Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely Fatigued, No Energy, And Can't Sleep

GF1830813

By GF1830813
in Related Issues & Disorders

Recommended Posts

GF1830813 Newbie
GF1830813
Posted

I have been gluten free for a little over 2 months and while being on the diet I have become very tired, no energy, and issues with sleeping. Has anyone else had this issue? Could there be another underlying issue? It doesn't matter how much or how little sleep I get I am always exhausted.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AmandaRae Newbie
AmandaRae
Posted

I have been gluten free for a little over 2 months and while being on the diet I have become very tired, no energy, and issues with sleeping. Has anyone else had this issue? Could there be another underlying issue? It doesn't matter how much or how little sleep I get I am always exhausted.

YES!!! I've only been gluten-free for 2 weeks and I'm absolutely exhausted. Fatigue was one of my chief complaints before my celiac disease diagnosis, but it has just gotten worse.

I really think it's because I'm not getting enough carbs in my diet. So I'm working on that! Plus, my Vitamin D level was extremely low. I'm now taking supplements. Have you had yours checked?

Lisa Mentor
Lisa
Posted

If you haven't already done this...I would recommend a full metabolic panel to check your mineral and vitamin levels. Often times, many can be deficient in B-12 and Folic Acid as well as other things due to lack of absorbing.

After my diagnosis, I had B-12 shots once a week for six weeks. My improvement was extraordinary.I could walk a straight line again and I could speak a whole sentence with success. :rolleyes:

DonnaJ Newbie
DonnaJ
Posted

I have been gluten free for a little over 2 months and while being on the diet I have become very tired, no energy, and issues with sleeping. Has anyone else had this issue? Could there be another underlying issue? It doesn't matter how much or how little sleep I get I am always exhausted.

I was just recently diagnosed with celiac disease .. It all came about because I was tired all the time and would fall asleep at my desk. I was found to be anemic and had an iron deficiency. I take an iron supplement and seem to be feeling a little better.

So you might want to have that checked as well.

Donna

Dugudugu Rookie
Dugudugu
Posted

This is an interesting question, because I am in the exact same situation. I am also 2 months gluten free, and went to my gp two days ago and requested bloodwork. Only thing he wrote down was bloodwork on b12 levels. He thought that the vitamins and minerals was not much of usage. He still thinks I am having a chronics disease that make me tired, so his arrows are more pointing towards that direction than the whole gluten issue (I went gluten free after low b12 and low IgA levels, celiac bloodwork was negative and incomplete requsted. I had b12 shots in the past, they did nothing to me).

I am more tired than ever, and on the extreme tired days I am taking a sleeping pill, otherwise I am too tired too sleep. Actually very weid.

RiceGuy Collaborator
RiceGuy
Posted

I always had trouble sleeping before going gluten-free. And even afterward, there wasn't much improvement until I began some supplements. Vitamin B12 (the methylcobalamin type), co-enzyme B-complex, and magnesium are the ones which helped me the most with sleep, from what I can tell.

GF1830813 Newbie
GF1830813
Posted
  • Author

Thank you for all the feedback on things to try. I am definitely going to get my vitamin levels checked. The only vitamin level I had checked was calcium, so I will make an appointment and see if I can get tested for everything else.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 4 weeks later...
hottati Newbie
hottati
Posted

Hi, my name is Tatiana and I have been gluten free for over a year now but when I was first diagnosed I was also really exhausted all the time. However, as time has gone on I lost the tired and groggy feeling. One thing that I didn't lose was the fact that I don't sleep much. I usually only average about 5 hours a night at the most (I don't know whether this is from Celiac or the fact that I am a college student). You can try to do the whole B12 thing but if that doesn't work just give it time it could just be your body adjusting to the new diet. Good luck with everything! (:

  • 3 weeks later...
luvrdeo Apprentice
luvrdeo
Posted

So this is normal for a bunch of us? Because I'm ready to lose my mind I've been so tired - to the point that some days, the couch is where I stay...all day. My B12 and folic acid tests came back normal, and I've been taking a B12 supplement...but nothing gives. I go back to the doctor Wednesday, and am not sure what to even do! So frustrating. I feel like I'm far to young to want to sleep my days away...

RiceGuy Collaborator
RiceGuy
Posted

So this is normal for a bunch of us? Because I'm ready to lose my mind I've been so tired - to the point that some days, the couch is where I stay...all day. My B12 and folic acid tests came back normal, and I've been taking a B12 supplement...but nothing gives. I go back to the doctor Wednesday, and am not sure what to even do! So frustrating. I feel like I'm far to young to want to sleep my days away...

You're likely still healing, so give it time. Although it cannot hurt to take some key supplements, such as a co-enzyme B-complex, magnesium, zinc, vitamin D3, and probably a few others I'm not thinking of at the moment.

Of course, getting optimal nutrition is very important too, so eating well can make a big difference.

It may also be a good idea for you to have your thyroid checked. See www.stopthethyroidmadness.com for how to really interpret the test results, and what to do about it.

luvrdeo Apprentice
luvrdeo
Posted

You're likely still healing, so give it time. Although it cannot hurt to take some key supplements, such as a co-enzyme B-complex, magnesium, zinc, vitamin D3, and probably a few others I'm not thinking of at the moment.

Of course, getting optimal nutrition is very important too, so eating well can make a big difference.

It may also be a good idea for you to have your thyroid checked. See www.stopthethyroidmadness.com for how to really interpret the test results, and what to do about it.

I wish my eating was the answer...I eat healthier than anyone I know! It's scary how good I eat actually.

My doctor ran my TSH levels...apparently they were below normal. No idea what that means. That's the only test they did though. Maybe I can get more out of them tomorrow.

PrettyCeliac Newbie
PrettyCeliac
Posted

Have you had an extensive mark up of your blood? I was extremely low in magnesium, Vitamin B, testosterone and D - which once I started taking supplements, after about 2 weeks I started feeling more energetic.

I also struggle with insomnia and sleeping so I ended up getting a very low dose of Ambien to help me fall asleep. It's 5mg or so but just helps take the stress off of trying to fall asleep. I feel like a new person.

Rebecca

Pretty Little Celiac

CeliacShack Rookie
CeliacShack
Posted

So this is normal for a bunch of us? Because I'm ready to lose my mind I've been so tired - to the point that some days, the couch is where I stay...all day. My B12 and folic acid tests came back normal, and I've been taking a B12 supplement...but nothing gives. I go back to the doctor Wednesday, and am not sure what to even do! So frustrating. I feel like I'm far to young to want to sleep my days away...

I feel the same way. I went to my PCP yesterday to talk about getting my levels checked, just need to call my insurance to make sure they'll actually pay for them. I'm so tired of being tired!

luvrdeo Apprentice
luvrdeo
Posted

I feel the same way. I went to my PCP yesterday to talk about getting my levels checked, just need to call my insurance to make sure they'll actually pay for them. I'm so tired of being tired!

My doctor ordered all kinds of tests today for the fatigue - he said its a tough one to figure out because it can be caused by SO many things in our bodies - but to not give up, that we'd find an answer. It's nice to know I'm not alone...and not totally losing my mind on this deal!

  • 1 month later...
M-Rods Newbie
M-Rods
Posted

I'm only just starting week 4 of being gluten free, but have had fatigue issues for over 2 years since my back injury, I can sleep an entire day away, if I didn't have to be at work I would be sleeping. I'm ramping up the vitamins now and hoping for some positive changes soon.

Songbird34 Newbie
Songbird34
Posted

I have been gluten free for a little over 2 months and while being on the diet I have become very tired, no energy, and issues with sleeping. Has anyone else had this issue? Could there be another underlying issue? It doesn't matter how much or how little sleep I get I am always exhausted.

That is interesting. I have found quite the opposite. Before going on a gluten-free diet I experience extreme fatigue sometime so bad that I couldn't force myself to get off the couch are out bad for hours in the morning. Then it would get worse as the day progressed. I've been gluten-free for about three months now. And all of the symptoms are gone. In fact, I am now running every day. This is something I have never done in my entire life.

  • 2 weeks later...
floral Newbie
floral
Posted

I had sleep issues in the beginning of my diagnosis...also, terrible jaw pain and neck ache at the end of a long day. I recently got glutened over the Thanksgiving holiday so I'm back to not sleeping, my jaw is killing me and my neck hurts. The only difference is that I know what it's from and do have tramadol for pain and something to make me sleep thanx to my neuro. Not big on pill taking but decided that falling asleep when the sun comes up doesn't lead to productive days. Let's pray this doesn't last long.

Kathy59 Rookie
Kathy59
Posted

Hang in there! In the beginning I went from not being able to stay awake to insomnia at night! Remember, we are all different and are bodies are at different stages of the disease! Highly recommend B12 sublinguial (dissolve under the toungue) Vit D3 (most people are lackin Vit D) B Complex...I take others, fish oil, Vit E. I also ate straight fresh fruit/veg and meat for months....lived in an area where gluten-free foods not available....finally ordered pasta and breads from Amazon.....soups too! I think it was good for me though to somewhat detox my system from all processed foods! Discovered how good real food is and still do not eat out much or processed foods...it does get better! Stay off the gluten...once you get past this...if you find yourself falling asleep it may be from ingesting gluten...if the gut pain doesn't get you first!

  • 3 weeks later...
Eva Bee Newbie
Eva Bee
Posted

So this is normal for a bunch of us? Because I'm ready to lose my mind I've been so tired - to the point that some days, the couch is where I stay...all day. My B12 and folic acid tests came back normal, and I've been taking a B12 supplement...but nothing gives. I go back to the doctor Wednesday, and am not sure what to even do! So frustrating. I feel like I'm far to young to want to sleep my days away...

I went to an allergy therapy clinic and they explained to me that conventional testing has their acceptable mineral / vitamine levels that are only "ok if you're barely active". They suggested to visit a naturopath and their levels are much higher - if that makes sense. I was convinced I was anemic and my doctor said that my levels were a little low but nothing serious but to try suppliments.. I did and I'm much better (even better now that I'm off gluten!!)

mushroom Proficient
mushroom
Posted

You will always find it recommended on here (or at least it should be) that you aim for the middle of the normal range. If you are at the bottom, you are just about to fall off the end :unsure:

  • 4 months later...
Brandiwine Contributor
Brandiwine
Posted

So this is normal for a bunch of us? Because I'm ready to lose my mind I've been so tired - to the point that some days, the couch is where I stay...all day. My B12 and folic acid tests came back normal, and I've been taking a B12 supplement...but nothing gives. I go back to the doctor Wednesday, and am not sure what to even do! So frustrating. I feel like I'm far to young to want to sleep my days away...

How long have you been gluten-free? I felt this way through withdrawal and detox the first few weeks.

LouiseP Newbie
LouiseP
Posted

I was suffering from chronic fatigue prior to my diagnosis in December last year.  After I started a gluten free diet it took about 6 weeks for me to detox and whilst I felt like I wasn't 100% I was doing much better.  I recently stopped taking the diflucan that my doctor had prescribed and added anti-fungals to my current regime of vitamins, digestive enzymes and probiotics.  Today I feel wiped out again and a little frustrated.  I've been struggling with allergies as well so I'm not sure if it is the allergies or the change to regime.  Has anyone else experienced this?  Do I need to check back in with my doctor?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,797
    • Most Online (within 30 mins)
      7,748
    JuneRose
    Newest Member
    JuneRose
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
      Potato Intolerance

      By Jordan23 · Posted

      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By trents · Posted

      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Doris Barnes · Posted

      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
×
×
  • Create New...