Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Breath, Gastritis, And Dh

cindylou7

By cindylou7
in Dermatitis Herpetiformis

Recommended Posts

cindylou7 Apprentice
cindylou7
Posted

Okay, another weird question for the experts in our forum.

I have been having problems with very bad breath, and a burning gut that are not relieved by a gluten-free diet. My question is, can this be just another symptom of DH, or gastritis, or what?

On a side note, I have realized that this problem comes back after glutening and takes a while to resolve itself.

I will spare you the details of describing the smell, but suffice it to say, people cover their nose when speaking in close proximity!

Very embarrassing!!!

The burning gut is relieved by Pepto Bismol but not Prilosec or Zantac, and somehow it seems to limit the breath odor.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I remember distinctly reading several times medical texts mentioning the bad breath thing, along with dry mouth I believe Cindy. It stuck in my mind b/c my hubs had an acquaintance who matched the description & I thought "I bet he has celiac". They mentioned it being caused by a bad gut.

I'm going to say that it's going to take time for the burning gut to go away. What are you eating? Please describe your diet. There may be some things others can point to which are aggravating the situation.

cindylou7 Apprentice
cindylou7
Posted
  • Author

Okay so my diet is not the best but I try to be gluten-free.

Breakfast is peanut butter and honey on Brown rice bread or eggs from my chicks (free range)

Lunch could be tuna and tomatoes with gluten-free chips or a burger from Carls jr or refried beans and a taco from Taco Bueno

Dinner might be a salad or chips and salsa or whatever I can find.

If I change it up too much I get glutened so I try to avoid it or suffer in silence ;)

  • 1 month later...
Guest chinmoya
Guest chinmoya
Posted

Okay so my diet is not the best but I try to be gluten-free.

Breakfast is peanut butter and honey on Brown rice bread or eggs from my chicks (free range)

Lunch could be tuna and tomatoes with gluten-free chips or a burger from Carls jr or refried beans and a taco from Taco Bueno

Dinner might be a salad or chips and salsa or whatever I can find.

If I change it up too much I get glutened so I try to avoid it or suffer in silence ;)

Do you have onions in your salad? Just curious! ;)

cindylou7 Apprentice
cindylou7
Posted
  • Author

Do you have onions in your salad? Just curious! ;)

I do eat onions though not always in my salad. The bad breath comes after the food has gotten to my stomach. It isn't the type of breath that you can say "well I can tell that she had the garlic soup today" it's more of a "holy cow, what the heck crawled in and died"

It's more of a rotten smell, a dirty fish bowl smell, a dead smell!

Okay, I know that's probably TMI but its accurate. And the dentist said my dental hygiene is great. So go figure...

squirmingitch Veteran
squirmingitch
Posted

I'm going to say it's your gut that hasn't healed yet. Do you take digestive enzymes & probiotics? You should. Culturelle is non dairy & a good probiotic & Enzymedica Digest Gold for digestive enzymes is what most of the ppl here use & swear by. Remember, just b/c we have dh & don't have major GI symptoms doesn't mean we don't have damage to our gut. Matter of fact, I've noticed a harder time digesting certain things now that I'm gluten-free than I had before gluten-free. As I understand, that's pretty par for the course.

IrishHeart Veteran
IrishHeart
Posted

I second Squirmy's suggestion about probiotics for good gut balance.

Have you been checked for h.pylori infection? My Dad had bouts with that and was treated for it, but despite his excellent dental hygiene & vigilance, it caused a rather foul breath for him.

Once resolved, it was better. He had ulcers, gastritis and lived on maalox, zantac and proton pump inhibitors. Poor guy. If only I knew then what I know now.

He had severe anemia and had dozens of blood transfusions. We're sure he was a celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cindylou7 Apprentice
cindylou7
Posted
  • Author

I second Squirmy's suggestion about probiotics for good gut balance.

Have you been checked for h.pylori infection? My Dad had bouts with that and was treated for it, but despite his excellent dental hygiene & vigilance, it caused a rather foul breath for him.

Once resolved, it was better. He had ulcers, gastritis and lived on maalox, zantac and proton pump inhibitors. Poor guy. If only I knew then what I know now.

He had severe anemia and had dozens of blood transfusions. We're sure he was a celiac.

Thanks I'll add the probiotics back in. I've gotten lazy. I want to ask a dr about h pylori. From what I've read it is a possibility.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,250
    • Most Online (within 30 mins)
      7,748
    GrainFreeze
    Newest Member
    GrainFreeze
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Intermittent Fatigue

      By knitty kitty · Posted

      There are thirteen essential vitamins:  eight B vitamins, four fat soluble vitamins, and Vitamin C.  They all work together.   If you are deficient in one, you are probably low in the other dozen.  Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well.  Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine B6 to function properly.  Pyridoxine B6 needs Riboflavin B2.  Vitamin C is needed to interact with B12 as well.  Thiamine B1 and Niacin B3 are also needed to provide the energy for these vitamins to function properly.  If one is also low in Folate and Pyridoxine, B12 Cobalamine is not going to be able to function properly and the body doesn't bother to absorb it.   Vitamin D is safe even in high doses.  Vitamin D3 should be supplemented.  Vitamin D2 is not as well utilized because it's synthetic, not a form the body can utilize easily.  Vitamin D must be activated by Thiamine Vitamin B1.  Insufficient Thiamine B1 will make one feel "dopey".  Thiamine is needed for brain function.  The brain uses as much energy just thinking as your muscles do while running a marathon.   Multivitamins do not contain sufficient amounts of essential vitamins to correct nutritional deficiencies.  Supplementing with ALL eight B vitamins, extra Thiamine (don't use the form thiamine mononitrate because it's not absorbed nor utilized well), Vitamin C and the four fat soluble vitamins will be more beneficial than just supplementing one or two vitamins by themselves. With sufficient amounts of essential vitamins, the immune system gets regulated and becomes less reactive to other things like pollen, molds and animal dander.  Sleep apnea is frequently found in Thiamine insufficiency.  The eight essential B vitamins are water soluble and easily excreted if not needed.  The B vitamins all work together.  Supplement them together. Thiamine deficiency disorders: a clinical perspective https://pubmed.ncbi.nlm.nih.gov/33305487/  
    • Jane07
      any advice would be helpful

      By Jane07 · Posted

      i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give?
    • Michelle Amirault-Packard
      Intermittent Fatigue

      By Michelle Amirault-Packard · Posted

      He should definitely have his vitamin D and Vitamin B12 checked.  I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But  I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a wasn’t Anemic and the normal protocol is , if you are not Anemic they don’t test for B-12.  She had no problem doing the test for me and it came back super super deficient . So I was given a shot of B12 once a week for 4 weeks and I give myself 1 shot intramuscular once a month now for 18 years. Once your B12 is low it can take a long time to bring it back up and sustain it. I think it took about 6 months to get a decent number and about a year to get it right. I do get my Vitamin D checked but not yearly more like every other year because it is a more expensive test and I tend to always be low. I do take a vitamin D supplement but I would talk to your doctor before taking a supplement to make sure you don’t take too much especially if you are already taking a multivitamin. Because too much D can also have some bad side effects.  Celiacs tend to be able to take a higher dose due to our digestive and malabsorption issues but always talk to your doctor before taking. Other things could be making him feel extremely tired  like new allergies like pollens, animals, molds etc.. sleep apnea is a huge one( cause extreme fatigue) and some medications. Just other things he can have checked! Good luck 
    • knitty kitty
      Dr. Reddy’s Sandoz sumatriptan gluten-free?

      By knitty kitty · Posted

      I suggest you eliminate dairy from your son's diet next.  Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments.   Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products.  Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten.   Do research in Dr. Derrick Lonsdale and TTFD thiamine.  Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress!
    • Scott Adams
      Bowel issues

      By Scott Adams · Posted

      It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...