Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headache Culprit Is Tyramine


cavernio

Recommended Posts

cavernio Enthusiast

I've had worse headaches in the past couple of weeks than I have had in awhile, and I think I've finally figured out why.

Tyramine.

As a kid, (and I don't think I was a celiac as a kid), I would often get headaches, and it didn't take me too long to figure out that cured meats would give them to me sometimes, and then eating too much aged cheddar and pickles, and then artificial sweeteners caused it too. But it was never really consistent; probably because my diet was never consistent and I'm not super sensitive to it, so I need a certain amount to notice it.

Well, since being gluten and dairy free, I've replaced milk with Almond Breeze. And nuts are on the list of foods that are high in tyramine. I also did a test of eating plain gluten-free weiners, and an hour after eating them, bam, headache. Old meat (which is going to be all cured meat) is high in tyramine.

I will try not having any nuts or nut milk these next few days and see if a gluten-free hotdog will still give me the same reaction. (Since I've been having the Almond Breeze every day or close to it), to see what I can tolerate and in what amounts.

So I guess this is just a heads up to someone who might think they have only a nitrate or sulfate problem or a headache problem and you haven't considered tyramine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

You poor poor thing! I'm currently tyramine "free" which means simply consuming as little tyramine as is humanly possible. I think what triggered finding out for me was a combination of my propensity for shopping the marked down meats at the stores and the fact that I consumed approximately 3-4 pounds of spinach in a week. Along with my nuts, cheeses, nitrites, nitrates, etc.... you get the idea. It's awesome that you figured out what's causing the problem, not awesome that it's tyramine.

Honestly, if I had to say which was harder, gluten free or tyramine? Tyramine is harder for me. Why? It just is! I can live without all the bread and other stuff, but there are so many healthy foods that full of tyramine that had become staples after going gluten free. Beans, nuts, leafy greens. Frankly though I called the doctor on the caffeine BS. There is no tyramine in caffeine, it can simply be a trigger for headaches by itself. (I'm not tyramine free for headaches, but for another medical condition.)

I am starting to see what I can and can't tolerate in small amounts. Hormel has a nitrate, nitrite preservative free bacon. Oscar Mayer Selects has hot dogs that are also nitrate/nitrite/preservative free and uncured I believe as well. Not really sure what makes them a hot dog but they are tasty on fresh off the grill.

I also gave my husband a heart attack and spent $12 on a jar of coconut butter. He was like can't you have any of these other ones that are cheaper? I was like, no nuts, no seeds, I can't eat ANYTHING! NO! I can eat coconuts, so damn it I'm buying this.

Skylark Collaborator

I can't do high-tyramine foods or nitrates either. Fortunately I only have to avoid the super-high ones like red wine, aged cheese, and cured meat like ham. I'm going to have to try that Hormel bacon if I can find it and see if it works out. Glad I found this thread. :)

  • 2 years later...
natureman Newbie

I never heard of tryamine! But feeling it now had a v couple of banana. Have not had in 5 Months. Thought it would help with my muscle issues. Woke up with BIG HEAD ache . Wow best even ever had. Also gluten free , bread, dairy, most meats, sugar, fruit, every thing. Things I can eat can count on my fingers . Thanks again celiac. Com. Info much appreciated! Guess it true . Every one saying I'm falling apart!

Finally-45 Contributor

You may have already found the low-histamine & tyramine diet recommended for people with mast cell disorders and others, but here it is:

http://www.mastocytosis.ca/MSC%20HT%20Restricted%20Diet%20Nov2012.pdf

 

Note that it's a good starting point.  Most people find they have to customize their diet to look a lot like this one plus a few adjustments for unique triggers or foods that don't cause trouble (yet).  Good luck, I hope you feel better soon.

  • 1 year later...
Hungrygrl Newbie
On 8/1/2012 at 1:01 PM, cavernio said:

I've had worse headaches in the past couple of weeks than I have had in awhile, and I think I've finally figured out why.

Tyramine.

 

As a kid, (and I don't think I was a celiac as a kid), I would often get headaches, and it didn't take me too long to figure out that cured meats would give them to me sometimes, and then eating too much aged cheddar and pickles, and then artificial sweeteners caused it too. But it was never really consistent; probably because my diet was never consistent and I'm not super sensitive to it, so I need a certain amount to notice it.

 

Well, since being gluten and dairy free, I've replaced milk with Almond Breeze. And nuts are on the list of foods that are high in tyramine. I also did a test of eating plain gluten-free weiners, and an hour after eating them, bam, headache. Old meat (which is going to be all cured meat) is high in tyramine.

I will try not having any nuts or nut milk these next few days and see if a gluten-free hotdog will still give me the same reaction. (Since I've been having the Almond Breeze every day or close to it), to see what I can tolerate and in what amounts.

 

So I guess this is just a heads up to someone who might think they have only a nitrate or sulfate problem or a headache problem and you haven't considered tyramine.

Tyramines are the culprit for my migraines, which came from rising blood pressure. My doctor does not understand this, since I am not on any meds that would cause that.

Then my intolerance of gluten became a problem when eating away from home. My family is sympathetic. They keep trying new "clean" foods to tempt me. But I can count on one hand the foods that don't cause an effect. 

  • 4 years later...
EdithWan Newbie
On 8/1/2012 at 7:01 PM, cavernio said:

I've had worse headaches in the past couple of weeks than I have had in awhile, and I think I've finally figured out why.

Tyramine.

 

As a kid, (and I don't think I was a celiac as a kid), I would often get headaches, and it didn't take me too long to figure out that cured meats would give them to me sometimes, and then eating too much aged cheddar and pickles, and then artificial sweeteners caused it too. But it was never really consistent; probably because my diet was never consistent and I'm not super sensitive to it, so I need a certain amount to notice it.

 

Well, since being gluten and dairy free, I've replaced milk with Almond Breeze. And nuts are on the list of foods that are high in tyramine. I also did a test of eating plain gluten-free weiners, and an hour after eating them, bam, headache. Old meat (which is going to be all cured meat) is high in tyramine.

I will try not having any nuts or nut milk these next few days and see if a gluten-free hotdog will still give me the same reaction. (Since I've been having the Almond Breeze every day or close to it), to see what I can tolerate and in what amounts.

 

So I guess this is just a heads up to someone who might think they have only a nitrate or sulfate problem or a headache problem and you haven't considered tyramine.

 

I've exact the same problem and it took me so long to find out what it was. Celiac and also sensitive to histamine/tyramine. 

I don't get headache's but after eating a dinner with to much tyramine my body starts burning, first of all my legs, then my belly and in worst cases audio my eyes. I get very, very tired, muscles cramp, heartbeat goes up and I can't concentrate anymore. However to sleep. 

This also happens when I eat something wrong at my work so you can understand how difficult it is to work sometimes. 

I'm glad I'm not the only one with this weird situation. 

Can't we stay in contact and share food ideas? 

Kind regards, Edith


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Second chance

    3. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,603
    • Most Online (within 30 mins)
      7,748

    Dale S
    Newest Member
    Dale S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • julie falco
      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.