Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Stomach Pain

monkeyface

By monkeyface
in Coping with Celiac Disease

Recommended Posts

monkeyface Newbie
monkeyface
Posted

I wasn't sure where to post this but my wife has been trying to get me to eat gluten free bread but every time I do I get massive stomach aches as well as very loose bowel and blood on the toilet paper but not in the bowl. I can't find anyone with similar problems and I just need some help!? Is this normal should gluten free bread do this to me? I can eat gluten free cookies and crackers and brownies but gluten free bread tears me up! Any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Salax Contributor
Salax
Posted

Hi Monkeyface! Welcome to the boards. We are prolly going to need more information than what you have given. Can you tell us what your eating? Are you still eating gluten in other forms? What brand of gluten-free bread are you eating? Have you seen a doctor? Any tests done? Any other information might be helpful.

What your experiencing in the bathroom, is that every time you go? Recently? Long term? Are you bloating? Pain? (honestly that sounds a lot that what I went and am going through)

Marilyn R Community Regular
Marilyn R
Posted

I wasn't sure where to post this but my wife has been trying to get me to eat gluten free bread but every time I do I get massive stomach aches as well as very loose bowel and blood on the toilet paper but not in the bowl. I can't find anyone with similar problems and I just need some help!? Is this normal should gluten free bread do this to me? I can eat gluten free cookies and crackers and brownies but gluten free bread tears me up! Any suggestions?

It could be soy or dairy... you may develop other (hopefully short lived) intolerances while your autoimmune system is in attack mode. The way I looked at it was I removed the beast my cells were attacking. Everything was good for a very little while. Then my AI system got all ramped up about anything that was similar in protein structure to gluten. I couldn't do egg for awhile either.

Right now, you're best off with whole foods, nothing processed. Root vegetables have been good for me, especially ones I didn't eat regularly before.

So get your starch from a roasted rutabega, your protein from whatever fish, poultry, pork or b

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Same here. I can't tolerate many things temporarily until my intestinal lining heals. In my case, on top of gluten, I also get the same reaction right now from rice, corn, eggs, and nightshade plants (potatoes, tomatoes, peppers). I am assured by my Dr that I will be able to eat these other things again in time, and I've read posts on here where people say they can start eating something again. It's encouraging, but it does take time to get there. I sort feel like I'm in boot camp right now, but there will be a payoff!

monkeyface Newbie
monkeyface
Posted
  • Author

I will admit that I am not comepletaly gluten free just moved not a whole lot of spare money but the only time this happens is when I eat gluten free bread I've tried several different brands and they all do the same thing the only thing that doesn't upset my stomach is pita....but that has gluten.

1desperateladysaved Proficient
1desperateladysaved
Posted

Wow! I thought this post could have been my husband. He has had some problems, but I think he has them after he eats at work. He also calls himself monkeyface.

Maybe a simalar problem causes my family not to be able to eat gluten?

I realized it could not have been my husband when Monkey Face said they eat gluten free cookies and stuff. I stay away from sweets.

Pegleg84 Collaborator
Pegleg84
Posted

First bit of advice: cut out the gluten as much as humanly possible.

You're probably having trouble with gluten-free bread because (depending on what it's made of) it can contain a lot of stuff your body probably isn't familiar with yet -bean flours and such. If you're still eating gluten deliberately, then you haven't given your body time to a: heal from all the damage, or b: adjust to all the new things your making it digest. It takes time to heal and to be able to eat a lot of things without problems.

I know eating gluten-free can be expensive and a hassle, but be strict and stick to it now, and you'll feel better much quicker.

As other posters have said, dairy and soy can be a problem as well, but you have to make sure the gluten is gone before you worry about something else affecting you.

Also, when choosing a gluten-free bread, try something as organic as possible, preferably fresh if you can get it (it's pricier, but often better for you in the longrun), or try making your own.

Good luck and feel better!

Peg

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 year later...
beekeeper Newbie
beekeeper
Posted

i totally get it monkeyf,   ive been gluten free 14 years and get stomach pain every time i eat gluten free bread,,   im not going to eat it again!   

 

I wasn't sure where to post this but my wife has been trying to get me to eat gluten free bread but every time I do I get massive stomach aches as well as very loose bowel and blood on the toilet paper but not in the bowl. I can't find anyone with similar problems and I just need some help!? Is this normal should gluten free bread do this to me? I can eat gluten free cookies and crackers and brownies but gluten free bread tears me up! Any suggestions?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MoniqueCham
      - MoniqueCham replied to MoniqueCham's topic in Related Issues & Disorders
      3

      Celiac Disease, Lymphocytic colitis and Bowel rupture

      Thanks for your reply Scott! A long time ago I realized I didn’t fit neatly into uncomplicated celiac disease. Over the years I’ve been diagnosed and treated for SIBO, pancreatic insufficiency and diagnosed with Stage 2 liver fibrosis. I think all the complications occurred because of the refractory celiac disease. When I hit menopause my gut issues seemed to ...
    2. HelenH
      - HelenH replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Malt vinegar

      Thank.you both
    3. Scott Adams
      - Scott Adams replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Malt vinegar

      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction becau...
    4. Scott Adams
      - Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      55

      Supplements for those Diagnosed with Celiac Disease

      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination wit...
    5. Scott Adams
      - Scott Adams replied to MoniqueCham's topic in Related Issues & Disorders
      3

      Celiac Disease, Lymphocytic colitis and Bowel rupture

      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 m...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,552
    • Most Online (within 30 mins)
      7,748
    dsfraley
    Newest Member
    dsfraley
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • MoniqueCham
      Celiac Disease, Lymphocytic colitis and Bowel rupture

      By MoniqueCham · Posted

      Thanks for your reply Scott! A long time ago I realized I didn’t fit neatly into uncomplicated celiac disease. Over the years I’ve been diagnosed and treated for SIBO, pancreatic insufficiency and diagnosed with Stage 2 liver fibrosis. I think all the complications occurred because of the refractory celiac disease. When I hit menopause my gut issues seemed to calm down and because I was stable I made the mistake of not following up with my gastroenterologist. Then other autoimmune problems flared and I tried the methotrexate. It worked like a charm for my skin condition… then my sigmoid colon ruptured. Strange but my autoimmune skin condition remains in remission after 6 months off the medication. We have a very long waiting list to get back into see my GI doctor… I was an emergency referral but am still waiting 6 months after the perforation. I need more surgery to fix a fistula that has formed and to reconnect my colon… I have a colostomy at present. I became a dietitian who specializes in bowel diseases but have never met anyone who’s had so many complications with celiac disease. I have a brother and son who also have been diagnosed. My mother had 4 autoimmune diseases including a vasculitis that eventually resulted in her death and it was my father who had the HLA DQ2 gene. Think I inherited some tendencies from each of them. Thanks again for your response… it feels a little lonely dealing with GI issues when I work so hard to remain gluten free.   
    • HelenH
      Malt vinegar

      By HelenH · Posted

      Thank.you both
    • Scott Adams
      Malt vinegar

      By Scott Adams · Posted

      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
    • Scott Adams
      Supplements for those Diagnosed with Celiac Disease

      By Scott Adams · Posted

      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
    • Scott Adams
      Celiac Disease, Lymphocytic colitis and Bowel rupture

      By Scott Adams · Posted

      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 mg weekly is extremely uncommon. In people with celiac disease — especially refractory celiac — there can already be underlying intestinal inflammation or altered mucosal integrity, which might theoretically increase vulnerability, but there isn’t strong published evidence clearly linking stable celiac disease to a markedly higher risk of methotrexate-related bowel perforation. Other factors such as concurrent inflammation, vascular compromise, infection, steroid use, or microscopic colitis may also contribute. It would be reasonable to review the case with a gastroenterologist familiar with refractory celiac and possibly a rheumatologist, and to report the event as a potential adverse drug reaction. I’d also be very interested to hear if others in the community have had similar experiences.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.