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- MHavoc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0On the cusp of facing a new life of managing a life with Celiac Disease
As with most of the people that come here, I have questions and need perspective/info from this wonderful community. Some background, started having severe constipation that would not abate even with softners (not really fun to talk about), so I was able to finally get in to see my primary and she scheduled some blood work. One of things she wanted to test... -
- Vozzyv posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Weird Symptoms
Anyone else have intermittent left ear ringing and outer right ear pain? Both seem to happen in the evenings. -
- cristiana replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Options - 7 year old boy - Helicobacter pylori and serology
If your son eventually becomes very symptomatic, that in itself will help keep him on the diet. I had a friend who was diagnosed roughly the same time as me and she used to tell me a lot that she could get away with eating certain gluten containing foods. (Not a good thing to do, but she did all the same). In time she was unable to tolerate them anymore... -
- jjiillee replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Daughter waiting for appointment
Her appointment ended up getting canceled for today. So now we have to wait until Dec 3.- 1
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- Scott Adams replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Daughter waiting for appointment
Let us know how things go.- 1
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0December 11, 2024 12:00 AM
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Posts
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As with most of the people that come here, I have questions and need perspective/info from this wonderful community. Some background, started having severe constipation that would not abate even with softners (not really fun to talk about), so I was able to finally get in to see my primary and she scheduled some blood work. One of things she wanted to test for is Celiac Disease due to my sister having celiac disease since a young child. Here are my test results: MCHC = 31.4 so considered slightly low TISSUE TRANSGLUTAMINASE AB, IGA = 78.8 H So with that result, I was scheduled for an endoscope for confirmation of celiac disease, but I am very confused with the results: Diagnosis 1. Duodenum, biopsy: -No pathologic alteration. 2. Stomach, biopsy: -Mild chronic inflammation with reactive epithelial change -H. pylori not identified on immunostained section. -No intestinal metaplasia or dysplasia I am now scheduled to meet with a GI Specialist from the Celiac team, but that won't be until after the New Year. I would appreciate thoughts about the biopsy report to understand whether it confirms the celiac disease as was indicated by the blood test results. I have been gluten free for two weeks and it is a very difficult adjustment for me as an older 50+ person.
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Anyone else have intermittent left ear ringing and outer right ear pain? Both seem to happen in the evenings.
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If your son eventually becomes very symptomatic, that in itself will help keep him on the diet. I had a friend who was diagnosed roughly the same time as me and she used to tell me a lot that she could get away with eating certain gluten containing foods. (Not a good thing to do, but she did all the same). In time she was unable to tolerate them anymore, and is now very strict with her diet. The football situation with the candy: here in the UK at least, a lot of mainstream chocolate bars and sweets don't actually contain gluten (Bounty Bar, Snickers, Cadbury's Whirl, Crunchie etc) and you may find that that is the case where you live.
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Her appointment ended up getting canceled for today. So now we have to wait until Dec 3.
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