Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Dumb, I Got Careless....

MitziG

By MitziG
in Coping with Celiac Disease

Recommended Posts

MitziG Enthusiast
MitziG
Posted

A store in town was clearancing out all of their candy, something I rarely buy. But you know, a bargain is a bargain....

Initially I WAS checking the back of each package to see if they were ok...but then I got a bit lazy, saw the GLUTEN FREE on the bag and just tossed them in the cart.

I really wish companies would not label things gluten free when they are processed on equipment with wheat. I didn't see the tiny little disclaimer (my fault...I didn't look...)

This morning, after 4 little caramels at my desk at work I felt that familiar hardness in my stomach...told the boss I had to go home cuz I was going to throw up. I'm sure he thinks I'm crazy.

At least I made it home first. And now I have had the big D for the last 8 hours...

Grrrr....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cahill Collaborator
cahill
Posted

it happens ,we have all done it at one time or another

Once at work I bought a Twizzlers out of the machine, not even thinking :rolleyes: bite into it and "POW" instant head rush. :blink: I look at the wrapper ,there it was WHEAT FLOUR :ph34r:

Hope it passes quickly for you :)

eatmeat4good Enthusiast
eatmeat4good
Posted

So sorry you got sick.

That was the second level of learning about "gluten free" for me.

First it was Dove Chocolate Covered Almonds for me...sick, sick, sick. And I thought Dove was gluten free? Well, it is, but only if it's the plain candies...at least at the time I was reading/eating it. (I no longer do, so please read the label if you are going to eat it.) Since then I have found many things labeled gluten free and have the statement Processed in a facility that also processes wheat. Several times they made me sick, so now I know not to eat any of those "gluten free" products. Ugh. I hope this reaction doesn't last very long for you.

squirmingitch Veteran
squirmingitch
Posted

Tender ((((HUGS))))) to you MitziG.

MitziG Enthusiast
MitziG
Posted
  • Author

Thanks guys! Why on earth must they put wheat in Twizzlers anyway? I really miss those!

cahill Collaborator
cahill
Posted

Thanks guys! Why on earth must they put wheat in Twizzlers anyway? I really miss those!

Me too they were my favorite!

Lucy Lastic Newbie
Lucy Lastic
Posted

I hate when they label things like that. I hope you feel better soon.

I also had a careless moment yesterday. My boss offered to pick up lunch for us and I asked for a grilled chicken sandwich that I know is gluten free if I don't eat the bun. He thought he was getting a grilled one but got a fried one by mistake. I felt bad and didn't want to throw something away that he paid for so I tried to scrape off the breading and eat it. Yeah, that didn't work. Now I am sick for the weekend, if not longer. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LauraB0927 Apprentice
LauraB0927
Posted

I feel your pain!!! The EXACT same thing happened to me three weeks ago - I bought gummy bears from Rite Aid which were labeled "gluten free" and I even read on the back of the package that they were made in a facility that produces wheat products. I remember thinking to myself "What are the chances? I cant be THAT sensitive!" So I went ahead and bought them and finished the whole bag, then it was all over...horrible abdominal pains (not to mention that after an hour I looked like I was 8 months pregnant - my coworkers got freaked out) and was in the bathroom for quite some time...NEVER again......I hope you feel better soon!

RonSchon Explorer
RonSchon
Posted

Oh Man, Mitzi, that stinks.

I was waiting for something like that this morning myself, but it never came.... YAY!!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,130
    • Most Online (within 30 mins)
      7,748
    Anna Poulin
    Newest Member
    Anna Poulin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Less than 10 parts per billion issues

      By Scott Adams · Posted

      Yes, these articles may be helpful:    
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      No, you don't necessarily need multiple testing methods to confirm celiac disease. There is an increasing trend for celiac diagnoses to be made on a single very high tTG-IGA test score. This started in the UK during the COVID pandemic when there was extreme stress on the healthcare system there and it is spreading to the US. A tTG-IGA score of somewhere between 5x and 10x normal is good enough by itself for some physicians to declare celiac disease. And mind you, that is the tTG-IGA, not the DGP-IGA. The tTG-IGA is the centerpiece of celiac antibody testing, the one test most commonly ordered and the one that physicians have the most confidence in. But in the US, many physicians still insist on a biopsy, even in the event of high tTG-IGA scores. Correct, the biopsy is considered "confirmation" of the blood antibody testing. But what is the need for confirmation of a testing methodology if the testing methodology is fool proof? As for the contribution of genetic testing for celiac disease, it cannot be used to diagnose celiac disease since 40% of the general population has the genetic potential to develop celiac disease while only 1% of the general population actually develops celiac disease. But it can be used to rule out celiac disease. That is, if you don't have the genes, you don't have celiac disease but you might have NCGS (Non Celiac Gluten Sensitivity).
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Okay yeah that helps! To answer your last bit my understanding was that you need to have multiple tests to confirm celiac. Blood, biopsy, dna, and then I think symptoms is another one. Either way I think everything has to be confirmed with the biopsy because that is the gold standard for testing (Doctors words). You also answered another question I forgot to ask about which is does a high value push to a higher % on those scales. I truly appreciate your answers though and just like hearing what other people think. Digging into forums and google for similar stuff has been tough. So thank you again!
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      The tests outlined in the article I linked are rated according to "sensitivity" and "specificity". Sensitivity refers to how well the test does in not missing those who actually have the disease being tested for, in this case, celiac disease. The DGP-IGA test is estimated to have a sensitivity of 75% to 95%.  Specificity refers to how well the test does in not producing a positive score to medical conditions other than the one being tested for, in this case, celiac disease.  The DGP-IGA test is estimated to have a specificity of 90% to 100%. Obviously, in your case there is no issue with sensitivity. So, the only remaining question would be in relation to specificity. It is my observation from participating in this forum for many years and reading the posted test results from many, many forum contributors, that the likelihood of misdiagnosis due to a specificity issue diminishes greatly with high test score numbers. Still, there is a slight chance it could be due to something else. Think about it. If this were not so, why would your GI doc even be scheduling you for a biopsy?
    • Flosdiner
      Gluten-Free House Swaps

      By Flosdiner · Posted

      How cold is Ottawa in winter?    
×
×
  • Create New...