Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trader Joe's Shared Facility?


GlutenFree-MLDub

Recommended Posts

GlutenFree-MLDub Rookie

I'm pretty sure I've now been glutened twice by Trader Joe's products that were made in shared facilities. How can I know what products I can try? I really don't want to be so vigilant. Once, I marinated chicken with their Romano Caesar dressing. SICK. Very sick. Then, I ate their black bean chili... also made in shared facility with wheat. Again... SICK... and on my birthday too.

How do you decide? I want to stop being cross-contaminated, but making everything from scratch is hard with my schedule. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I have found that if I am sick I cannot have a busy schedule. I didn't want to be that sensitive either...but I react to everything I have tried that is made in a shared facility. Some of us are lucky enough to draw that Celiac lotto card. It isn't a choice. If you don't want to be sick, you might have to stick to only Cetified Gluten Free with the black gluten-free inside a black circle. That is what I have to do. It's a bit inconvenient, but way better than being sick.

TiaMichi2 Apprentice

I'm pretty sure I've now been glutened twice by Trader Joe's products that were made in shared facilities. How can I know what products I can try? I really don't want to be so vigilant. Once, I marinated chicken with their Romano Caesar dressing. SICK. Very sick. Then, I ate their black bean chili... also made in shared facility with wheat. Again... SICK... and on my birthday too.

How do you decide? I want to stop being cross-contaminated, but making everything from scratch is hard with my schedule. :(

I do not trust any of the Traded Joe's products that say gluten-free, every time I tried them, end up getting sick. I too only stick to Certified gluten-free,some people can tolerate CC, I am one of the "lucky ones" that can not.

One thing I learned since being diagnosed, plan ahead, and yes I make everything from scratch; over all it is a lot healthier, not just gluten-free, but free of other processing chemicals and things that they add to processed foods. The reward has been strong nails, beautiful skin, and an overall feeling of wellness.

It is a big adjustment, but worth it!!!

GlutenFree-MLDub Rookie

I keep thinking it can't possibly be the food from shared equipment because my TTG antibodies were only mildly elevated when they were. And I had three clean biopsies and a fourth that showed mild flattening and broadening of the villi. I can't seem to accept high sensitivity like this when the tests run on me had trouble finding it. I may have to start a new topic on this, but is there any correlation in test results and sensitivity after going gluten free? It just doesn't make sense to me.

I do a lot of planning ahead, but I planned ahead to sometimes eat things that I had decided were probably safe... like this chili. I've seen the comparisons to help visualize 20ppm and I can't quite get how a half can of chili was contaminated by any more than that. I guess I have to practice my acceptance, but I am working through some other food intolerances and I guess I was hoping maybe it was something else... or that I got contaminated from the salad bar at my office. Those were the only things I ate that weren't prepared in my kitchen and I purposely stayed away from the parts of the salad bar that were near gluten foods. I'm 95% positive it was the chili though because every time I get glutened, my stomach starts grumbling loudly after I've eaten the food and then the next morning is when the serious symptoms kick in... many trips to the bathroom, fatigue, dizziness and depression.

Live and learn...

It would be nice to have a database somewhere that we can all report getting cross-contaminated by packaged foods that are supposed to be safe. I guess the manufacturer can change over time though and it wouldn't be a guarantee. I know there must be safe foods though. I'm not quite sure how to find out if the chili is made next to a line that uses flour or whether it's way across the facility in another section. Or, everyone can stop eating gluten for us. :)

Jestgar Rising Star

but is there any correlation in test results and sensitivity after going gluten free?

No.

Just as two people can get the same cold virus and have two completely different physical interpretations, how sick you feel has nothing to do with how damaged your body is.

jerseyangel Proficient

No.

Just as two people can get the same cold virus and have two completely different physical interpretations, how sick you feel has nothing to do with how damaged your body is.

You have that so right, Jess sweetie :D;)

I have had Celiac blood work rechecked while in the middle of a reaction. I was not gluten-free for long, and was still making mistakes. I was really ill with my glutening symptoms but my blood work came back perfectly normal. I continue to be very sensitive to cross contamination 7 years into it, and react strongly (but rarely anymore)--have had a follow up endoscopy which was also normal.

GottaSki Mentor

When first diagnosed I could eat TJ's items that had the shared facility statement - within months I started reacting to them. We no longer purchase any shared facility statement items from any source - it's not worth the risk.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,041
    • Most Online (within 30 mins)
      7,748

    LAJAD
    Newest Member
    LAJAD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
    • KRipple
      Hello, My husband has had issues with really bad diarreah for over nine months now. In mid November, he went to the doctor for what they thought was a bad cold, which two weeks later was diagnosed as bronchitis. A week later, in December, I had to take him back to urgent care and from there, to the emergency room cause his vitals were too low. They said he was having an Addisionan crisis and he spent five days in the ICU. Since my husband has Autoimmune Polyendocrine Syndrome Type II (type 1 diabetes, Addison's and Hashimoto's), I fought for a blood test to determine if he had Celiacs. Given the results of the test, he was told to go to a gastro for an endoscopy. It took two months to get his first appointment with the gastro. Still waiting for the endoscopy appointment. He stopped eating gluten in the hospital and has followed a gluten-free diet since. His diarreah continues to be as bad as before he stopped eating gluten. Still has a horrible cough that makes him hack. His energy is so depleted he pretty much goes to work, comes home and goes lie in bed. He is having issues regulating body temperature. He is barely eating (he's lost 20 pounds since mid-December). Body aches. Totally run down. He has been taking more prednisone lately to try to counter the symptoms.  Today, we went to his endo to discuss these things. She said to continue taking increased amount of prednisone (even though I explained that the increased dosage is only allowing him to do the bare minimum). According to the endo, this is all related to Celiacs. I am concerned because I know that both Celiacs and Addison's can have similar symptoms, but don't know if he would still be having these many symptoms (worsening, at that) related to the Celiac's after stopping gluten two months ago. If anyone in this group has a combination of Celiacs and Addison's, could you please share your experience? I am really concerned and am feeling frustrated. His primary care provider and endocrinologist don't seem to consider this serious enough to warrant prompt attention, and we'll see about the gastro.  Thanks.
    • cristiana
      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
×
×
  • Create New...