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Celiac Teens :d

shauniscrazy

By shauniscrazy
in Meet Up Room

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shauniscrazy Explorer
shauniscrazy
Posted

I am new and would love tips. I would like to here what other people did when they first found out too.

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Persei V. Enthusiast
Persei V.
Posted

I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

Thanks and i have been trying new foods. I have also found new ones to replace what i cant eat anymore. I cant really get anything at restaurants anymore :P. Sandwiches on gluten free bread is about the only thing i have been eating now though and that is getting old quick lol. What would you recommend?

Sage122 Explorer
Sage122
Posted

I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

Thanks for your reply and im sorry that happened to you. I have never had any really bad reactions, i just felt sick and really tired all the time. But i cant have wheat or dairy either now. I have found substitutes for most things like they have dairy free cheese which would go great with your pizza lol and i have been drinking rice milk instead.

  • 2 weeks later...
Guest Runningdream
Guest Runningdream
Posted

That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

I want to go to one but the closest is more than an hour away i believe. But ingles has a bunch of gluten free and dairy free. There is also an Earth Fare near here.

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    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      Water filters and gluten

      By MaryMJ · Posted

      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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