Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Too Soon For Lactose Intolerance?

tctwhite

By tctwhite
in Coping with Celiac Disease

Recommended Posts

tctwhite Apprentice
tctwhite
Posted

I started the gluten-free diet Tuesday of last week. So I haven't been on it for long. But for the past 2 mornings after breakfast Ive had to make a dash for the bathroom. And unfortunately this afternoon Im not feeling any better. Yesterday morning I had cantaloupe, almond milk, and toast (gluten-free rice bread). Everything was safe, made by me, no possibility of CC. I thought it was the cantaloupe yesterday, because Ive had an iffy relationship with cantaloupe in the past. Well today I ate some toast again with some yoplait greek yogurt. Again, I made everything so CC shouldn't have been an issue. For lunch I ate some celery with earth balance PB, which Ive been eating off and on all week for a snack, and now I just feel like I could throw up. Ive checked all my medications that I take and from what Ive read, they are all safe. Maybe Im just having a bad day and a half in general? Or could I be intolerant to more than just gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tctwhite Apprentice
tctwhite
Posted
  • Author

Also I should add that I toasted my bread in my brand new, just for me, toaster oven.

tarnalberry Community Regular
tarnalberry
Posted

Are your butter/jam/peanut butter (toppings) new? Are you using ones from before you went gluten-free that may be CC'ed?

tctwhite Apprentice
tctwhite
Posted
  • Author

They aren't a new food to me, but I purchased all new containers that have not been CC'd for safety's sake.

Lisa Mentor
Lisa
Posted

I started the gluten-free diet Tuesday of last week. So I haven't been on it for long. But for the past 2 mornings after breakfast Ive had to make a dash for the bathroom. And unfortunately this afternoon Im not feeling any better. Yesterday morning I had cantaloupe, almond milk, and toast (gluten-free rice bread). Everything was safe, made by me, no possibility of CC. I thought it was the cantaloupe yesterday, because Ive had an iffy relationship with cantaloupe in the past. Well today I ate some toast again with some yoplait greek yogurt. Again, I made everything so CC shouldn't have been an issue. For lunch I ate some celery with earth balance PB, which Ive been eating off and on all week for a snack, and now I just feel like I could throw up. Ive checked all my medications that I take and from what Ive read, they are all safe. Maybe Im just having a bad day and a half in general? Or could I be intolerant to more than just gluten?

I noticed your signature...if you do in fact have Celiac, it will take some time to heal. It's often recommended that people go dairy free until some healing can take place. Most times, it can be reintroduced successfully.

As well, all foods can be problematic until there is healing, gluten or otherwise.

Give yourself some time and avoid dairy for two to three weeks and see how you feel. :)

cavernio Enthusiast
cavernio
Posted

I can't find the lactose in peanut butter and celery, so not sure about that making you sick. That said I don't think it's too soon for lactose intolerance, you would already likely be lactose intolerant if you are a celiac.

Is this unusual for you to have to go to the bathroom, and so it stands out now? Or is it that you expected to only have these symtoms from eating gluten? If the latter, I would suggest giving yourself much more time, even a couple months, to feel better. Many people here get sick from gluten for days after ingesting it, and if this is just your intestines/digestive system working all out of whack from celiac disease, then until some sort of critical amount of healing happens, this might be the norm for you.

All the foods you mentioned you've reacted to have fat which can make celiacs run to the bathroom because it's not absorbed properly.

This seems unlikely to me, but soap or something on your hands could potentially cross contaminate all the food you've eaten. Especially with toast and celery sticks, it's finger food.

There are, of course, other food problems you might have. Casein instead of lactose for instance, or soy seem to be popular problems in the celiac crowd.

Regardless what you have, I wouldn't eat anything if you're stomach's upset before you eat at all, at least for a few days.

tctwhite Apprentice
tctwhite
Posted
  • Author

Im almost positive that I have a soy issue. Awhile back when I tried some soy milk, it had me in the bathroom before I could even finish with my meal. And maybe Im expecting too much too soon. The first couple of days, I ate all kinds of things and no bathroom run. Ive had stomach issues virtually all my life. In my late teens, I would eat and immediately have to have a bathroom in sight. Then at 25 my gallbladder came out, a year after that, I had an iron gut. Nothing bothered me anymore. About a year ago at 30, I started getting constipation (this was terrible for me since Ive always been the complete opposite). Then at the end of June when severe abdominal pain put me in the ER, I haven't been able to eat anything, except bread (go figure) without having a bathroom in sight. Even something as bland as chicken and rice sent me over the edge. White rice isn't my friend, but have found that brown rice is great. Im sure this will be a roller coaster of up and downs. My first few days were amazing and I was so very excited.

There is also another thing that could possibly be a shock to my system. Ive always been an "eat fat free everything" person. Ive also had issues with losing weight. And now that Ive read a ton on here, I now see that I haven't been getting enough of the good fats in my diet. All my food labels now have a lot of the good kind of fats in them. I can't tell you the last time Ive had real butter, unless it was accidental. Im going to cut out the lactose and see what happens. Though that will be hard since I need some cheese to go with all my whine :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cavernio Enthusiast
cavernio
Posted

Blargh, I can't believe the doctor didn't test you for celiac disease, even bothered to take a biopsy and stuff from you. I take it your other biopsy for whatever it was they were testing didn't turn up anything? I'd get back on him to test you for celiac disease. In the meantime, I hope keeping gluten and lactose out will make you feel better.

Good news if you're just cutting out the lactose though. Any aged cheese will have no/minimal amounts of it. It still has all the casein though, which is another possible culprit to consider if things don't get better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,130
    • Most Online (within 30 mins)
      7,748
    Anna Poulin
    Newest Member
    Anna Poulin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Okay yeah that helps! To answer your last bit my understanding was that you need to have multiple tests to confirm celiac. Blood, biopsy, dna, and then I think symptoms is another one. Either way I think everything has to be confirmed with the biopsy because that is the gold standard for testing (Doctors words). You also answered another question I forgot to ask about which is does a high value push to a higher % on those scales. I truly appreciate your answers though and just like hearing what other people think. Digging into forums and google for similar stuff has been tough. So thank you again!
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      The tests outlined in the article I linked are rated according to "sensitivity" and "specificity". Sensitivity refers to how well the test does in not missing those who actually have the disease being tested for, in this case, celiac disease. The DGP-IGA test is estimated to have a sensitivity of 75% to 95%.  Specificity refers to how well the test does in not producing a positive score to medical conditions other than the one being tested for, in this case, celiac disease.  The DGP-IGA test is estimated to have a specificity of 90% to 100%. Obviously, in your case there is no issue with sensitivity. So, the only remaining question would be in relation to specificity. It is my observation from participating in this forum for many years and reading the posted test results from many, many forum contributors, that the likelihood of misdiagnosis due to a specificity issue diminishes greatly with high test score numbers. Still, there is a slight chance it could be due to something else. Think about it. If this were not so, why would your GI doc even be scheduling you for a biopsy?
    • Flosdiner
      Gluten-Free House Swaps

      By Flosdiner · Posted

      How cold is Ottawa in winter?    
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      It is interesting you mentioned that it could be other things because I asked my gastro and she literally said it means nothing else. That that value was only considered for Celiac which is kind of why I asked here because I didn't understand how a celiac only value could be high and it wasn't celiac. 
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      I did read this article and all it helped me determine was that I am too dumb lol. Plus with DGP IGA 75-95 is a huge range. I was also confused on if it meant 75-95% of people with positive dgp iga have it or if it meant that of 100% of the people that have Celiac 75-95% this value will be positive.  Most of my symptoms are GI related but the other one that stands out is inflammation. It almost felt like I had body aches and I have soreness right now that I don't have when I am on the paleo diet full time (which is gluten free when you never cheat on it, which I was occasionally). My doctor suspected Raynauds but never did a blood test for it, and then I have had ADHD which I can't remember if it was directly related or not. I have a healthy mix of a lot of stuff going on so honestly it would be a relief if it was celiac because I could at least manage that. Im a pretty healthy person exercise daily high intensity and endurance and a pretty good diet but I haven't been able to lose weight in like 7 years. 
×
×
  • Create New...