Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Out There?

Claire

By Claire
in Meet Up Room

Recommended Posts

Claire Collaborator
Claire
Posted

I am looking for a support group somewhere in the area between Frederick, Md. and Harrisburg, PA. Those places would be the ultimate distance.

I live in southern PA - about a half hour from the Maryland border.

Thanks for info. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Hey

I'm near Frederick and myself as well as a friend of mine have been thinking of putting together a celiac group around the area so maybe we could all get together.

Claire Collaborator
Claire
Posted
  • Author
Hey

I'm near Frederick and myself as well as a friend of mine have been thinking of putting together a celiac group around the area so maybe we could all get together.

<{POST_SNAPBACK}>

Thanks for reply. As i said, the cities named are the farthest out I could possibly go. Let me know what you are up to. :)

Mahee34 Enthusiast
Mahee34
Posted
Thanks for reply. As i said, the cities named are the farthest out I could possibly go. Let me know what you are up to.  :)

<{POST_SNAPBACK}>

I live in the battlegrounds.....but currently am away at graduate school, should be back in that area on and off throughout the next year though

Claire Collaborator
Claire
Posted
  • Author
I live in the battlegrounds.....but currently am away at graduate school, should be back in that area on and off throughout the next year though

<{POST_SNAPBACK}>

Hello there. Thanks for reply. Is there a Group in your area?

  • 2 weeks later...
Mahee34 Enthusiast
Mahee34
Posted
Hello there.  Thanks for reply.  Is there a Group in your area?

<{POST_SNAPBACK}>

not that i'm away of, yet anyway

Mom22 Apprentice
Mom22
Posted

There is a support group in Gettysburg, PA that meets twice a year and has a meeting coming up on November 7th, I believe. We have about 40 people and the chairwoman contacts numerous gluten-free companies and gets an awesome abundance of gluten-free samples. I usually come home with several shopping bags of free food. Meetings are on Monday nights. There is also a group that meets in York twice a year, but theirs is on a Friday night. Since they are much larger (100+), they are able to get some great speakers to come in, i.e. Dr. Fasano. Camp Hill, PA also has a group. If you want more information, just e-mail me: prock@pa.net

Mom 2 to 2

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mahee34 Enthusiast
Mahee34
Posted
There is a support group in Gettysburg, PA that meets twice a year and has a meeting coming up on November 7th, I believe.  We have about 40 people and the chairwoman contacts numerous gluten-free companies and gets an awesome abundance of gluten-free samples.  I usually come home with several shopping bags of free food.  Meetings are on Monday nights.  There is also a group that meets in York twice a year, but theirs is on a Friday night.  Since they are much larger (100+), they are able to get some great speakers to come in, i.e.  Dr. Fasano. Camp Hill, PA also has a group.  If you want more information, just e-mail me:  prock@pa.net

Mom 2 to 2

<{POST_SNAPBACK}>

wow, i live in gettysburg and i've never heard of these groups! thanks for the info!!

Claire Collaborator
Claire
Posted
  • Author
wow, i live in gettysburg and i've never heard of these groups! thanks for the info!!

<{POST_SNAPBACK}>

Thanks so much for this reply. I started this topic and am most grateful to hear from you. I live in Chambersburg, PA - about an hour away from Gettysburg. I will contact you. Claire

Lauren M Explorer
Lauren M
Posted

Another vote for the G-burg Support Group!

Hey Mom22, it's me Lauren, I finally found this site :)

Don't think I'll be able to make it to the next meeting because I have class in Philly that night... but I'm sure my Mom will be there in my place. The G-burg group really is great - they were my saviors when I was first diagnosed! I definitely recommend going to the upcoming meeting. Let me know if you have any questions.

- Lauren

Mom22 Apprentice
Mom22
Posted

LAUREN!!!

Glad to see you found this site. Miss you and will catch you at the meeting in the spring, but will also send you an e-mail. I hope you are doing well and look forward to chatting with your mom. Take care!!

P.S. You won't believe how big the kids have gotten.

Mom 2 to 2

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,208
    • Most Online (within 30 mins)
      7,748
    Emily H
    Newest Member
    Emily H
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      There is dextrose in table salt?
    • trents
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By trents · Posted

      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      Medicinal mushrooms 🍄

      By Liquid lunch · Posted

      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Endoscopy

      By Scott Adams · Posted

      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Biopsy results after 1,5 gfd

      By Scott Adams · Posted

      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...