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GwenO

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GwenO Apprentice

Hi there. Already intro'd myself in the parents of kids section, but see that this is the place. My 11 year old daughter recently diagnosed. Very ill, hospital etc. Initially thought anorexia, blood and biopsy showed celiac. Baby steps. difficult adjustment for her for sure, but we're making small gains. :)

Gwen


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Lisa Mentor

Hi there. Already intro'd myself in the parents of kids section, but see that this is the place. My 11 year old daughter recently diagnosed. Very ill, hospital etc. Initially thought anorexia, blood and biopsy showed celiac. Baby steps. difficult adjustment for her for sure, but we're making small gains. :)

Gwen

Welcome Gwen! You have found a great place to settle in. Read here as much as you can and please feel free to ask any questions.

It gets better, it really does. :)

beachbirdie Contributor

Hi there. Already intro'd myself in the parents of kids section, but see that this is the place. My 11 year old daughter recently diagnosed. Very ill, hospital etc. Initially thought anorexia, blood and biopsy showed celiac. Baby steps. difficult adjustment for her for sure, but we're making small gains. :)

Gwen

Hi, Gwen!

Welcome! I hope you're finding your way around okay, this is a wonderful place for learning AND making friends!

mamaw Community Regular

Hello & Welcome

Great place is celiac.com Make sure all of the family is tested....

GFinDC Veteran

Welcome Gwen!

Nice to have you here. Feel free to ask questions, we all have been there and may be able to help.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

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Short temper thread

Non celiac wheat sensitivity article

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Gemme Rookie

Hi,

I have been through this , in the beginning it is bit difficultbut with time It gets better, it really does.

This is a perfectplace for learning and making friends!

Good Luck

GFinDC Veteran

Hi,

I have been through this , in the beginning it is bit difficultbut with time It gets better, it really does.

This is a perfectplace for learning and making friends!

Good Luck

Welcome to the site Gemme!


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Gemme Rookie

Welcome to the site Gemme!

Thank you

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    • trents
      We usually see mucus in the stool in those with undiagnosed celiac disease and those not adhering to a gluten free diet. However, the mucus could also be coming from lower down in the intestinal track. I would seek a physician consult. You might also check into getting a follow-p endoscopy/biopsy on the small bowel to check for healing progress since going gluten free.
    • trents
      @ARSTONE, not to be picky because there has been evolution in the terminology with regard to gluten disorders. And the terms "gluten intolerance" and "gluten sensitivity" are still used by some interchangeably. But with time, "gluten intolerance" has become synonymous with celiac disease with "gluten sensitivity" referring to NCGS (Non Celiac Gluten Sensitivity). Having said that, whatever it may be, apparently there is an ingredient in that product that doesn't agree with you.
    • knitty kitty
      @Manaan2, You may want to consider switching from Miralax (polyethylene glycol) to magnesium citrate and Thiamine supplements.   When I was prescribed Miralax for constipation, I developed worsened gastrointestinal problems, including worsening leaky gut syndrome.  Since polyethylene glycol is a synthetic chemical made from petroleum or coal byproducts, I was uncomfortable with that.   Miralax can cause poor vitamin absorption, flushing vitamins and minerals away before they can be absorbed.  Miralax can cause electrolyte imbalances, meaning low magnesium.  Low magnesium levels can cause constipation.  Low Thiamine Vitamin B1 can cause constipation as well.  Magnesium and Thiamine work together to make life sustaining enzymes.  Without sufficient thiamine and magnesium, the gastrointestinal tract slows down resulting in constipation, a sort of catch twenty-two.   I quit taking Miralax.  I took a form of Thiamine, Benfotiamine 250-300 mg, at the beginning of every meal and 200mg magnesium citrate or magnesium glycinate or magnesium l-threonate (Neuromag) at the end of every meal.  My constipation resolved quickly.  When my stool got too loose, I simply reduced the amount of magnesium.  I did not reduce Benfotiamine which has been shown to promote intestinal health and reduce leaky gut syndrome.  If thiamine at night gives too much energy to fall asleep at night, skip the Benfotiamine at the last evening meal. Blood tests ate not accurate measures of vitamin sufficiency.  The best way to check for Thiamine insufficiency is to take it and look for health improvement within a few days.  Thiamine is water soluble, easily excreted in urine if not needed.  Thiamine is safe and nontoxic when used in high doses.  No harm in trying, just to rule this out.   Best wishes.  Do keep us posted on your daughter's progress!
    • Di Wallace
      I don't know if anyone can help. I was diagnosed with celiac last June. Since going gluten free the diarrhea has stopped, in fact things have gone the other way. What is bothering me is the occasional rectal mucus discharge. I have no other symptoms and it doesn't happen very often. As I haven't seen anyone since my diagnosis, I don't know if this is normal or not
    • ARSTONE
      The issue is I'm not actually celiac but gluten intolerant. So do t know why I am so sick from this. It's been two days. 
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