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Any Fellow Cd's In Nc


Lisa

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lizard00 Enthusiast

I'm another Raleigh-ite :)

Momma Goose, we had some friends that used to live in Edenton. It's beautiful there. I grew up in southeastern VA, Suffolk. It's about a hour to Edenton (if I remember) and about an hour and a half to the OBX. I miss being so close to the ocean...

Liz


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Lisa Mentor
I'm another Raleigh-ite :)

Momma Goose, we had some friends that used to live in Edenton. It's beautiful there. I grew up in southeastern VA, Suffolk. It's about a hour to Edenton (if I remember) and about an hour and a half to the OBX. I miss being so close to the ocean...

Liz

Yup, that would be us. :D PM me about your friends, perhaps we know them. Raleigh really is a small town, you know. We send our kids to go to school there and they never want to leave. Well, some appreciate "home".

lizard00 Enthusiast

Where do your kids go to school?

When I first moved here from Suffolk, I though this place was HUGE!! But my husband and I have been here 4 years now and doesn't seem so big anymore. It's big enough for me... of course everything is very compartmentalized, so you really never have to go more than 5 miles from your home if you don't want to. I have two groceries within walking distance, a drug store and a gym... along with quite a few eateries. What else do you need? lol

Your kids will appreciate home as they get older. It probably seems small to them now, but there's nothing quite like home. :)

lmthoma Newbie

Those living in Hendersonville, NC- I am the manager at Potenza, an italian restaurant downtown, and we just started a gluten-free menu that includes pastas. My younger brother has celiac so I know how difficult it can be to go out to eat. I am not trying to shamelessly promote my restaurant but I do want to let people know that there are options out there and more and more people are becoming aware of celiac disease. I would love feedback on what peoples needs are when they are dining out.

  • 3 months later...
nikken007 Rookie

Hi,

I live in Cary and have been gluten free for at least 3 months. My husband has a gluten intolerance and I highly suspect I do as well. I have no proof, except I feel a lot better! I do have 2 genes for celiac/gluten intolerance. I also have a sister who diagnosed herself with Celiac. We both had the enterolab test. The results were very surprising to us.

I want to let you Raleigh area people know there is a Celiac group that meets once a month at Rex hospital. It's the third thursday of each month. There will be a break for a month and then start back up July 17.

Breila Explorer
Hi,

I live in Cary and have been gluten free for at least 3 months. My husband has a gluten intolerance and I highly suspect I do as well. I have no proof, except I feel a lot better! I do have 2 genes for celiac/gluten intolerance. I also have a sister who diagnosed herself with Celiac. We both had the enterolab test. The results were very surprising to us.

I want to let you Raleigh area people know there is a Celiac group that meets once a month at Rex hospital. It's the third thursday of each month. There will be a break for a month and then start back up July 17.

Hi, I was at the meeting last night, were you there?

I'm in Garner, btw.

nikken007 Rookie

Yes, I was there. I was on the end of the table. I have brown, below the shoulder hair. I had a brown sweater and an olive green shirt. I was a little late and sat next to the new lady in pink.


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Breila Explorer
Yes, I was there. I was on the end of the table. I have brown, below the shoulder hair. I had a brown sweater and an olive green shirt. I was a little late and sat next to the new lady in pink.

Ah yes, I was new, sitting at the other end of the table, short hair and a blue tank top.

Guest digmom1014

Hi-

Just chiming in, I live in Matthews, south of Charlotte. There is an active Charlotte celiac group that I have not been able to meet with yet.

Has anybody been to the Celiac Cookie House in Cornelius? I am trying convince myself to make the drive. I have been sugar-free, dairy-free, egg-free for 4 months and am not sure I feel comfortable introducing those items again. I went gluten-free in Jan. after many years of being sick.

  • 2 months later...
Stormycubs Newbie
Hi, I was at the meeting last night, were you there?

I'm in Garner, btw.

Hi all-

My name is Brandy and I just met Amy at the mall today and she was talking about the rex group. My daughter is 6 and we found out she had celiac when she was 3ish. I have been looking for others around so I am so interested in the rex group. We live in Holly Springs. Can you give me all the info as to where the group meets and the time. I know the next meeting is tonight and I hate that I wont be able to make it. But hopefully I can make the next one. Thanks so much and its so nice to know there are others around going through the same stuff. I can't wait for Kendall to get home from school so I can tell her about the group!!!! :D :D :D :D

Ridgewalker Contributor
Hi all-

My name is Brandy and I just met Amy at the mall today and she was talking about the rex group. My daughter is 6 and we found out she had celiac when she was 3ish. I have been looking for others around so I am so interested in the rex group. We live in Holly Springs. Can you give me all the info as to where the group meets and the time. I know the next meeting is tonight and I hate that I wont be able to make it. But hopefully I can make the next one. Thanks so much and its so nice to know there are others around going through the same stuff. I can't wait for Kendall to get home from school so I can tell her about the group!!!! :D :D :D :D

Well, I got all excited seeing Holly Springs at first... There is a little town called Holly Springs that's just a hop, skip, and a jump from us- We live in Pilot Mountain/Pinnacle. I have two boys, ages 5 and 7. But then I remembered there's a bigger town called Holly Springs down near Raleigh. I bet that's the one you're referring to... Oh well. There are a handful of Raleigh members here, so others should chime in soon! :D

MinRalph Rookie

Hi everyone :)

I live in Jacksoneville, NC and have celiac disease. I have just recently heard of more people who have or know someone who has celiac disease or wheat allergies. It seems to be becoming much more well known, which I find pretty cool. Our local stores actually have a few gluten-free products in them!

Anyway, I just wanted to throw myself out there :D

  • 1 month later...
Guest elysealec
I am also in Wilmington and would love to meet other celiacs in the area. I was just diagnosed this week.

Holly

I live in Kure Beach and am in Wilmington every day. I know of one other celiac in the area. I am sure there are many more. We were talking about getting a gluten free dinner club together. Any interest?

Vicki

  • 6 months later...
KristynRCP Newbie

Hello I was Dx with celiac disease at end of December. I am from Rocky Mount, NC... there is no gluten-free stuff here.. no restaurants or anything.. I have a birthday coming up and I am looking for a gluten free cake.. any ideas from anyone? Im not good at the gluten-free cooking yet..so im looking for a bakery or something like that.....There is no support group here either.. wish i could get one started .....

Kristyn

Lisa Mentor

Kristyn,

I am not from Rocky Mount, but I'm not far. Do you have a Food Lion, if so they have a health food section which carries Pamela's Cake Mixes. Make them as you would a regular cake and I would dare anyone to tell the difference. Pillsbury Frosting often has gluten free choices, you just have to read the label. Wal Mart has many options for gluten free. It's out there, ya just have to find 'em.

The best support you will find in your area is right here on C.com.

bear6954 Apprentice

For anyone in Jacksonville, NC, White Oak Bakery makes gluten free cakes and cookies. You need to call and special order and they are expensive. However, I got a gluten-free cake for my son and it was wonderful. He was so happy to eat cake with everyone else. It brought tears to my eyes!

  • 4 weeks later...
sedkins Newbie

Hello. I am new to this board, but have been gluten-free/CF for about 3 years. My son (11) was recently diagnosed as likely having celiac disease, although he has been gluten-free off and on for about 3 years. We are looking for a support group, particularly one where he might be able to meet some other kids his age because he is really struggling with being "different." We are located in Lumberton, south of Fayetteville.

  • 2 months later...
TotalKnowledge Apprentice
Dear Lisa B.,

I am celiac in Wilmington, NC. Have you heard of any fellow celiacs in this area. I have only been gluten free since Aug 2006 and really haven't found anyone to relate to.

Thanks for your help!

Have a Happy 4th!

Mary Katherine Talley

There is a relatively new support group that is held and Lovey's once a month. I have only been to one meeting, but there were a several people there. They have a sign-up sheet there at the information table right when you come in next to the cafe seating.

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    • cristiana
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    • trents
      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
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    • Marie70
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    • RMJ
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