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Brand New, Need A Few Answers

stacyisgf

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stacyisgf Newbie
stacyisgf
Posted

Hi to all gluten-free's out there, I was just diagnosed with Celiac Disease-- +Iga after so many misdiagnosis of IBS. I'm 2 weeks knowing now and I feel soo much better!! I can't believe it! I have soo many questions...but first up, is there a good book source ( 1 book) that is like the bible of gluten-free that is good to have to flip and get the answer to anything gluten-free?? Also, I'm having a hard time knowing which seasonings are a problem, is there terms to look for like (garlic-powder) "powder" being the problem. Over all where is the best place to shop just gluten-free?? Help and thanks... :)

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psawyer Proficient
psawyer
Posted

Powder, as in garlic powder, means dehydrated. The moisture is removed--nothing is added. Powdered or dehydrated plants are gluten-free, as long as they weren't gluten grains to begin with. I have never seen wheat, barley, rye or oats sold as a "powder," and wheat would have to be explicitly declared in the US and in Canada.

Things like "garlic salt" may contain other ingredients besides dehydrated garlic and salt, so read the ingredients carefully. Again, wheat can not, by law, be concealed.

GottaSki Mentor
GottaSki
Posted

Welcome Stacy!

I think you've found the best place to get answers when newly gluten free. I read a few books when I was first dx'd, but really learned much more here. I can tell you that there are some good books, but definitely not one book that will tell you everything. You will learn as time passes - while the learning curve is tough, living gluten-free becomes much easier with time.

Check out the FAQs thread:

https://www.celiac.com/gluten-free/forum-5/announcement-3-frequently-asked-questions-about-celiac-disease/

The best place to shop gluten free is the outer perimeter of the grocery store - sticking to whole foods and avoiding processed foods during the early days is the best way to heal. That being said you can find "gluten free" items at any store - I like Trader Joe's, Amazon for cereals, pasta and baking supplies. Udi's bread is probably the easiest good gluten-free bread to find - there are some other very good ones, but some taste like drywall -- I know that dropping $5 on a loaf of inedible bread really ticked me off when first gluten-free. Many processed and snack foods are gluten free even if not labeled "gluten free" - when in doubt google the item -- the search usually brings you back here. The best way to assure something is gluten free is the website of the company that produces the item - if still in doubt - call or email them.

Good Luck to you :)

Adalaide Mentor
Adalaide
Posted

A note about bread. If you try gluten free bread and decide it sucks, don't have any for like 3 or 6 months and try again. While I didn't think it sucked, I was unimpressed with it. After not having any sort of bread for several months, when I finally had some again last week it was like mana from heaven. I prefer Rudi's to Udi's but apparently it isn't available everywhere. Be sure to check your stores for what is then like them on facebook and check their websites, you can find coupons that way.

Oh, and I guess I'll add that I was already a couponer shopping with a 3-ring binder but I printed out a list of ingredients to watch for. I also printed out lists for my favorite fast food places (and threw them all away except Wendy's) and a few other "survival" things I felt I needed. I keep that with me still in my Jeep and never leave home without it. I'll refer to it sometimes but after a few months you'll be a old hand and hardly need a list of what to look for on an ingredients list.

stacyisgf Newbie
stacyisgf
Posted
  • Author

Thank you all so much! It's so nice to know I have other's that are looking for the same things I am when shopping. Im getting there, I just bought rice milk for the first time, I must say it's not bad at all!! I think what happens is.....after you have been off the old way, you start liking th new way just because you need something to take it's place. I like the Udi's hamburger buns. I have chicken salad on it and that was a nice treat! I love Dr. Lucy's chocolate cookies. I haven't attempted any fast food yet, have no idea what I can get and where....if anyone has a tip...please share. Thank you all

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    • plumbago
      Anyone else with very high HDL?

      By plumbago · Posted

      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
    • trents
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    • knitty kitty
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