Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder removal complication of Celiac?

ChristianGrey

Recommended Posts

ChristianGrey Rookie
ChristianGrey
Posted

I was curious as to if - consequently, anyone may have had gallbladder disease/cholecystectomy - gallbladder removal - as a complication of the disease

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

I haven't but I've gotta say it's one thing that's really surprised me reading here through the years.

Many more than I would've expected have had their gallbladder removed w/out the expected reduction/elimination of symptoms. Too often it's years before they found that the real issue was gluten. :(

Hopefully THAT situation is growing scarce as celiac & gluten issues have become better-known.

mommida Enthusiast
mommida
Posted

I've read medical reports on gallbladder removals relating to Celiac. I have even herad of a 12 year-old having hers removed when she was trying to get diagnosed.

My gallbladder was removed a few years ago too. (I was gluten free for about 6 years before surgery)

IrishHeart Veteran
IrishHeart
Posted

Since the majority of my health issues began with gall bladder disease and a cholecystectomy, I am going to say YES. And since practically no one in my family has a GB left (mom, sister, niece, cousins, aunts) and they are probably undiagnosed celiacs themselves, given their symptoms and various AI diseases, I am going to say yes again--to the gall bladder becoming diseased as a result of gluten intolerance or celiac.

I wish I could say it resolved my GI issues, but it did not. Then, the "symptom-treating" started-- and various other health issues and AI problems, miscarriages, blah blah blah. I was not DXed with celiac (until I was very ill) -- another 27 years later.

Had I known back then (at 25) what I know now, and if an astute doctor had checked me for celiac disease when my GB went south, perhaps things may have been a whole lot different.

here are some things I have found:

https://www.celiac.com/articles/119/1/Gall-Bladder-Disease-and-Celiac-Disease---By-Ronald-Hoggan/Page1.html

Gallstone Diseases

"Impaired gallbladder motility has been reported also in patients with celiac disease in relation to reduced secretion of enteric hormones and/or decreased gallbladder sensitivity to them. In particular, untreated celiacs showed low postprandial cholecystokinin and increased fasting somatostatin levels ."

M. Fraquelli, M. Pagliarulo, A. Colucci, S. Paggi, and D. Conte, “Gallbladder motility in obesity, diabetes mellitus and coeliac disease,” Digestive and Liver Disease, vol. 35, no. 3, pp. S12–S16, 2003.

Adalaide Mentor
Adalaide
Posted

My stupid useless gallbladder is the only reason I know I have celiac. It's a long story, but between the underhanded betrayal by my gallbladder and the backstabbing of my insurance I found myself having emergency surgery one day and and endoscopy the next and home cooking a Christmas ham and opening presents high as a kite the next... and here I am! I'm surprised I remember any of last Christmas. :lol:

I was already sick enough to be pretty close to housebound. I spent my whole life, literally all 34 years of it, suffering with problems. Many of them I though were just normal. Others I was told I would have to learn to live with. I can't imagine how much worse it would have gotten if my gallbladder hadn't decided to stop playing nice. I'm actually thankful to be rid of it, because the way it worked out it could be the symptom that saved my life.

  • 2 weeks later...
shadowicewolf Proficient
shadowicewolf
Posted

I believe mine was starting to go before hand and this just intensified it and literlly killed it rofl. So happy not to have it though.

Roda Rising Star
Roda
Posted

Having mine rechecked with ultrasound and a HIDA scan today. I have had slight issues for 2.5 years but it was still functioning at 48% which I was told was above the 35% threshold for removal. Symptoms have been very mild since then, so when I would have them I'd just deal with it. My symptoms decided to "morph" about 1.5 weeks ago which brings me to getting it rechecked again. My GI also wants me to have another EGD to check things out. He is now recommending all his celiac patients be scoped yearly. So we will see..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

Having mine rechecked with ultrasound and a HIDA scan today. I have had slight issues for 2.5 years but it was still functioning at 48% which I was told was above the 35% threshold for removal. Symptoms have been very mild since then, so when I would have them I'd just deal with it. My symptoms decided to "morph" about 1.5 weeks ago which brings me to getting it rechecked again. My GI also wants me to have another EGD to check things out. He is now recommending all his celiac patients be scoped yearly. So we will see..

My gallbladder was working at 30%. I was on a "wait and see plan". I got glutened and my gb symptoms have gotten much worse. So much so, that I went back to the GI that first DXed my Celiac. Since Mayo said to wait it out..she doesn't want to redo the HIDA scan. :(

I hope yours tests OK. Having a surgery is no fun.

Roda Rising Star
Roda
Posted

My gallbladder was working at 30%. I was on a "wait and see plan". I got glutened and my gb symptoms have gotten much worse. So much so, that I went back to the GI that first DXed my Celiac. Since Mayo said to wait it out..she doesn't want to redo the HIDA scan. :(

I hope yours tests OK. Having a surgery is no fun.

Thanks. Ultrasound was normal yesterday which I already figured it would be. I go today to get the HIDA scan done. I have a feeling I'll be in the same situation as last time. If so, I guess I'll manage like I have been.

Roda Rising Star
Roda
Posted

To the OP did you have your gallbladder out or are you currently having problems? I just found out today that I have chronic cholecystitis and poor gallbladder ejection fraction of only 21%. I've been very uncomfortable since my HIDA scan today. It has really went down hill from the tests 2.5 years ago. I knew it was worse since I've become more symptomatic. I guess after my vacation this coming week I'll consult with a surgeon to get it out. I'm bound and determined to have a great time while at the Outer Banks, NC if I have to live on applesauce. :P

I don't really know if celiac played a role in it's decline, but it probably didn't help any. I've been gluten free now for almost 4 years. That's not to say there haven't been bumps in the road. Back in 2010 I had an eight month spell where I was having a lot of trouble. I didn't realize I was getting gluten free oat cross contamination in the gluten free products I used. Once the light bulb went on I fixed that problem. I'm severely intolerant to the avenin protein in pure oats that the CC did a number on me. I react just as bad as if I ate gluten. So I'm sure that didn't help the issue either.

I've been seeing the humor in it though. I have other risk factors for GB disease..I'm female, fat, fertile and almost 40. Great combo with the celiac! : :o:lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,159
    • Most Online (within 30 mins)
      7,748
    Elaine Gilbert
    Newest Member
    Elaine Gilbert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Testing

      By trents · Posted

      Did your symptoms improve after going on a gluten-free diet?
    • Scott Adams
      Testing

      By Scott Adams · Posted

      Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. Since you’ve been gluten-free for 10 years, traditional diagnostic methods (like endoscopy or blood tests) would not be reliable now. If an official diagnosis is important to you, consider discussing a gluten challenge with your doctor, where you reintroduce gluten for a period before testing. Alternatively, you could focus on symptom management and dietary adherence, as your gluten-free diet seems to be helping. Consulting a gastroenterologist or celiac specialist could provide further clarity.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or Addison's complications? Can someone share their experience?

      By Scott Adams · Posted

      @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her fluid intake. It’s also reassuring that she hasn’t shown noticeable symptoms from accidental gluten exposure, though it’s understandable how challenging it can be to monitor for such incidents. The unexplained high lipase levels are intriguing—perhaps further investigation or consultation with a specialist could provide more clarity. Wishing you both continued strength and success in managing her health. Please keep us updated on her progress!
    • Kj44
      Testing

      By Kj44 · Posted

      Hello I received this in a genetic lab test I requested from my provider.    The patient is positive for DQA1*05, one half of the DQ2 heterodimer. The celiac disease risk from the HLA DQA/DQB genotype is approximately 1:1842 (0.05%). This is less than the 1% risk in the general population. Allele interpretation for all loci based on IMGT/HLA database version 3.55 HLA Lab CLIA ID Number 34D0954530 Greater than 95% of celiac patients are positive for either DQ2 or DQ8 (Sollid and Thorsby, (1993) Gastroenterology 105:910-922). However these antigens may also be present in patients who do not have Celiac disease.   Some background, I have been eating gluten free for about 10 years now. I have never had an official celiac diagnosis due to endoscopy and labs tested after I had already been eating gluten free for over 1 year. I was constantly sick and told you slowly remove foods and see what effects my symptoms. I have also come to realize that I have other symptoms of celiacs and recently requested the genetic testing shown above.    I am looking to see if anyone has other recommendations for testing or just to clarify the results for me as I feel the official diagnosis could be helpful but I am not positive that it is even true for me. 
    • cvz
      Celiac or Addison's complications? Can someone share their experience?

      By cvz · Posted

      My daughter, age 48, has Down syndrome, hypothyroidism, Addison's disease, and Celiac disease, which was diagnosed based on blood tests last July.  After a small intestine biopsy last fall, we were told that she has severe celiac disease.  She is taking both levothyroxine and leothyronine for her hypothyroidism and both hydrocortisone and fludrocortisone for Addison's disease.  She also takes Folic acid, magnesium, vitamin B-12, DHEA (DAGA), and a multivitamin.  In July, she started on a gluten-free diet and is very compliant.  She has had constipation and diarrhea issues all her life and now controls the constipation with Miralax, prunes, and apricots.  Shel has only very occasional syncopes or vasovagal events and muscle aches in her upper back and neck.  She drinks 4-6 or more 12 oz bottles or of liquid per day.  Her doctor has just suggested adding electrolytes to one of those bottles daily.   We are sorry to learn about the issues you are having and would like to stay in touch.  We do not know anyone else with both Addison's disease and celiac disease.  So far, she has no recognizable symptoms.  We are doing our best to keep her gluten-free, but have no way of knowing if she has had an exposure to it unless we catch it ourselves.  For example, a few weeks ago, a restaurant mistakenly breaded her fish, and I did not notice it until she had eaten most of it.  She had no identifiable symptoms of the exposure then or days later. By the way, the reason she was screened for Celiac disease was that her blood lipase levels were unexplainably high.  They still are.  We have no idea why.    
×
×
  • Create New...