a lot of people with Celiac have a hard time with high amounts of probiotics at least until they heal more. She doesn't want me to drink any more for a long time until I can work it back in slowly. How long have you been gluten free? Maybe you should hold off on the probiotics until you've healed more??

I have been gluten, dairy, soy and grain free for about 17 months now. 2 months ago I had my second endoscopy with celiac panel and the doctor says everything looked great and healed up.. The weird thing is I have actually taken this specific probiotic before, but never had any issues with it other than a little occasional gas... but then again, last time I took it, I was not particularly having belly issues to start out with other than the normal healing pains..I am starting to think that the pains I am feeling right now are the good bugs and bad bugs waging war.

Link to comment
Share on other sites
Bubba's Mom Enthusiast

Probiotics will wage war with bad bacteria. If you feel symptoms after taking them it could be an indication that you are getting a die off? Some probiotics have inulin or other probiotic "feeders" in them too, which *could* cause a reaction, so read the label?

If you are eating a diet that starves out yeast and the bad bacteria that feed on sugars and starches, stay with it but cut back on the probiotic if it's making you too ill to function. You could be getting the double whammy of a die off from starving the bad guys AND the die off from the probiotics? You can increase it later. It's good to keep taking it so your intestine is full of good guys. No parking spots left for the bad guys. ;)

If you had thrush..that suggests there *could* be a yeast battle going on too? If you don't currently have a good quality coconut oil in your diet, I highly recommend adding it. Nutivia is a good one.

It helps more than just your intestine. It's a wonder food.

Link to comment
Share on other sites
beachbirdie Contributor

You might try a probiotic without inulin or other prebiotics (another poster mentioned this). I can't say with scientific certainty that this is an issue, I do know that when I started on probiotics after my diverticulitis I got gut-wrenching cramps every time I took them.

Now, after learning how the Specific Carbohydrate Diet works against bad bacteria, I figured it was probably the prebiotics making me sick.

Try to find one that allows you to start on a very tiny dose. Work your way up gradually as you can tolerate. And don't expect instant results. Gut healing takes from many months, up to a year or two.

Link to comment
Share on other sites
FruitEnthusiast Enthusiast

Someone in an earlier post said: "My nutritionist told me that a lot of people with Celiac have a hard time with high amounts of probiotics at least until they heal more"

My ND has me taking two different probiotic capsules twice a day, that's four capsules every day. I'm not getting better, and I feel sick so much of the time. Is anyone else taking such a high dose daily of probiotics, or has anyone heard of that before? Being sick so much is really getting me down. I swear the learning curve on this gluten stuff is never ending.

Link to comment
Share on other sites
veronika Newbie

I'm pretty sensitive to probiotics myself and cannot tolerate a full dose of anything I try.

That and, like other posters suggested, inulin is sometimes really rough on your system so you can try to avoid it and see if that helps. It promotes the growth of intestinal bacteria (growth of good AND bad bacteria) so it may be making things even harder on you.

Maybe you can try a powdered or liquid probiotic for awhile so you can introduce it in smaller doses until your system stabilizes with it? If by mid-day you are hunched over in pain, you are probably taking too much. If you are really sensitive, you can start off with a good probiotic yogurt (or you can culture your own with the probiotics you currently have) and work up to taking full strength probiotics when you are ready.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TeknoLen Rookie

I was taking probiotics daily and sometimes twice daily for about six months and then ran out before I could get to the store. Once I went off of them, I noticed my constipation improved significantly. I am pretty sure that nothing else in my diet changed. I bought some more since but have not added them back yet. I plan to resume eventually to see if this was what was causing the C. It is said often here and continues to be true, everybody is different. For some, probiotics are effective, for me the jury is still out. Good luck finding your own truth!

Link to comment
Share on other sites
jerseyangel Proficient

I'm very sensitive to probiotics myself. I stopped trying them altogether. I do eat a good sized serving if plain Greek yogurt every say. If you need to be dairy free, fermented foods such as sourkraut might also be worth a try.

Link to comment
Share on other sites
FruitEnthusiast Enthusiast

That is so helpful, thanks. I'm taking a break from the probiotics to see what happens. It's starting to seem like each thing my ND asks me to try makes me worse. Now she's asked me to try a parasite cleanse, though I have no reason to suspect I have any parasites. I just don't think she realizes what a delicate balance it is in there while our intestinal lining is healing.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Dhruv replied to Dhruv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Confused with test results

    2. - trents replied to Dhruv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Confused with test results

    3. - knitty kitty replied to Mary Em's topic in Related Issues & Disorders
      9

      Passing out

    4. - Dhruv replied to Dhruv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Confused with test results

    5. - Suzyq112 replied to Jean Shifrin's topic in Related Issues & Disorders
      17

      Severe joint swelling from Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,751
    • Most Online (within 30 mins)
      7,748

    Xinlu
    Newest Member
    Xinlu
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dhruv
      @trents I really appreciate your valuable feedback, absolutabsolutely's health is my utmost priority as a parent and i will do whatever it will take me to, i m not in denial mode at all, i m just not getting that why doctor has no answers of my questions.  Doctors here behind me to do endoscopy to confirm,  if it's very high than normal then why they are behind me to test. Even his physician here said let him eat once in a while, and will respect him only if symptoms occur. So whole process has made me upset. But will keep your feedback in mind. Thank you very much.
    • trents
      For a person with celiac disease, every time wheat is consumed it generates inflammation in the lining of the small intestine. This is not just an irritation reaction like a hot spice might produce, it is an autoimmune reaction where the body is attacking its own tissues. If this happens frequently over time it will trash the villous lining of his small bowel and inhibit his ability to absorb nutrients from his food since that is the portion of the intestinal track where all the nutrition from the food we eat is absorbed. Carbs can be had easily apart from wheat or rice. Potatoes for instance or any grain like corn or sorghum.  It is not always true that everything in small quantity is good for your health. What is true is that there are some things that are harmful in any quantity for some people. Yes, it is hard to believe that something considered to be a staple by most people groups around the world can be harmful. That has always been the resistance the celiac community has faced in getting people to accept the fact then when you have celiac disease you must absolutely avoid wheat, barley and rye. Many people are cynical, even still some doctors, and see gluten intolerance as the latest "fad" disease.  Your son's ttg(IGA) score is greater than 100 when normal cut off is 3. I do not understand how your physician in India can dismiss that. This particular antibody is very specific for celiac disease and would not be elevated due to Epstein Barr virus. This will likely offend you but I believe you are in denial about the fact that your son has celiac disease. Having this disorder just does not fit in with either his plans for his life or your plans for his life as his parent. But is anything more important than guarding your son's health?
    • knitty kitty
      Y'all may want to get tested for POTS (Postural Orthostatic Tachycardia Syndrome) which can cause fainting, and Gastrointestinal Beriberi, which manifests with vomiting, abdominal pain, diarrhea, fever, chills, and low blood pressure. POTS and Gastrointestinal Beriberi are Thiamine Deficiency Disorders.  Celiac Disease causes malabsorption which results in malnutrition.  Malabsorption affects all the essential vitamins and minerals.  Thiamine, in conjunction with the other B vitamins, makes life sustaining enzymes which enable our body to function.  Gluten free diets can be low in essential B vitamins, especially Thiamine Vitamin B1.  Gluten free processed foods are not required to be enriched with vitamins like gluten containing products.  We need additional extra Thiamine when we consume a high carbohydrate diet.  Consistently eating lots of empty carbohydrates (like gluten free processed foods) can precipitate Thiamine Deficiency Disorders because Thiamine is necessary to turn carbohydrates into energy for the body.  We have an increased demand for Thiamine when we are physically ill, emotionally stressed and physically active, especially in hot weather.  Thiamine cannot be stored in the body longer than three weeks, so deficiency symptoms can appear in as little as three days.  Early symptoms which are vague, include fatigue, depression, irritability, anxiety and malaise.  Symptoms can wax and wane depending on how much Thiamine we consume in our daily diet.  A twenty percent increase of dietary thiamine causes an eighty percent increase in brain function.  The brain, just sitting and worrying, uses as much Thiamine as muscles do while running a marathon.  The cerebellum and the Vagus nerve, which controls blood pressure, digestion, heart rate, also use LOTS of Thiamine.   I limped along for years with a subclinical thiamine deficiency, while suffering from bouts of Gastrointestinal Beriberi and POTS.  My doctors never connected any of my health problems to nutritional deficiencies.  It's just not on their radar.  I studied nutrition before earning a degree in microbiology.  I was curious what vitamins did inside the cells of the body.  I thought "it couldn't be that easy."  Though doubtful, I started supplementing with high dose Thiamine, and had improvement within an hour!  Occam's Razor:  sometimes it's the simplest things.  Thiamine is safe and nontoxic even in high doses.  The B vitamins work together, so I took a B Complex.  The B vitamins are water soluble and easily excreted if not needed.  No harm, no foul to try.    Do talk to your doctor and nutritionist about supplementing with essential vitamins and minerals.  Testing for nutritional deficiencies (though not accurate measurements of deficiencies) should be done before beginning supplementing otherwise you're just measuring the vitamins you ate.  You can have vitamin deficiency symptoms before there are changes in blood levels.   Anemia can be helped by supplementing copper, thiamine and the other B vitamins like B12, as well as iron.   Migraines are improved with Riboflavin Vitamin B 2.  I used to have severe three day long migraines, but Riboflavin made them go away.     Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/
    • Dhruv
      @trentsvery well said. But in india we mostly use pure form of wheat,  like wheat flour or Samoline than refined all purpospurpose Flour, which is very unhealthy. Over the period since atmosphere changes, globe warming definitely affecting whole farming concepts. I m not worried about how my child go off on wheat but why he can't eat once in a while his favorite food? I m also worried to take him completely off from wheat as that may make him more sensitive and cause any other diseases. No doctor has answer of my questions. How many people in this country or india suffer from more dangerous stomach diseases? If you see nothing is good for our body, drinking alcohol, medicines, smoking,  spicy food, green chilli, still we eat, and specially in India,  we eat a lot of spice everyday, our internal body organs had made that way, that's not the case anywhere else in the world we have more than 261 states if india , each state/city has different food, use different ingredients, ultimately it's human body, but it's the way how you develop your body and for which food. Cutting off on staple good is not a good idea, definitely we can decrease the quantity,  if i put my son only on rice, he may get sugar, that means one or other problem. How he can get his energy without eating carbs. I believe everything in small quantity is good for your health. Overdue or stopping can make more complications. When I send my sons reports to india , doctor said he is just above normal,  and don't think about it as if you eat wheat,  you will come positive for this test. I m just gathering opinions to make best decision. We asked him to keep a balance, once in while eating will never be harmful! 
    • Suzyq112
      Thank you! I will look into these! 
×
×
  • Create New...